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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

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to think that disability affects you all?

346 replies

LadySybilDeChocolate · 14/01/2012 17:07

www.mumsnet.com/Talk/am_i_being_unreasonable/a1380515-AIBU-about-the-government-lying-about-DLA#29486359 I'm talking about this thread. Your support is needed. Disability is an ongoing issue and the disabled are being bastardised at the moment. Children are having vital benefits cut, as are those who really need them. We all know someone who's disabled. By burying your head in the sand you're ignoring the needs of your relatives, your friends or your children.

I know plenty of people who have a disability. They range from my lovely nephew who is autistic to my mother who has Osteoperosis and heart failure. These cuts would affect my family. What about yours?

OP posts:
Sevenfold · 14/01/2012 22:07

Whatmeworry Sat 14-Jan-12 20:35:16
The country is broke. Everybody is fighting to preserve their crusts from cutting. Sad, but there it is.

wrong if we were broke they wouldn't be looking at cb cuts for people ove 40 grand again, or spending billions on high speed trains.
but hey who cares about disabled people

molepom · 14/01/2012 22:09

DLA and ESA appeals can now be cancelled without your permission or evidence that you no longer wish to carry on with it. You have to find out and get back in contact within a really tight timeframe before it's thrown out completly. Fair? I dont think so either.

link to what I just said

perceptionreality · 14/01/2012 22:12

Yeah, this whole no money thing is propaganda - it's been going on for years. There is money, for all kinds of things - but the government doesn't want to spend it on disabled people.

When I was trying to get my daughter statemented about 7 years ago I was told all this crap about how SEN services are oh so underfunded and there is no money to spend etc. Then one day a couple of years later when I was talking to the finance officer about an invoice that the LEA were being difficult about paying she admitted 'Actually I don't know why they are querying this when it's obviously correct, I am well within my budget'.

molepom · 14/01/2012 22:12

and we still don't get any goats Wink

TheHumancatapult · 14/01/2012 22:13

Yep those billions on trains for what saving 30 mins try

How about making it so that all stations are accessibile first . That disabled people are not restricted to set times , not fighting over the one disabled space on a train .

Look at easy jet/Ryan air they won't let you fly if don't have a carer but even a carer in emergency not going be able to lift me so there goes that exacuse

molepom · 14/01/2012 22:14

No money for disabled but they can find £32 BILLION for a train line?

No money to help charities and save services but can bail out banks?

Shall I go on?

TheHumancatapult · 14/01/2012 22:15

Molepom

You can keep a goat I requested a Llama

molepom · 14/01/2012 22:16

Can I have your goat as well? I like goats, we used to have a nanny goat when I was a child. Daisy. She was ace and scared the cats half to death.

WinterIsComing · 14/01/2012 22:20

Is the appeal cancellation "policy now", as they say in "Schindler's List" which I have just been watching and drawing comparisons?

My friend is in the middle of an appeal for the mobility element for her child who is profoundly autistic. I might ring her and tell her that this may happen or may have already happened to their case.

molepom · 14/01/2012 22:27

I dont know winter, I am trying to find out though.

Easy to read PDF on the Responsible Reform (#spartacusreport). It shows you what the DLA is, what the plans are, and what will happen if the changes go ahead in plain english.

here

molepom · 14/01/2012 22:30

Winter, "If they wish to have it reinstated they must make a request to the tribunal service within one month of the date that the tribunal service received the letter from the DWP asking for the appeal to be withdrawn. This date will be in the letter to the claimant."

Taken from this

bochead · 14/01/2012 22:35

My sister uses her dla to pay for assistive technology to ENABLE her to work. As all tech has an inbuilt obscelence nowadays eventually she'll hit a point where she can't work anymore.

I dread seeing her in a position where all her dignity and pride from the sheer guts its taken her to overcome a lifelong disability and be a productive member of society is stolen from her. She's self-employed as coorporate land has no place for individuals like her but she does have drive and the creativity to create her own niche with what I consider the minimal support of a caring family & DLA.

DLA for her is a lifeline to self-respect, and has more value towards the very type of society the conservatives "claim" they want as it is independent of earnings. It's designed to cover the additional costs her disability incurs in day to day living.

