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Share your dilemmas and get honest opinions from other Mumsnetters.

To ask Mumsnet to go GOLD for September?

200 replies

FarloWearsAGoldRibbon · 31/08/2012 21:29

Tonight, three years ago, at around this time, my DH, DD and I were about to sit down to dinner when we received a phone call to tell us that a doctor was on her way to speak to us urgently. DD had had a blood test that morning to see why her persistent viral symptoms were dragging on for a few weeks. When the doctor arrived she sat all three of us down and told us that our little 3yo girl had cancer - leukaemia.

September is internationally recognised as Childhood Cancer Awareness month and also Leukaemia Awareness month (although some UK charities use December for Childhood Cancer). Success rates are rising all the time, and currently stand at around 80%, but a big part of this is catching cancers early before they have time to spread. Raising awareness through Childhood Cancer Awareness Month is crucial, and can save lives.

The awareness colour for Childhood Cancer is gold, and for Leukaemia is orange. Can I ask as many of you as possible to change your names to include gold or orange for September and to visit the link below to find out more about the signs and symptoms of childhood cancer so that if a child you know is that one in 500 diagnosed with cancer before their 15th birthday, they have the best chance possible of beating it. The government provides no funding to raising awareness of childhood cancers, so it is up to everyone else to make sure the knowledge is out there.

DD is in remission and doing well after two years of constant chemotherapy, but this month we will especially be thinking of the families we know who were not so lucky. DD lost a lovely friend at the beginning of the summer - her cancer was missed despite numerous visits to the GP until it had spread, and although she battled so very bravely and with huge spirit for 3 years, the cancer could not be beaten. For the less common cancers especially, GPs may only see one in their whole career, so it is important that as many of us know the signs and symptoms as possible to give every child affected the best chance they can.

Thinking very much also of MrsDeVere and Expat and your beautiful, darling girls, and the other parents on MN whose kids have fought, are still fighting or who have passed to childhood cancer. Sadly, there are far too many of you to name you all here.

Thanks

The symptoms of Childhood Cancer

OP posts:
ChazsGoldAttitude · 03/09/2012 09:58

Done Smile

cocoaGOLDchannel · 03/09/2012 10:01

Done.

OsmiornicaGold · 03/09/2012 10:14

This reply has been deleted

Message withdrawn at poster's request.

GoldenGeek · 03/09/2012 12:02

Done Smile

Orangeena · 03/09/2012 12:13

Such a lovely idea.Hugs to you and your dd and praying she continues to improveSmile

FarloWearsAGoldRibbon · 03/09/2012 14:31
Thanks

Thank you very much Orangeena

OP posts:
FarloWearsAGoldRibbon · 04/09/2012 11:23

Bumping for day 4 of Childhood Cancer Awareness Day. 10 families in the UK will receive the news today that their child has cancer. Thinking of those children and their families.

OP posts:
GladbagsGold · 04/09/2012 11:40

Namechanged - and wishing your DD a strong happy healthy future. Thinking of those going through treatment and of course the bereaved. xxx

TeriyakiGoldWoo · 04/09/2012 12:05

Thinking of everyone affected by childhood cancer.

GoldenBabooshka · 04/09/2012 14:52

Bump!

SPsFanjoSponsoredByOrange · 04/09/2012 14:58

Name changed here too.

StepAwayFromTheORANGECakes · 04/09/2012 16:02

Done

FarloWearsAGoldRibbon · 04/09/2012 17:49

Thank you Thanks

OP posts:
OrangeforDd · 05/09/2012 11:49

Hi all. I'm changing my name for Dd who was diagnosed with ALL in November 2010. She finishes treatment next February and has been incredibly brave and resilient through this. Beware unexplained pain!! Her only symptom was an odd and unexplained pain in her knee which would come and go each month, not even persistent pain. Thinking about all the Dc's xx

OrangeandGoldMrsDeVere · 05/09/2012 12:58

Yes thank you for that reminder orangeforDd and much love to your girl.
Dd suffered terrible pain. Very easy for bone pain to be dismissed as growing pains.
Please always get pain checked out, always.

Love as always to the MN chicks battling through the horrid treatment. I think you are all stars, every one x

FarloWearsAGoldRibbon · 05/09/2012 16:43

Very good point, OrangeforDd in retrospect pain in the leg (mid thigh in her case) that came and went was the first sign of my DD's leukaemia too. For weeks it seemed to be a little ache that only troubled her now and again, but by the time she had been in hospital a couple of days she was in agony. Wishing your DD all the very best through her last couple of months of treatment and a speedy recovery from all the horrid effects of treatment when she gets there. May she never look back.

Thanks to MrsDeVere for tirelessly keeping on making MN aware, even in the face of insensitive responses you get on some threads. I really admire you for that.

DD sends her love to everyone who has sent her good wishes.

OP posts:
GrumbleAndGold · 05/09/2012 17:28

Done x

FuzzyGOLDwood · 05/09/2012 23:10

Done (hopefully) haven't name changed before.

Much love to all x

AllThingsOrange · 06/09/2012 01:41

Bump

FarloWearsAGoldRibbon · 06/09/2012 11:13
Thanks

Bumping for Friday the 7th.

OP posts:
FarloWearsAGoldRibbon · 06/09/2012 11:14

No, wait, Thursday the 6th! Anyone seen my brain?

OP posts:
CJCregg · 06/09/2012 11:28

Am just about to namechange.

Thanks to this thread I have signed up to donate bone marrow - as I'm over 40, I'd always thought I was too old, but now I know about the NHS register. I'm so glad to be able to register, it's really frustrating hearing these terrible, heartbreaking stories and not being able to donate.

Thanks for the thread and my thoughts are with everyone who is going through the agony of having sick children.

CJCregGOLDandORANGE · 06/09/2012 11:31

Howzat?

Grin
LurkingAndLearningLovesCats · 06/09/2012 11:45

Sorry I'm late to the party. I lost a cousin to Leukaemia at 9 and both Pa's to cancer. :(

My name won't change!

LurkingAndLearningLovesOrange · 06/09/2012 11:50

Whoops, I forgot to do the password part Blush

Orange or Gold will always be in my nickname for now onwards. :)