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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

See all MNHQ comments on this thread

to think that disability affects you all?

346 replies

LadySybilDeChocolate · 14/01/2012 17:07

www.mumsnet.com/Talk/am_i_being_unreasonable/a1380515-AIBU-about-the-government-lying-about-DLA#29486359 I'm talking about this thread. Your support is needed. Disability is an ongoing issue and the disabled are being bastardised at the moment. Children are having vital benefits cut, as are those who really need them. We all know someone who's disabled. By burying your head in the sand you're ignoring the needs of your relatives, your friends or your children.

I know plenty of people who have a disability. They range from my lovely nephew who is autistic to my mother who has Osteoperosis and heart failure. These cuts would affect my family. What about yours?

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Dawndonna · 14/01/2012 18:02

A few years ago dh was a lecturer. He got a minor infection. It was treated with an antibiotic. The antibiotic concerned caused severe tendonitis and peripheral neuropathy. Dh cannot walk, sit, stand. The damage is permanent.

molepom · 14/01/2012 18:05

link

A quick link to the petition to get the Goverment to actually think about these cuts and what they will mean before they go head with it. It's only asking for a pause not a complete stop so it's not asking much.

ValarMorghulis · 14/01/2012 18:08

is there a bullet point list of the proposed reforms anywhere.
I want to find something that i can show them but if it is too lengthy they will zone out and think me on my soap box again

Rollersara · 14/01/2012 18:24

I recognise that I'm particularly lucky here, my disabilities are physically obvious, so claiming DLA was relatively easy. I was in my twenties when I developed a neurological condition which affects my walking, writing and speech. The condition is lifelong and there is no known cause or cure.

Having DLA has enabled me to make my own adjustments that allows me to live almost independantly. As a result employing me has very little financial cost to my employer, so I have a good job and a good wage and pay more in tax than I receive in benefits.

In my case, had I not received DLA, I would not be in the job I am now, possibly not in work at all. If I did, my employer would have had to pay more to make adjustments to the workplace. If not I would not be paying taxes and would be have cost the tax payer more in other benefits than DLA. Even ignoring the impact on my physical and mental health, this does not make financial sense.

Now I could live without DLA as I could afford the assistive technologies I use out of my salary, but I fear for those who come after me. And as I said, I am one of the luckier ones...

CFSKate · 14/01/2012 18:25

Please sign the petition
epetitions.direct.gov.uk/petitions/20968

The people who wrote the report are disabled. As a result of the effort of writing the report their conditions have been made worse and I read yesterday some of them have been hospitalised.

That's how desperate we are. If we don't fight, we, the most vulnerable, are abused. So we choose to fight, knowing that we will pay a terrible price and sacrifice what little health we have. That's the position we are in , that's the choice we face.

CamberwickGreen · 14/01/2012 18:29

i think the govt really do need to crack down on the benefits and entitlements that people seem to see as their "due"

a lot of money is wasted in lots of areas. They all need reviewing and sorting out

TheHumancatapult · 14/01/2012 18:30

i Posted earlier but will repeat .

Under Pip as i can self propel 50 m I will lose my mobility ,thats 50 m on the perffect flat .Like everyday life is flat and smppth and proper dropped kerbs everywhere

Yet we then have nhs supply wheelchairs that are adequade , to propel indoor not that you cna go outside and do but long as you can mange indoors thats enough .So were no longer allowed a life .

chances ar epeople you see out in wheelchairs have infact paid for them from theri dla to have some indeoendence

Now bearing in mind if I want to travl on a train it requires minimum of 24 hrs notice and that also on a train that it may or may not have one wheelchair space .
Also if i miss that train for any reason ., late bus, bad trafic last minute phonecall then they do not have to get the ramp out as may not have teh staff

Also lets remember not very station is infact accesibile .Then we talk buses that not all have ramps and ones that do may not infact work

So a fair amount do drive adapted cars mobility/Dla is sued for these adaptions but under Pip wheelchair users will lose their cars

.Work then we need to look is their access into the building lets be honest not all buildings are accessibile , then i need a lower desk becuase of my height in a chair .

I also need a fully adapted bathroom and dont mean lip service i mean a full sizxe one without stuff in it .and a bench to help with changing ctaherters

then mah e sure corridoors are big enough , can i get into the file cabinet

TheHumancatapult · 14/01/2012 18:33

like molepm it will cost them more to employ me so course they ar enot going to consider when they have other options taht same qualifcations

that is without the appoinments i need and the fact that i am a carer to so i need specialised childcare for ds3 and flexibilty for his appoinments .hydro weekly so tahts whole day gone as he can not get transport and whats the point learning to drive because adapted car not goin g to be available

TheHumancatapult · 14/01/2012 18:35

camberwick

seen as my due , no seen as key to my independence yes .I cna not go buy a car for £1000 i need hand controls.A wheelchair light enough that i cna lift into the car from sitting in the driver seat and slide over my body . then do in reverse to get out the car

but nhs dont provide becuase hey it does not matter that we want to leave our house , guess least that way i will not offend those with senstive natures

