I have found a depressing number of friends/colleGues/ aquaintences think DLA is so easy to get & is loads of money.
They tell me this as they are shocked & surprised what I've had to go through to even get my claim together. It's hard! & I am an articulate person who is used to writing & analyzing & coordinating things.
I spent 4 mths writing & rewriting the sodding form, which is ridiculously long & detailed with 'trip hazards' all the way through it so you can easily write yourself out of a claim by using the wrong words/ examples.
I had help to type it/ write it due to my disability, & even so I made myself iller by the effort needed. I had to meet w my gp several times to work out what to say, & sync into what she was writing, give consultants & OT reports etc etc etc
the dla still contacted my gp to ask further questions, & I found myself genuinely thinking 'oh it's lucky ive become so much worse, the gp can update them that I've lost the use of my legs & am on morphine
ffs (legs will hopefully get working again a little bit with an op & months of effort btw)
All this because I have a rare genetic syndrome which has made me v disabled, needing round the clock care & leaving me totally immobile...
And you know what? I met the criteria for higher rate care & mobility, & was over the moon! The irony is that the dla in NO WAY covers the cost that it's criteria asks for... And then to hear over & over again about how easy it is to get money & how strangers seem to think they have a right to judge people as 'deserving' & 'undeserving'.
If someone saw me in the street (when I could walk on crutches), they would see a rather fat lady w a lovely well looked after toddler, hobbling along & relatively well dressed & smiley... (2hrs of carer help & cud only walk to end of road). So def not someone worthy of benefits!
No one sees the woman who is battling with an incurable syndrome, who cries in pain several times a day at least, who has to be flat in bed the majority of the day, who collapses after a trip out of the house, who is waiting for results of genetic testing to find out if she will merely be disabled & have an early death, or will die very very shortly...
No one sees that for a good reason! I don't want to depress myself even further, I don't want my identity to be a disease, not a person, & I certainly don't want to be landed with other peoples weird reactions to it all (facing their own mortality, & that the world isn't fair, & that yes, it can happen to anyone etc)
So I ask you... Please learn these small facts
- People don't put their illnesses on display for you to judge
- Looking ok in public is not a sign that you don't deserve help
- The dla is bloody hard to get
- The dla requires you to need more help than the money could ever buy, in order to get that money
And one for luck...
- Disabled people arent a race apart, they aren't separate from you, they don't get to have different (less) human rights, diff (less) needs, diff (less) standard of life ... We are people JUST LIKE YOU ... An uncomfortable truth in many ways...