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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

See all MNHQ comments on this thread

to think that disability affects you all?

346 replies

LadySybilDeChocolate · 14/01/2012 17:07

www.mumsnet.com/Talk/am_i_being_unreasonable/a1380515-AIBU-about-the-government-lying-about-DLA#29486359 I'm talking about this thread. Your support is needed. Disability is an ongoing issue and the disabled are being bastardised at the moment. Children are having vital benefits cut, as are those who really need them. We all know someone who's disabled. By burying your head in the sand you're ignoring the needs of your relatives, your friends or your children.

I know plenty of people who have a disability. They range from my lovely nephew who is autistic to my mother who has Osteoperosis and heart failure. These cuts would affect my family. What about yours?

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molepom · 14/01/2012 19:21

pmsl

Notthefullshilling · 14/01/2012 19:22

Ladysyble, I agree the human rights commission's have been very quiet, but since all the equality bodies were merged they seem permanently dumb and in particular about disability. A case perhaps of main streaming for the sake of controlling dissent not to highlight inequalities.

This should not be about carers verses the disabled, but it needs stated that careers and those that they care for should have different agenda's, and although both want to work towards the independence and quality of life of the disabled person, it would be generally better if women who were are the majority of the care givers were not related to the disabled person. Independent living is made more challenging if you also have to navigate through the minefield of family relationships as well.

Memoo · 14/01/2012 19:25

Can I ask how pip differs from dla, what is it about it that makes it worse?

TheHumancatapult · 14/01/2012 19:36

memoo

under pip if you can use a wheelchair for more than 50 metres on the flat perfect smooth surfa ce then as it stand it will then means your like eveyone else mobilty wise and be no differant to anyone else without mobility problems .even though your not

TheHumancatapult · 14/01/2012 19:36

no taking into account you need adapted cars to drive or the fact nhs wheelchairs they dont take into aqccount that you may want to be able to go outside or go to a shop or go into a shop

TheHumancatapult · 14/01/2012 19:40

My manual chair cost me £3000 and bearing in mind i dont need lots of extras.This means i cna propel round my house , take my daughter to school.( as long as no one on the dropped kerb or filled the footpath with cars) it allows me some degree of independence .

Yet the nhs chair i could hardly move and it would leave me exhausted after 30 mins just around teh house

LadySybilDeChocolate · 14/01/2012 19:43

So according to the pip guidelines your mobility isn't affected catapult! Hmm

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molepom · 14/01/2012 20:03

That's right LSDC. Most people who have to claim DLA would rather fill in that stressful 40 page claim form and submit pages and pages of supporting document from official bodies such as doctors and hospitals than have to deal with the incompitence of ATOS, which BTW, has been banned in several US states for being so fucking useless. Atos is not only a private company costing the government £300 - £500 million a year (compared to the £14 million from the DLA), it has a seven year contract and has very, very close connections to the banking industry.

I'll find the link to prove this later as I have to go, ds is screaming over a puzzle he cant complete and is about to go into meltdown mode if I dont act quick enough.

Dawndonna · 14/01/2012 20:29

We had to buy Dd2s wheelchair. The NHS one was a guess as to her size and weight, it was too big and as they don't measure anymore, they give you one according to age. It was useless, she couldn't push herself anywhere because she couldn't reach the wheels! This is apparently standard practice now.

LadySybilDeChocolate · 14/01/2012 20:30

Smile Best of luck with the puzzle.

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LadySybilDeChocolate · 14/01/2012 20:32

My mother's waiting for a hip replacement Dawn and she had to buy her own wheelchair. It's rediculous. The only reason she needs a new hip is because the hospital sent her home with an infection induced dementia, she fell over and shattered her femur. The state of the NHS is another thread though. Wink

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Whatmeworry · 14/01/2012 20:35

The country is broke. Everybody is fighting to preserve their crusts from cutting. Sad, but there it is.

