Just catching up with today's posts...lots of good replies...
DayShiftDoris - I like your post. I have friend who's child has autism, too, and she accepts her role. She found it hard right after the diagnosis but now it's just how it is. She runs the household while her DH works.
I think I might be better off living somewhere isolated where I don't know anyone, and wouldn't feel like I'm missing out on things all the time. Which happens a lot. And then I do resent the people who have grandparents on tap to help out, though I know I shouldn't.
I already have that one night a week volunteering, so I tend to feel guilty about any other nights out, but more if DH has to put DD to bed. If I can put her to bed and go somewhere once they are both tucked up and asleep I don't feel so bad, though I wonder if I should even be leaving them sleeping, DH could have a heart attack I guess..? Not sure about that one...
I just feel like I'm putting him out if I ask him to look after her. I know this is wrong but I can't remember any time in the last 7 years when he took the initiative of saying, "I want to do something with DD today." If he looks after it's because I've asked him to. And the older he gets the more I feel like I shouldn't ask.
still reading all the posts.... and, yes, wishing I had not posted... it's like throwing oneself to the lions... and I only ever seem to do it when I'm already feeling low, what point is that..?
"If a mother is ill, even terminally ill, she still expects to spend time with her child and be there for her" - well, yes. My niece (only age 30) has a severe health condition that means she has to sometimes spend days in bed. However, her DD knows she can always go in and see mummy. BUT when it comes to our household it is always tip-toeing around, don't disturb daddy.
Mothers do not get days off to be sick, and when my own mother eventually passes away I won't get any 'time off ' childcare, nor would I want it. But that just shows how little we have come in the culture of male vs female roles.
I want to add (there are a lot of posts) that I never ever give in to tantrums. I never have. But what I find myself doing now is avoiding situations that could lead to tantrums. Trying to find things to do that both DD and I enjoy, rather than drag her places she might not like. Avoidance seems common in friends I know with children with autism. Because it's wrong to give in to tantrums, it's best to avoid them. Not that my DD has autism but sometimes I wonder, and I guess I should face up to it if that's the case.
I saw the psychologist today but it was only a half hour meeting and it was about fussy eating. We concluded that since DD is actually eating more food than ever before, and getting enough nutrients, we shouldn't make too much fuss, but still try to introduce new foods. I only got on to the power struggles near the end of the meeting, but would like to meet this psychologist again. Food is only one aspect of a bigger picture.
more answers... DH and I don't go out much together because we don't have much money. A night out is not cheap. If I go meet friends alone I cycle, and keep costs low. Going out together usually means tickets to something, or dinner, plus transport plus paying a babysitter; even mates' rates aren't free.
Thanks for all the replies, some are good, like I said at the beginning of this long one..