Meet the Other Phone. Only the apps you allow.

Meet the Other Phone.
Only the apps you allow.

Buy now

Please or to access all these features

AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To ask Mumsnet to go GOLD for September?

200 replies

FarloWearsAGoldRibbon · 31/08/2012 21:29

Tonight, three years ago, at around this time, my DH, DD and I were about to sit down to dinner when we received a phone call to tell us that a doctor was on her way to speak to us urgently. DD had had a blood test that morning to see why her persistent viral symptoms were dragging on for a few weeks. When the doctor arrived she sat all three of us down and told us that our little 3yo girl had cancer - leukaemia.

September is internationally recognised as Childhood Cancer Awareness month and also Leukaemia Awareness month (although some UK charities use December for Childhood Cancer). Success rates are rising all the time, and currently stand at around 80%, but a big part of this is catching cancers early before they have time to spread. Raising awareness through Childhood Cancer Awareness Month is crucial, and can save lives.

The awareness colour for Childhood Cancer is gold, and for Leukaemia is orange. Can I ask as many of you as possible to change your names to include gold or orange for September and to visit the link below to find out more about the signs and symptoms of childhood cancer so that if a child you know is that one in 500 diagnosed with cancer before their 15th birthday, they have the best chance possible of beating it. The government provides no funding to raising awareness of childhood cancers, so it is up to everyone else to make sure the knowledge is out there.

DD is in remission and doing well after two years of constant chemotherapy, but this month we will especially be thinking of the families we know who were not so lucky. DD lost a lovely friend at the beginning of the summer - her cancer was missed despite numerous visits to the GP until it had spread, and although she battled so very bravely and with huge spirit for 3 years, the cancer could not be beaten. For the less common cancers especially, GPs may only see one in their whole career, so it is important that as many of us know the signs and symptoms as possible to give every child affected the best chance they can.

Thinking very much also of MrsDeVere and Expat and your beautiful, darling girls, and the other parents on MN whose kids have fought, are still fighting or who have passed to childhood cancer. Sadly, there are far too many of you to name you all here.

Thanks

The symptoms of Childhood Cancer

OP posts:
expatinscotland · 01/09/2012 18:05

YANBU!

GolfOscarLimaDelta · 01/09/2012 18:12

Done :)

I'm on the bone marrow register too. A very worthy cause.

OrangeandGoldMrsDeVere · 01/09/2012 18:24

So many Mumsnet chicks affected by cancer :(

EmmananaOrangeandGold · 01/09/2012 18:40

Thinking of MrsDeVere and Billie, Expat and Allidh and all those whose names I don't know. I can't begin to imagine what you have gone through. Those stars that twinkle above our heads at night - they will shine forever.

AGoldenOrange · 01/09/2012 19:01

Have namechanged, am waiting for results from dds biopsy.

Thinking of everyone who has been affected x

OrangeandGoldMrsDeVere · 01/09/2012 19:15

agolden I think I know who you are.
Sending love.
(even if I am wrong about who you are of course)

Goldpippin · 01/09/2012 19:21

Done

AGoldenOrange · 01/09/2012 19:22

I'm sure I'm not who you think I am, have never posted about it on here.

But thank you Smile

EddieIzzardIsOrange · 01/09/2012 19:30

Done. Thoughts to all those fighting

GoldenPrimrose123 · 01/09/2012 19:31

Done :)

OrangeandGoldMrsDeVere · 01/09/2012 19:50

Sorry golden
But you have all my very best whoever you are x :)

Fiveorangeflowers · 01/09/2012 20:08

Thank you for starting this thread OP.

My thoughts and love are with all of those of you and your families affected by childhood cancer.

Convincing our GP DD was seriously ill was one of the stresses we faced. We were fobbed off time and again but I knew something was very wrong. She was diagnosed with ALL when she was three yrs old.

She's thankfully now a healthy adult Smile.

Fiveorangeflowers · 01/09/2012 20:09

I've been on the AN register since shortly after my DD was diagnosed but sadly now I've turned 60 I can't be a donor Sad.

Startailoforangeandgold · 01/09/2012 20:22

For Aillidah, Billy and all the other MN DCs and for My very best Brownie!
Why , oh Why is it always the nicest ones.

Strictly a bit old as she was 18, her bone cancer was missed for a year because the GP just said you swim, you play the flute of course your shoulder hurts.

(last I heard she was Ok, but I've lost touch with our mutual friend)

UmamiOrange · 01/09/2012 20:22

Orangified Grin

MammaTJisanOlympicSumoWrestler · 01/09/2012 20:39

So glad to hear your DD is in remission. Long may it continue.

FourEyesGold · 01/09/2012 20:48

Lovely idea! Testing namechange...

RowgtfcGOLD72 · 01/09/2012 20:53

Have I got it right ?

RowgtfcGOLD72 · 01/09/2012 20:54

Done. Thinking of all those affected in any way by this cruel illness x

WhoremoaneeGOLDGrainger · 01/09/2012 20:59

Done with pleasure, and sadness, as i remember my friend Rosie, who died of Leukaemia when we were 14. Its been 31 years, and i often wonder what she would have been like as a "grown-up"....

MadamFolly · 01/09/2012 21:05

Done :o

MadamFolly · 01/09/2012 21:05

Hmm, hasn't taken effect yet.

Fiveorangeflowers · 01/09/2012 21:11

Sometimes it takes a while Madam Grin

Raspberryandorangesorbet · 01/09/2012 21:14

This reply has been deleted

Message withdrawn at poster's request.

FarloWearsAGoldRibbon · 01/09/2012 21:26

Hugs to all the other oncology parents on this thread.

Wishing you very good news from that biopsy AGoldenOrange. PM me if you want to talk at any time.

So lovely to hear about your DD's success FiveGoldenFlowers Thanks to you and your DD; without the people that went before us in earlier trials, we would never have known that DD hadn't responded perfectly to frontline treatment and needed a little more treatment than a 'standard' case and DD would not have had as good a chance of still being with us today.

Very sorry about your friend, Whoremoanee. It makes me so sad and angry when I think of all the things my DD's friend will never do when she so deserved to live life to the full, and the same goes for all the other brave kids whose battles could not be won.

Thanks to all the new namechangers!

OP posts:
Swipe left for the next trending thread