To please, please ask for your positive stories of people getting well having been on HDU/ intensive care

[grobagsforever]

DP was admitted last week and moved to HDU last night. They don't know what's wrong. He has fluid on belly, some kind of infection and impiared liver function. There is talk of moving him ti ICU. We seem to be waiting on endless tests. He is 35 we have a three year old and I am 7 months pregnant. I need him . Please tell me your positive stories of recovery from these situations.

You are amazing grobags, truly you are.

Wishing you all the very best.

Hello growbags.
Sorry to hear that your DH is so poorly
How is your DD managing have you been able to see her much? Is she staying with family?

It's a very intense and confusing place to be, but he really will be getting gold standard treatment and the closest observation.
beds are 2k per night so they really don't quibble about the cost of any treatments tests or scans.
It might be useful to make notes because it's hard to keep all the information test results medication etc in your head when your head must be so full already.
Also ICU from a patients point of view is very disorienting and confusing and that's before they give any meds that may add too that.
I spent 2 weeks in ICU in January-febuary this year my fiancé was told to prepare for the worst and had two phonecalls when they thought I wouldn't make it through the night.
am back in for an op on Monday and may require some time on HDU/ICU.
As I was in a coma and had a traechostomy, when I was conscious I wasn't able to speak which was beyond frustrating.
my fella wrote dates and notes about what had happened and what the tests plans and treatment were in the short and longer term.
Those notes were incredibly useful as my thoughts and memory was so disordered being able to read and reread helped to fill in my gaps of knowledge and understanding, plus I could share them if needed.

Your DH (congratulations) has been in a few days now so they should have a clearer idea of what's happening now and what needs to happen next.
If they aren't making things clear to you ask them and then ask them again.
They really won't mind and it will help that you're aware of what's happening.
If there's no progress or clarity of diagnosis along with a treatment plan, they need to explain this to you both.
Have they started him on any medication?
With regards to the DNR they are standard in a hospice but in hospital I'm sure they aren't allowed to do that without having a discussion with his next of kin.
Remember to eat drink and sleep as often as you can, drinking is especially important as ICU tends to be very warm and the air conditioning makes everything dry Up.
Is your DH having any more therapies?
Will he have some visitors so you can get a breather?

I hope today brings you some clear answers and a way forwards can be found.

Whoops sorry I didn't realise how long my post was.

How is his oxygen today, good to hear he is needing less, what are his sats? Hope you get more answers today.

I've PM'd you Gro - let me know if you didn't get it / can't open it and I'll try again.

Grobags my love, here is how to send a pm from your phone (hoping it's the same as mine)

Click on 'inbox' (should be near the top of your screen, in the middle, just under the Mumsnet logo)

Click on '+ new message' (should be just above your list of messages in the inbox, to the left)

Enter 'wherehavealltheflowersgone' or indeed anyone else's username into the 'to' box and the subject / message as you wish

Hope that helps.

Hope too that you and your dh have got some rest and that the unrelenting nausea has abated this morning xxx

Cross posted with wherehavealltheflowersgone x

Can your DH's parents not take a shift while you go home and have a shower and a rest?

You need to look after yourself too and you must be missing your toddler.

There are a lot of us on MN who have been through things like this. So many of us can offer tips and insight to what you are going through.

We have been there

One of the things I think we would all agree on is that you need to take care of yourself. Have you been home for a change of clothes yet? How are you managing to get any sleep?

FAO Wherehavealltheflowersgone

I've been following this thread in recent days with increasing anxiety - just wanted to say that I'm so pleased you have contacted OPer with your story.

No matter how many of us post good wishes and prayers I think your experience may prove to be invaluable to OP who clearly needs support from someone who can totally empathise with what she's experiencing.

Thinking of you, Grobags. I hope you managed to get a little sleep & your DH has a better day.

Things can change so quickly in ICU, and the 1-1 care patients get there is so much better than on a normal ward.

An hour at a time, a day at a time.

Big hugs x

When my mum was dying we were allowed to stay as long as we liked, day and night on ICU. There was a relatives room where we could make drinks and they put a recliner by her bed for night time. She died when I popped home for a shower and to change :(

He is no longer on ICu.i slept on three chairs by his bed last night

Crystal, I'm sorry that your relative's visiting schedule was not as accommodating as Grobags.
However, I find your, "jealousy," comment wholly inappropriate & hurtful.

All of us send you our very best wishes Grobags & hope that your DH is able to tolerate his treatment soon. Sending hugs

Oh grobags, you must be almost 8 months now. Do take care of yourself as well xxxx

Is he on a ward now gro?

Glad he is out of ICU.

If he is on a wars now, are you able to bring your dd in to see him?

Ward, not wars

FrancesNiadova why would you find Crystals comment hurtful?

crystalskull 'I must admit, i'm struggling to understand the hospitals procedures, and why you're there so long.'

How about because her DH is very very ill and she wants to support him and be with him. It does not take much understanding. Very insensitive comment imo.

Grobags Hope the nausea has stopped and DH has a better day and you get better news from the review. Will be thinking of you. Try and get some rest together.

GroBags, all of these stories should really fill you with confidence - Thinking of you all, and sending hope and positivity your way.

LULU, every single hospital I have ever been aware of has visiting hours and does not allow patients family to stay by their beds 24/7

Of course people want to

Crystal was obviously not asking why she wanted to be there, but just saying it is unusual for her to be allowed there all day and night.

Probably best to actually read the post before calling someone who has been through a similar ICU situation with a family member insensitive

HTH

Peace and tranquility for grobags we are here for you and your special little family. xx