jake
I know you come into contact with lots of people who are in similar situations to you so FYI.
DHF/DHP. A carer has no priority with these time limited first come first served payments none at all.
However a family that contains a child with a disability can apply for exemption without having to use the DHF if the disability means the child expected to share a room with the disabled child ( even if that child is also disabled) would be subject to an unreasonable sleep disturbance because of the disability.
The child does not need to be named on a DLA claim but it helps. To do this you have to apply in writing not using any form just a letter stating that you wish to be considered for exemption and provide medical evidence a letter from a gp should be enough, this medical evidence HAS to contain something along the lines of "xyz disability causes significant night disturbances any child expected to share would be subject to significant disturbances due to this,I would not consider it reasonable for them to share".
If regular use of a none resident carer is required that would also be exemption rather than DHF.
However being turned down for exemption does not stop a DHF application afterwards.
The DHF is ideal for situations that are not ones that are covered by the two exemptions allowed for working age people ( as the exemptions for pensioners are automatic so require no request)