Jesus fucking Christ. Axure, you ought to be utterly ashamed of yourself. OP, you argue that this is AIBU, and that it is a place for opinions to be discussed, yet you tell other parents that their experiences aren't relevant, because their children were terminally ill. So it is a thread to discuss your opinions, not theirs. Hideous.
Re the photo issue. My good friend's DC was in NICU for a long time after being born. She shared photos on FB because she wanted to. Many parents share photos of their beautiful DCs on FB. She was so excited to have a gorgeous new son, she didn't see a vent and wires, she just saw the beautiful new baby that she was so in love with. She wanted everyone else to see that, too. Why should she have been denied a chance to show off her lovely new baby because he was poorly and that made some people uncomfortable.
Also, for the poster who talked about looking at it from the child's point of view. I was a very poorly child who was in hospital for the first six weeks of my life. There are no newborn photos of me. This has always upset me. We have loads of photos of both my siblings, all lovely and scrunchy-faced, snuggled up with my parents. Not a single one of me, as my folks were discouraged from taking photos of a sick baby. I'd give anything to see a baby photo of me, even if I was all ill and covered in tubes.
MrsDeVere and Expat, I'm really sorry you both had to read the shite on this thread.