ValarMorghulis · 14/01/2012 18:36

errm, yes camberwick there is a certain level of entitlement amongst SOME benefit claimants.

but im not entirely sure what that has to do with this discussion

Bakelitebelle · 14/01/2012 18:36

"i think the govt really do need to crack down on the benefits and entitlements that people seem to see as their "due"

a lot of money is wasted in lots of areas. They all need reviewing and sorting out"

Camberwick in the light of the many posts from people with experience of disability, explaining in detail how damaging disability benefit cuts will be, why just deposit an opinion without backing it up in any way?

molepom · 14/01/2012 18:37

Just to make things clear, I'm not the one in a wheelchair, I'm caring for my son.

My argument was based on the fact that employers will not pay for adaptions to the workplace for wheelchair users if there are other candidates available for the job who do not needs these adaption making for them, even training someone up is cheaper to most businesses.

TheHumancatapult · 14/01/2012 18:38

camberwick

be a darling go find me a secondhand car under £1000 with hand controls oh and a wheelchair for £200 that i can go outside in and lift to get in the car

thats reality

molepom · 14/01/2012 18:39

Sorry Humancatapult, I competly mis read your post there. (see what lack of sleep does?) please disregard my last post.

TheHumancatapult · 14/01/2012 18:39

molepom your right though truth is my application will not even get past the first cut becuase they will just see the costs and the paperwork

Pekka · 14/01/2012 18:42

I have signed the "every disabled child counts" petition. It was directed at the DLA cuts. I am 31 weeks pregnant and I would like to think my child will be supported no matter what his condition is! I don't know anyone claiming DLA, but like so many have said, disability could affect anyone.

molepom · 14/01/2012 18:42

Yes, the same for me too with exactly the same situations as yourself. They are all interested in me right until the interview stage when I have to let them know about my son and what I need to do for him. You can see it in their faces, the write off, before you have even finished speaking and then out comes the standard responses.

TheHumancatapult · 14/01/2012 18:42

oh and yes i was affected as d3 is disabled but i never thought I would be in the postion of being disabled myself needing a heelchair

. my life changed over night it can happen to anyone

molepom · 14/01/2012 18:43

Thank you Pekka.

ouryve · 14/01/2012 18:51

Yes, Camberwickgreen, making sure that disabled people and their families are able to have some sort of quality of life and live independently without more help from (expensive) outside agencies than is necessary is a real waste of taxpayers' money.

What would your proposals be?

Notthefullshilling · 14/01/2012 18:54

I have keept my silence on this thread as I do not want to dominate threads about disability or activism, but if I may promote another source of information and support I would suggest that Black Triangle are one of the most clued up and accessible places for information.

On another point I would say to Camberwick, that you need to justify that point of view as this whole thread and others have provided over and over the proof that nails what you say stone dead. Those who still hold your views are either politicly motivated or just plain bigoted. To others on this thread I would say that talk of jobs and working, independent income, rights, etc are at odds with the most fundamental problem that we have which is the lack of respect and dignity afforded to people with disabilities. It is interesting that this sight promotes feminism but not disability rights. In many ways both are the same with the same oppression and the same basic cause, the main difference is that denying disabled people are still not expected to be independent, happy, and able to control their own lives, just like women many years ago.

www.facebook.com/blacktriangle11

molepom · 14/01/2012 19:01

Signed NTFS x Jesus, not only cutting off income they are stopping all the programes to get the disabled who want to work, in work! It's beggars belief.

LadySybilDeChocolate · 14/01/2012 19:02

I doubt my sister expected to have an autistic child, as lovely as he is. You really can't have a conversation with him about anything he's not interested in because he just ignores you and will go into his own world. He had a 30 minute conversation with himself about door numbers last week. He's going to struggle in the world when he gets older. It's not 'entitlement'. No one's speaking about families who have lots of children so that they can get more working tax credit or those who don't work because it's easier for them to claim benefits. There's a huge difference between those who won't work and those who can't.

DLA is awarded whether someone works or not. The mobility element helps people get to work because their medical condition means they would struggle otherwise. I use my DLA (£17.10 or something a week) for a taxi so that I can get ds to school on time as I'm too knackered to walk. I wasn't deemed sick enough for the mobility element of the DLA. I don't see this as an entitlement at all. I still work and pay NI contributions/Tax.

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LadySybilDeChocolate · 14/01/2012 19:06

notthefullshilling As women are still the main carers of disabled children I'd say that the government are being discriminatory towards women. I'd be interested in what the Human Rights Commission thinks about all of this.

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LadySybilDeChocolate · 14/01/2012 19:08

Oh shit, sorry. We live in an age where women protest about breast implants, not about this. I forgot what year it was for a minute there. Hmm

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