For my son, if these changes go through I'm scared he faces a bleak future as DLA has so far covered the costs of all sorts of things from therapies the NHS can't/won't provide, to home educational costs while we waited for the state sector to kick in. The independent future my sister clawed her way to may no longer be possible for him and I won't be here forever. (They have VERY different disabilities but the principles of human dignity and aiming for self-suffienc whereever possible remain the same).

Glitterknickaz · 14/01/2012 22:58

There is money for nuking Tripoli.
There is money to throw at the Olympics and the Jubilee.
There is money to throw at high speed rail links.

Yet no money for people with disabilities?

ValarMorghulis · 14/01/2012 22:59

Whatmeworry Sat 14-Jan-12 20:35:16

The country is broke. Everybody is fighting to preserve their crusts from cutting. Sad, but there it is.

Yes we are indeed broke.
However the money spent on DLA is dwarfed by the money owed in unpaid tax.

It is dwarfed even further by the amount of legally avoided tax.

but do the government decide to alter the tax laws so that rich multi national corporations and millionaires pay more into the country that gave the their money? no of course not, They decide to take money away from the poorest in society.

makes total sense doesn't it,

WinterIsComing · 14/01/2012 23:08

That's useful, thanks. The trouble is, my friends are very innocent and not pro-active. They didn't write their child's DLA care form and just think that because he has a dx then it will be awarded. It never worked that way to begin with as it is not dx-dependant but about needs. Sounds like it won't even do that in the future.

Sevenfold · 14/01/2012 23:18

sadly we have no one in government that actually understands why DLA is so important.
they have made disabled people sound like scroungers, they use disability as an insult.
we don't stand a chance

Pendeen · 14/01/2012 23:38

YABU

I sympathise with your POV as regards support for the disabled.

I would support your campaign.

But, it does not affect us all.

Glitterknickaz · 14/01/2012 23:42

It would if you were hit by a bus tomorrow.

bochead · 14/01/2012 23:45

There's also been a very negative media propoganda campaign worthy of any historical dictator since this gov got into office and an almost total blackout of factual information on what disability really means to ordinary individual lives.

For instance VERY few people I have spoken to IRL realise that DLA is a benefit claimable whether or not a claimant is in work. In many cases it funds the physiotherapy etc needed for a claimant to remain in work.

Few people understand ESA and how it differs from DLA, or that ATOS is costing a fortune in tribunal appeals, and is banned in several US states, so shoddy is their practice.

Gerald Celante is quoted as saying "when people have nothing to lose, they lose it!". Sadly I see a sharp increase in suicides/ abandonment/abuse etc as the disabled and their carers (£55 a week for 24/7 duties and no pension) are pushed to the limits over the coming years. The costs to society and the state will be far higher than perhaps we can yet envisage, especially as all of us are but one illness or acident away from disability.

In the years I paid tax at 40% I never remember minding it being spent on societies most vulnerable. I think the government may find that more people than they expect feel a similar way when the true human cost of their current policies become more apparent to the "average, decent working joe". We have an unspoken agreement in this country - in return for high taxes, we expect to retain a basic standard of living and dignity should we fall ill. Once that compact is understood to have been broken, it will be interesting to se how the general public reacts.

Sevenfold · 14/01/2012 23:53

Pendeen that is the point it does.
unless you have a crystal ball.

child 1 meningitis.......now severely disabled
child 2 pond......now severely disabled.
child 3 stroke ......now severely disabled
child 1- 1000000(and on and on) cock ups at birth by NHS,,,,,, now severely disabled.

get it??

it can affect anyone it will affect you in some way.
if you have parents, they might become disabled.
you might, anyone can at any time.
FFS it is simple

Sevenfold · 14/01/2012 23:54

oh and those are children I know in rl

Pendeen · 14/01/2012 23:57

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Sevenfold · 14/01/2012 23:58

not yet, that is the point.
but it will do at sometime, then you will wish you gave a fuck

WinterIsComing · 14/01/2012 23:58

"it does not affect us all"

I was going to mention the crystal ball too and was going to put a grin emoticon when I read the rest of your post Sevenfold. So sad.

I will refer to my earlier post of liking the phrase, "not-yet disabled" which applies to EVERYONE you know. Yourself, your children and your parents.

ValarMorghulis · 14/01/2012 23:59

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