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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

See all MNHQ comments on this thread

Original poster

to think that disability affects you all?

346 replies

LadySybilDeChocolate · 14/01/2012 17:07

www.mumsnet.com/Talk/am_i_being_unreasonable/a1380515-AIBU-about-the-government-lying-about-DLA#29486359 I'm talking about this thread. Your support is needed. Disability is an ongoing issue and the disabled are being bastardised at the moment. Children are having vital benefits cut, as are those who really need them. We all know someone who's disabled. By burying your head in the sand you're ignoring the needs of your relatives, your friends or your children.

I know plenty of people who have a disability. They range from my lovely nephew who is autistic to my mother who has Osteoperosis and heart failure. These cuts would affect my family. What about yours?

OP posts:
Glitterknickaz · 15/01/2012 16:42

has someone drugged Paul Dacre's tea?

But seriously.... that's the second article in the Daily Mail this week damning the Government. When the Daily Mail say it's wrong, when Boris Johnson & John Prescott agree on something and that is that these reforms are wrong then something really is awry.

molepom · 15/01/2012 16:48

It's the third one Glitter! not the second.

TheHumancatapult · 15/01/2012 16:50

Yep I been considering using my mobility DlA to get a power chair when this one dies a death

Wcs said in ideal world I need access to both to allow me to be independent but because I can propel indoors that means I do not meet critera for a powerchair , the nHs chair can not proPel outside as to heavy plus my shoulders are pretty shot already

But hey ho I dOnt need to go outside qpparetley

But under pip I lose the DLa because can propel short distance ( can't do anything after though ) so I can not afford to trade in for a powerchair plus they only awarding one year at time now foradult claimemts because of Pip

Glitterknickaz · 15/01/2012 16:52

oo.... missed one then...

spenditwisely · 15/01/2012 16:56

The government are full of shite. There is no rhyme, reason or argument, no ideology or principle behind what they are doing. They are overhauling both the NHS and our benefit system simply because they have a vague notion that they want to show the public that they are in control.

I went along with the issues around disabled childrens support in schools in the name of inclusion, I supported that as there is a principle behind it. But the PIP (I've done some research now) is just another name for DLA and will save a bit of money because it won't be a permanent assessment. But the NHS reforms are also unprincipled and won't save the taxpayer money, just puts money into the private sector.

molepom · 15/01/2012 16:59

It's madness, MADNESS I TELLS YA!

TheHumancatapult · 15/01/2012 17:06

Spenditeisely

FFs it's not the same I do find that when reading it helps to read the whole thing not just cherry pick read what you agree with

You tell me that because I can propel 50 m in a wheelchair I'm as mobile as you . That I can suddenly do everything able body person can , steps get on a bus , get on a train get in buildings

Because under Pip that's exactly what will happen

TheHumancatapult · 15/01/2012 17:08

Oh and reassement I'm never going to change my condition but hey ho won't matter as I'm not longer going to bd able to leave my house Angry

Try living Ib my world for 24 hrs and tell me it's no different to your normal life

TheHumancatapult · 15/01/2012 17:17

Mnhq

You often let threads stand about sn/disables that you won't about things ( racism/ religion etc because apparently it's educational someone may learn

Well on this thread yes the majority are supportive and yup sone willing to learn but for crying out loud this thread also shows those to blinkers of to stupid or just dint give a shit to ever learn

Original poster
LadySybilDeChocolate · 15/01/2012 17:30

Hi Smile
I've spent the day watching as my two friends clear my garden for me. It was humiliating. I've tried to help but I'm knackered. I'm so pleased that you're all posting. For those who think that this doesn't affect you, you do know you stand a very high chance of getting something which disables you in the years to come don't you? Heart failure, arthritis, cancer to name a few. I do hope that you're not diagnosed with any of these but to stick your head in the sand is incredibly ignorant.

OP posts:
ValarMorghulis · 15/01/2012 17:52

But the PIP (I've done some research now) is just another name for DLA and will save a bit of money because it won't be a permanent assessment.

