STAND UP AND BE COUNTED AND STOP THE ATTACKS ON SN PARENTS

[4madboys]

ok NOT an aibu, but this is where it will be seen the most and it NEEDS awareness.

quite frankly, i along with others am appalled at the comments that are being made and left to stand, toward the SN community, they are downright offensive and quite simply appalling.

i am sure (or hope) that the majority on here do NOT agree with them but yet the SN community on mn are not being supported, whether this is because people do not know what to say, or they havent seen these posts i do not know?

BUT IT IS ABOUT TIME THAT THINGS CHANGED, so this a thread where you can stand up and be counted and say that you do not agree with the disregard, blatant trolling and offensive behaviour towards our lovely mn who have or are dealing with sn in their family.

they need this place for support, not the vile behaviour that they are getting.

so please post here and show your support and help make a change for the better.

all it takes is a smile next to your name to show you agree :)

When I was still getting DLA for myself, I was not allowed to claim CA for my dc because there was a 'conflict on their system' (i.e. 'computer says no' ). Surely I am not the ONLY Lone parent in the UK that is also caring for one (or more, in my case) child (ren) with disabilities??!!

Apparently, the DWP people I spoke to, quite high up even, claim not to have come across my situation before. . Because everyone that has a disability that ALSO has a child with disabilities ALSO has a partner, who can claim the CA. Except if you are an LP, you don't, so you can't...

I have let it go - I am in a different place now, DD is older, my epilepsy isn't as bad as it was at that point, I'm working again (for now...), and I no longer qualify for DLA, as bloody fucking bastard ATOS have changed the criteria.

Used to be 52 seizures (of any sort) a year would automatically qualify you for DLA. Now it's 104 for adult DLA.

. No more energy to fight tbh, life has to go on, and RL takes too much energy.

HC

I know a family where the carer is a disabled person and gets CA. It can happen but apparently they wanted to clamp down on famillies getting 2 X ca; eg if mum claims as carer for disabled child then dad claims as carer for disabled mum. I didn;t think anything ahd been done about it though , just a few MPs with a bee in thier bonnet

Becuase of course CA is a lifestyle income we should all lust after eh? Only get, and at this stage need, DLA for two of mine but ds4 might get there and ds2 has some minor stuff so CA for 3.5 = 0.09p an hour; worth the degree then

HC you're doing well, ignore the naysayers and hold your head high.

TBH I'm more pissed off with Cunting ATOS for changing the criteria for qualifying for DLA for epilepsy. Losing £600 a month makes it Soooo much easier for me to go out to work - the money paid for my transport, as I can't use my bus pass before 9.30am. Which is helpful when I have to catch 3 buses before then. . Which IS an extra cost due to my disability as I'd be spending less if I could run a car - and I HAVE costed it, including insurance tax MOT fuel and repairs costs! Still, my bus fares cost me more!

I'll say it one more time for good measure - Cunting ATOS

HuntyCat I too know people who claim DLA and carers.
However I have heard some rumour that this is to be stopped; after all, how can one possibly be a carer when one is disabled oneself? Not my logic trust me, know loads of people with some form of disability who care.
Have a friend also who is severely epileptic but also cares.
I'm with you on the swearing too!
Clearly we are intelligent enough not to have to use foul language but hey what the fuckity fuck else can we do when we've got fucked up fuckers like cameron and previous govts who are a bunch of tosspots not giving a shite about Britains unsung heroes and in fact making our lives harder with their misguided and discriminatory (yes I believe they are) rules and regs?
Think it was on MN that someone said he claimed it for his son when he lived, despite being a multi millionaire, and yet now is doing his damnedest to ensure no other poor fucker who really needs it gets DLA.
I am already dreading the review of eldests when he's 16 in 2013.
Last time they put him down to LRM and it took me 8 freaking months of fighting to get it overturned, all whilst doing my finals at university too!

Hunty your story is so damned typical of their incompetence and downright pissing ignorance; Bus fares, not a big deal in the 'normal' world but for you a major financial problem for which you should rightly receive recognition and financial assistance.
Grrrrrrrrr (got my angry face on now....)

Stopped? That's me screwed then!

I receive the highest rate of DLA mobility because I have Degenerative Disc Disease, Herniated Discs and Facet Joint Syndrome........ There are days when I need a carer and yet I am able to claim Carer's Allowance for DS.

What will happen when they stop that then, assuming the rumours are true? How will I pay my bills if I can't work!

Hunty - the system is utterly fucked. There are so many cooks in the kitchen, all with their own power happy idea of what's best for the disabled and their carers.....

Live a day in ours shoes. I bet they'd be bending over backwards to help if they did!

I get HRC DLA and Carer's Allowance for DS (who also gets HRC). I've never had any issues with claiming CA as a disabled lone parent. I hope that these rumours aren't true (I haven't read anything official about it and I get updates on DWP reports so I'm fairly up to date). But hopefully I will be able to come off CA in the next few years as I'm studying p/t at the moment.