Dawndonna · 14/01/2012 20:36

Ouch, LadySybil, not funny. Hope things improve for her. And yep, it's crazy that the basics (wheelchairs for mobility) are being ignored.

TheHumancatapult · 14/01/2012 20:37

yep ladysib tahts exactly the case no longer any different to anyone elseHmm
now if they could arrange that i would be happy ,but since they can not repair spinal cords that really is not the case

so at that point i should just be able to get up and down all those pesky tube steps and straight into the house of commons to throw Eggs at DC Wink

LadySybilDeChocolate · 14/01/2012 20:39

Very true Whatmeworry. Sad

No, not funny at all. I was being diagnosed with MS at the time of her 'accident' so it was hell. She's been on the waiting list for almost 2 years. Hmm You'd think they would want to do it quickly considering it was their fault.

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perceptionreality · 14/01/2012 20:40

People who use a wheel chair are going to have their mobility stopped because they can get around?? What the actual fuck????!!

This government is twisted. I am scared to read about it all because this is not a government who listens. When people protest, they dig their heels in more and regard the protests with utter contempt.

I heard someone on the radio the other morning saying 'There are people sitting in the House of Lords with winter fuel allowance and free travel and the government are saying they need to take money from disabled people'.

LadySybilDeChocolate · 14/01/2012 20:42

It's all crap catapult. Then they talk about reducing benefits for disabled people. It's like some sort of sick joke.

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TheHumancatapult · 14/01/2012 20:43

yep perception and its 50 metres on the flat then means were the same as everyone else Hmm

forgetting even 50 m on the flat means i need to do those 50 metres home and then have to then still have enough stregth to switch chair to sofa ( to advoid pressure sores or wheel and make a drink with tired arms . and i ruin my shoulders then what do they expect me to do .

Arms were not designed to be used day in day out as legs

LadySybilDeChocolate · 14/01/2012 20:44

That's it perception! They started off with such promise. We all knew Labour had overspent in a huge way but this really is like some sort of sick joke. There's not a scrap of common sense between them all.

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topknob · 14/01/2012 20:45

I am lucky, one of my ds's has various disabilities, and receives low rate mobility and high rate care via DLA so we get the extra tax credits..however we (dh and I) have decided we have no choice other than for him to look for more work (self employed) and for me to try and start up my own business of wedding flowers. I am classed as ds's carer but tbh he is at full time school so I am rarely needed unless for paed appts etc so being self employed would work well for us :)

perceptionreality · 14/01/2012 20:45

Like MT before them (as I said on another thread). Unprincipled. Totally unprincipled.

perceptionreality · 14/01/2012 20:47

'not a scrap of common sense between them all.'

Too right :(

LadySybilDeChocolate · 14/01/2012 20:48

Self employment is good. I don't earn a lot though as writing isn't paying well at the moment. I rely on the tax credits and even these are up in the air. According to another thread they want people to earn 17k by any means necessary, a second job if they have to, or they will face a reduction in their tax credits.

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TheHumancatapult · 14/01/2012 20:50

i lose my mobility i am going to kick up such a stink .Pictures ,reports every time i can not get into a building or round the whole lot , turned away from train stations as they are not accessibile and will go for as many high profile building as i possibilly can

see if im same as everyone else i should be able use any door or parliment buildings not

the Parliament Buildings are wheelchair accessible from the east-side. Please speak with a Security Officer or Tour Guide for access to the entrance for people in wheelchairs

TheHumancatapult · 14/01/2012 20:53

and this should no longer apply either on the tube

Full details can be found in the Step-free Tube guide. Access to most other stations is by escalator, but some stations can only be accessed using stairs. Details of stations that can be accessed by escalators can be found in the Avoiding stairs Tube guide (PDF 770KB).

0r some areas of the Abbey are unavoidably inaccessible to people permanently confined to wheelchairs.

no more just one wheelchair per bus as hey were the same mobility wise now

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