Not that much research then. DLA isn't a permanent assessment either

spenditwisely · 15/01/2012 17:53

Catapult I have been reading up about the benefit changes and forgive me but it is very confusing and I'm not sure anyone understands it least of all the government. When I say DLA is the same as PIP I mean it's as bad as. As I said it is absurd to have tests for people based on what they can and can't do. Needs should be met when they are needed. One person with no mobility can have zero access, where another person will have every opportunity. Needs should be addressed on an individual level, not a flat payment if you fit into the correct slot.

My db was told to go to an assessment centre to test his mobility in order to get a taxicard. He was dying of cancer and was in too much pain to attend - I called them and they told me he shouldn't get a taxicard if he can't get into a taxi. It's all so wrong. He was on DLA most of his adult life.

Yet my dd gets middle rate DLA despite having relatively few disabilities. In her case it's just a pity payment - it doesn't actually make her life better. And I get carers allowance which will never ever make up for the fact that it is unlikely that I will ever hold down a proper job again because of dd's appointments etc. DD needs opportunity and access that money can't buy. The fact that her disabilities were caused by a dysfunctional NHS is another matter but part of the whole package of incompetent services provided for reasons that have as much integrity as a tory politician.

Dawndonna · 15/01/2012 18:06

DLA can be awarded indefinitely.

ValarMorghulis · 15/01/2012 18:07

can be, yes. But that it is not generally.

Sevenfold · 15/01/2012 18:09

dd has an indefinite, not that it will count as in a couple of years she will be an adult so god help us.
she has only just got it after years of re doing it every few years, crazy, as if brain damage at birth can be cured.

KalSkirata · 15/01/2012 18:10

dd is reassessed every 2 years. Perhaps they expect most of her brain to grow back?

Sevenfold · 15/01/2012 18:11

crazy isn't it. maybe there is a cure.....pmsl

Original poster
LadySybilDeChocolate · 15/01/2012 18:11

Mine's indefinite. I have MS though. I think it depends upon the condition as some can be 'cured'.

OP posts:
ValarMorghulis · 15/01/2012 18:13

DS gets DLA for his ASD, ADHD, LD and mobility issues. His latest award was for 3 years. Previously it was every 2 years.

maybe they were hoping he would grow out of it,

TheHumancatapult · 15/01/2012 18:14

Sorry spendBlush

But still stand Pip will take a lot of independence away from people

Dawndonna

It can be but not often ds3 got 3 years which is par as no one knows what will happen

I got 12 months , mind by time I heard only had 9 months left to run so not enough to look at a car or powerchair on mobility scheme and have been told with pip coming in will probably only be 12 months again

Not that I'm going to be cured or Grow new spinal cord but hey ho next year with PIP I'm suddenly going to acheive something that no surgeon could do . Because apparently I shall no longer be disabled Hmm

TheHumancatapult · 15/01/2012 18:15

Sybil

Mine can not be cured either .

But sorry to say that indefinte award will count for nothing as all DLa claimemts over 16 will be reassed

Glitterknickaz · 15/01/2012 18:16

Friend of mine had her ATOS assessment.
Assessor asked why she hadn't had surgery for her disability (broken spine, complications with surgery since then, not much can be done now due to precarious positioning of plating that has fractured etc). When she said nothing could be done and she had to wait for the technology to be developed to help her the guy actually SHOUTED at her.

All for mucking up his figures. He couldn't write her off disability benefits.

Original poster
LadySybilDeChocolate · 15/01/2012 18:21

That's disgusting Glitter! Shock

I know catapult. Sad

OP posts:
Sevenfold · 15/01/2012 18:22

what will happen with people who can't communicate,
so someone with severe cp who can't walk or talk and can't communicate clearly with an aid, so needs carer, do they still have this interview?

TheHumancatapult · 15/01/2012 18:27

I'm not sure Severn know there's a few on Sk that have older teens . I think they had a visit from a dr and reports so not to dissimilar to DLA mind that was for ESA and they did get the full support group

So it should be easier on Pip or that's what they are hoping

I have a link somewhere that breaks it down a fair bit more will look for it later and post for you . It is basically a tick sheet . Your Dd should be ok or better be because if she us not no one will be Sad

Think thing is no one really knows till it is passed and comes into play