to think that disability affects you all?

[LadySybilDeChocolate]

www.mumsnet.com/Talk/am_i_being_unreasonable/a1380515-AIBU-about-the-government-lying-about-DLA#29486359 I'm talking about this thread. Your support is needed. Disability is an ongoing issue and the disabled are being bastardised at the moment. Children are having vital benefits cut, as are those who really need them. We all know someone who's disabled. By burying your head in the sand you're ignoring the needs of your relatives, your friends or your children.

I know plenty of people who have a disability. They range from my lovely nephew who is autistic to my mother who has Osteoperosis and heart failure. These cuts would affect my family. What about yours?

That's a good idea topknob. Perhaps I should do some hoovering as well

Funny isn't it, that they "disapprove" of the child being present during a tribunal and aren't keen on video evidence, that they are going with this...

I'm actually quite worried about the care element of DS' DLA now that he is at school. I bet they'll argue that because he's in a special school, his needs are being met most of the time in that way. Despite the fact he's up half the night.

He's not at school all the time though Winter and you're still needed to collect him at the drop of a hat should they want you to. Also, parents of children who are at boarding school are entitled to benefits, even though they barely see them.

That's interesting Sevenfold - what kind of failures caused their disabilities? There seems to be a high level of what I call 'institutional neglect' going on within the NHS that they cover up with insurance and out of court settlements. My dd was damaged by a drug I took while pregnant, prescribed by the NHS, cleared by the MHRA, but completely toxic to the unborn child.

Birth injuries seem horrifically common, sadly.

And thanks, LSDC - I suppose it seems that way to me having been on call 24-7 for years. I forget that the relative freedom I have these days doesn't include mornings, evenings, weekends, nights, appointments during the week and school holidays.

My mother's accident was pure neglect spend. They should have checked her temperature before they sent it home. My sister collected her and said that she was wet through and very confused. It's common knowledge that infections in older people cause symptoms similar to dementia. It they had checked then she would never have had the accident.

School isn't easy for any parent Winter, it must be so much harder for a parent with a disabled child though. You're still caring for him even though he's at school.

@TheHumancatapult

Mnhq

You often let threads stand about sn/disables that you won't about things ( racism/ religion etc because apparently it's educational someone may learn

Well on this thread yes the majority are supportive and yup sone willing to learn but for crying out loud this thread also shows those to blinkers of to stupid or just dint give a shit to ever learn

Hi TheHumancatapult, please please please report anything you find breaks our Talk Guidelines. We really appreciate your help and we're currently taking a look at this thread.

Ds's brain injuries are unknown, either during development (pg) or during a very difficult birth or perhaps after..I always felt he should have been ventilated but he was given a head box, looking at his yellow book notes he had respiratory problems so who knows. One dr said the reason he may have been born so prem (8 weeks) was because my body was rejecting him as he was inperfect...

That's terrible topknob. There's no reason sometimes. It wouldn't have been because your body rejected him, that's a rediculous thing for a doctor to say.

Pendeen's comments on here are pretty KatMumsnet.

Oh dear I shouldn't have brought that up really - it's not all that relevant to this thread. But it does seem to me that having defective services means we are causing damage and disability. The NHS think they're covered by insurance but because of our adversarial legal system all that happens is that important failures in the system are swept under the carpet and more and more people suffer from the same and preventable problem.

And having a defective benefits system will increase the problems that people on benefits already have and possibly create additional health and social problems, costing the taxpayer more in the longer term, not less.

I can see exactly where you're coming from spendit. If they are using the benefits system as a way of escaping their obligations, and the benefit system no longer does this, where does it leave the patients??

LadySybilDeChocolate

You asked me for clarification of why I thought you were BU.

To begin, I want to repeat my remarks above that I do quite sympathise with your personal situation. My comments were not in relation to those at all but a response to a couple of your more general points.

1. You said ".. We all know someone who's disabled .." and of course you are quite free to assume what you like however that is not necessarily the case. I do not know anyone who suffers from a disability. To make clear - I don't consider age or age-related deteriorating health a "disability" - in this context at least as you specifically mentioned children.

1. You also made a highly political point when you said ".. the disabled are being bastardised at the moment .." which is an entirely understandable reaction because of a change in your personal circumstances. You reinforced this personal view by finishing ".. These cuts would affect my family. What about yours? .." however I have to say that any views on government policy are fair game for debate.

That is why I said YABU because you are extrapolating your personal circumstances into general statements which are not accurate. I happen to agree with (some but not all of) the government's attempts to try to restore some level of order to our shambolic public finances.

I have every sympathy for your problems but if you solicit opinions on an Internet forum then that is exactly what you will get.

It is sad that a few contibutors have lowered the debate by using insults and silly comments however I will always respond to sensible and reasoned debate and in that context I thank you for your measured response.

It's a discussion Pendeen, in no way am I attempting to offend anyone. My very first post mentioned my nephew but also my mother, who's disabilities are age related (mainly). A disability is any condition which prevents someone from living a 'normal' life. It may be cancer, arthritis, cystic fibrosis, there's thousands of conditions. It's brilliant that everyone you know is completely healthy. I am correct in saying that the disabled are being bastardised at the moment. Historically it's always been one group;single mothers, immigrants etc. 'These cuts affect my family. What about yours?' is the opening to the discussion.

I also agree that there should be some level of order, but not at the cost of the most vulnerable members of society. Tax the big companies, make sure the high earners pay the right amount of tax. I disagree with the billions being allocated for infrastructure. If there's really no money left then the vulnerable need to be the last ones to loose out.

Thing is, every special interest group is under pressure right now as thgovernment has no money. All can tell heart rending tales of woe. Question is why does this particular concern deserve to be spared vs many other worthy causes.

(Btw I agree, I have worked with disabled people and feel they need a fairer deal, but there needs to be some sort of "killer argument" that so far I just haven't been able to come up with).

disabled people are not a "special interest group" wtf

Question is why does this particular concern deserve to be spared vs many other worthy causes

What other 'worthy causes' ?

We are talking about peoples very existence. Without the current support many people will cease to function and thats not even all of it, this has such a far reaching impact.

Please give me an example of any other 'worthy cause' that you think is even level with providing essential support to people with disabilities?

What are the other 'worthy causes'? Families who earn over 40k who protest because they lose their child benefit? Women with potentially dodgy breast implants who want the NHS to replace them? Infrastructure? Olympics? High earners who dodge paying tax in the UK even though they use the facilities? Bankers who receive huge bonuses despite sending the world into a global recession? erm...

special interest group, worthy cause.

have I missed something, we are talking about disabled people , not the local dog club

oh and thank you MNHQ for deleting the wind up posts,
shame the proper contributors posts went too

Pah!

lmao at 'special interest group'.

My current hobby is spending my days arranging appointments, attending appointments and spending hours on the phone trying to sort out further appointments - such fun.

I think if you spent more time dealing with my message rather than shooting the words, you'd get a lot further and make a lot more friends.

It's self evident Whatmeworry, doesn't need explaining why disabled people deserve to be 'spared'. No one chooses to be disabled, it's thrust upon them. Surely we should be supporting society's most vulnerable people rather then making their lives more difficult?

People with disabilities are not a special interest group they are human beings. Living with disability costs more money than not living with a disability. Just to make a level playing field and to exist with dignity.

And children, in particular children with disabilities, did not cause this mess. Why should they contribute in the sacrifice for amendments, particularly when it affects their life chances and choices plus ability to become as independent from state support as possible as adults.