Exactly Slushy - me neither so I hope it stays that way.

Hope so too

and YYY with regards to ATOS; after their atwhat tehy did to carerwatch (and got away with it here- well how dare anyone not like tem eh? wankers) they seem to just want tprove themselves tha absolute opposite of on teh side of teh genuinely needy.

Practised fraudster who can follow a lie through: get DLA, only half an hour assessment and no follow up of medic reports.

Genuine claimant with a bit of dignity / pride / some LD / etc- stuffed.

Sensible then

Maybe I should teach the ds's that a lifelong medical record of autism isn't going to get them the support to remian independent, they'd be better off faking something visible and physical.

Oops sorry no, I am too honest. A trait not very encouraged these days.

Peachy , thats awful that they shut the site in such a sneaky underhanded way .

Just goes to show that disability discrimination is widespread.

Our children have to grow up in this world , its just heartbreaking .

Mousy - they stopped mine when I didn't get my DLA renewed. So it changed at about the same time, they seem to take CA away at the same time as the child's DLA renewal. Or if you can't get it renewed - as I couldn't with DD, so not only did I lose my DLA on renewal because of ATOS, so did my DD. So obviously neither of us have disabilities anymore. . Because, of course, my epilepsy and DD's Autism vanished as soon as we failed the ATOS testing. DD failed because she is in MS and hasn't got a statement (she's on SA+, I'm in Essex, getting a statement is harder than finding Lord Lucan).

So we no longer have disabilities. . Try telling that to DD when she has a meltdown because I got up 5 minutes late and she is out of her routine, or my brain when I have a seizure...

I dn't have time to read the whole of this very long thread but just wanted to add my support to the parents of DC's with SN. Trolls are wankers and MN should deal with them properly, they're having a real impact on the sections they target.

Hunty - it's just awful, there are no words to describe how angry this sort of stuff makes me.

But a huge congratulations on your and DD's amazing recovery. Fucking ridiculous.

HC I know that you ahve so much on tour plate but you are awae the appeals tribunal success rates for ATOS are between 30 and 70% depending on the support you receive, yes?

Thank you herebe.

I appealed and failed. The new criteria are set in stone where epilepsy is concerned. One seizure a week is not enough to be classed as disabled, it needs to be two a week now.

Surely with all the stress of failing this ridiculous test you are having at least 2 a week HC??????????
If you get my drift.

That's just ridiculous HC.

Hold on, and the whole mess they create will eventually need sorting by a Government of the future. Ridiculous you have to though.

unpa1dcar3r - I wish I could claim that - but they want to see evidence of hospital trips FOR EACH ONE. Considering 90% of the time I DON'T go to hospital after a seizure - I can't even 'prove' the ones I do have. I only go to hospital now if I have injured myself in some way, like breaking my wrist / fracturing my jaw / tearing my shoulder muscle. If I haven't injured myself, and my seizure hasn't lasted more than 10 mins, then there really is no point wasting my time, or the hospital's time tbh. It's CRAP.

Hunty - they want proof? What the actual fuck? That is just shocking. Why on earth would they do that to you?

Prove you're disabled and have a poor quality of life and we'll consider paying you some money so that you can LIVE?

Things like this make me so cross.

DearPowersThatBe

Can you please explain to me why you are more than happy to award DLA/CA to some people and not others? Because actually, this is what it boils down to when you peel away the red tape and paperwork to determine who you class as disabled or not.

I await your reasoning so that we can discuss this matter further.

Love 'n' hugs,

Mouse xx

Seriously, one rule for one, one rule for another.

ATOS checked my friend's walking stick for the right sort of dust; he uses a chair mostly.
And wanted him to demo getting in and out of bed even though it causes him pain.
He has several years of army medical board records and amssive bullet wotunds.
Go figure.

I heard today from CAB that once children reach adulthood that they will be made to undetake a test to see if they are 'fit' for work. The test involves them making a cup of tea.
My youngest can make a cup of tea. Oh that's good employers will be lining up down the street to employ him!!!!

They also do this thing where the child is asked to pick up a pea; if they can they fail.

DS3 can pick up a pea. Shame he spends most of his time outside the house in a fugg and is then unreposive. I am sure employers will queue up for an autistic kid who can;t be understood, drfts off and is likely to just jump on clients for big hugs and kiss them.

DS1 can make a cup of tea but asking him to do it entials a 50 - 50 risk of him being burned- is that OK then?
he's not allowed to make a cup of tea.

Of course anyone with a false claim just won't teach their child to make that tea and to ignore the questions. It will only penalise good parents.

My friend's ds1 is 6ft autistic and agoraphobic; apparenlty that doesn;t mean he can't work, even if his 4 ft 9 mum can;t actually get him to leave the hosue.

I have missed all this. Just off to investigate. Sad that SN Guru's are leaving. They have been invalueable to me in the last 2 years.