to think that disability affects you all?

[LadySybilDeChocolate]

www.mumsnet.com/Talk/am_i_being_unreasonable/a1380515-AIBU-about-the-government-lying-about-DLA#29486359 I'm talking about this thread. Your support is needed. Disability is an ongoing issue and the disabled are being bastardised at the moment. Children are having vital benefits cut, as are those who really need them. We all know someone who's disabled. By burying your head in the sand you're ignoring the needs of your relatives, your friends or your children.

I know plenty of people who have a disability. They range from my lovely nephew who is autistic to my mother who has Osteoperosis and heart failure. These cuts would affect my family. What about yours?

I have lots of friend in my special interest group, we are a worthy cause don't you know.

Calling people with disabilities a 'special interest group' simply perpetuates the general vitriol currently going round that we should be 'thankful' for any help given and shouldn't be so 'entitled'.

Not sure how asking for enough help to keep existing is being entitled, but there you go.

What makes me sad about these threads is it that is mainly the same posters. Even multiple efforts of getting this message out there results in very few people educating themselves about what is really going on. Because they don't see it as effecting them.

NettleTea: CF is horrible. I have non cf bronchiectasis so spend a lot of time in a CF environment and see the CF specialists etc and take the same IV drugs - just finished a course (they are so harsh) so have every sympathy with what you're saying about the whole tick box on a certain day thing. This is why DLA worked better for me than PiP would - I could explain how I was over a period of time, ticking the more rigid boxes for a bad week and explaining I was doing so, and include all the reports needed. I am so very afraid that PiP will be uninterested in what my consultant, physios etc have to say and will look at me on a good day and say 'go away'. And the lifeline will be removed.

I think this is going to be the case for many, many people. And I am terrified for them. Why is this message not getting more widespread? Why don't people give more of a damn? :(

People think that this will never happen to them madhairday. That's why I started this thread. People don't realise how quickly their lives, and the lives of those they love, can change.

Whatmeworry, I'm sorry that I responded to your post with sarcasm - maybe you could give some examples of other 'special interest groups' or 'worthy causes'.

and

I have been following this tread with great interest, my son (10 yrs) has a physical disability, which will only get worse the older he gets. A long story short, he has been in receipt of DLA for the last 6 years. The doctors told me to apply. I work and until then had never claimed a benefit in my life, so I never even knew there was "help" for disabled children or adults. It has been a life line to my son.

Last April, at renewal his reward was refused. This has then lead to months of stress and heartache. Having to constantly justify his condition, it's sole destroying and humiliating to repeat again and again, that NO he can't wipe his on bottom etc.! The case resulted in a tribunal which was hideous , I was cross examined , made out to be a lier and ended up in floods of tears unable to speak. It was refused again, dis-regarding all the medical evidence stating that he can't walk, look after himself etc.. The grounds he does not meet the criteria.

This benefit is life line to my sons life, how ever I just don't have the fight in me to fight any more. He has just been diagnosed with SN at schools as well so it feels never ending right now.

whatmeworry I think you need to explain what you mean a bit better. What would a 'killer argument' be? That cutting DLA will drive some people to an early grave? I have no doubt that will happen, particularly when it is alongside privatisation of the NHS.

Oh fraggle Have you been to see anyone for help? The CAB? Your local MP?

CAB, MP, wrote a letter to PM . Seeing a community legal advisor on Friday.

Just don't know if I have the emotional strength, to go through it all again, but I suppose that's what they are hoping for. How many other cases will give up, that must help cut their budget!!! :-(

Just filling in the form puts people off. The Children's Legal centre is really good. I've recommended them a few times on here. www.childrenslegalcentre.com If you get no joy with the legal advisor then maybe you could try here??

My son suffers from hypermobility syndrome, meaning his ligaments are loose. He can't walk more then a few metres without being in pain. They turned him down for DLA because he can actually walk I did appeal but it didn't help. He can't fasten/unfasten buttons as it's too painful and doesn't have the dexterity to cut up his own food. so I have to help him a lot. I didn't have the emotional stregnth to carry on.

www.bbc.co.uk/news/uk-politics-16573348 Have you seen this? Slow progress, bit it's progress.

Thank you Lady, I will try them.

So sorry about your son, my son too can't walk far without pain, falls over A LOT etc.. The advise was "get a walking stick!" Same with regards buttons, etc and can't use a knife and fork. I also inject his meds every night, but this apparently does not mean he needs "more care than a child of his age".

Are you going to apply again?

.

Ds falls also so needs someone with him when he's outside. He's fallen into the road more then a few times so it's just not safe. I told the woman from the DWP this, she didn't care. All she wanted to know was is he able to find a different way to the local shop if the road is blocked? I kept telling her this wouldn't happen as he can't go out alone. He has an appointment with a paediatrician next week as the school have flagged up some problems (ASD possibly). I'll fill a new form in. He's 12, he shouldn't need to hold his mum's hand when crossing the road incase he falls over.

Telling your child to use a walking stick means he's not like other children his age. I think they are all stupid to be honest.

Oh Lady, it's just hopeless isn't!! My son also needs help out doors, can't cross the road by him self, cars can't see him and he can't see them (standing height), the DLA just said find a route to school that means he doesn't have to cross a road. WTF -sorry but just makes me sooo mad.
They are all stupid. Would love them to come and live a week in my shoes, then maybe they wouldn't be so full of bright idea. lol

Good luck with your paediatrician next week. Let me know how you get on.

What's he supposed to do? Fly to school? With the new rules even if he was in a wheelchair he wouldn't be eligible for mobility as he could technically get around. It's more then stupid.

Thank you. I think he's dyspraxic rather then ASD; clumsy and needs help with social skills. I'll have to see how it goes.

Saw paediatrician this afternoon and once again he tried to discharge my daughter from his services. He said he might not be there in a year's time, wants to leave before retirement whatever that means...

"Your daughter's not physically disabled" were his words. Possibly, but she can't do half the things her sister could do at her age. She has a diagnosis, facial features, developmental delay and learning disabilities. I said I'd prefer he kept an eye on her because the GPs service is shocking where we live and they wouldn't understand the complexities of her needs as well as a quaIlified paediatrician would.

I wish I knew why he is leaving.

my family

He's not helpful. Learning difficulties and developmental delays are just as debilitating as physical disabilities, he should know that. I imagine they are deserting a sinking ship

Your family is lovely Glitter I'm doing my best to promote this for families like yours. The government are being very unfair and I think they should be ashamed.

Oh God, The debate in the House of Lords is tonight. I feel sick and didnt sleep well last night through nightmares and worrying.

Quite a lot of coverage on the beeb this morning, television and radio 4, although Millar is still spouting her usual, trite, nonsense.

after seeing it on the BBC can anyone pretend they don't understand now, the man didn't use long words, just povety

Here's that petition link again

epetitions.direct.gov.uk/petitions/20968

updates here diaryofabenefitscrounger.blogspot.com/

twitter #spartacusreport

The Guardian article www.guardian.co.uk/commentisfree/2012/jan/16/welfare-reform-terrified-families-worst points out

"Different aspects of the welfare reform bill often mean the same family is hit over and over."

get me, I'm a 'worthy cause'. Awww bless.