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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

to think attitudes to disabilities in a themepark should be better...

568 replies

LunarRose · 03/09/2011 12:16

We have exit passes for DS with ASD.

AIBU that "I'm going to kick their head in" cos they're "queue jumping", was neither clever nor original (especially after the third time my DP heard it during the day)

AIBU that pushing DS out the way (in the chest with some force) because he failed to respond instantly to your demand he "get out of your way" (whist waiting at the disabled exit) was just plain unpleasant Angry (I was bending down to move him at the time)

So many more similar incidents through the day.

I normal circumstances I wouldn't want to wish my son's disability on anyone, nor the days over backache that a themepark trip entitled before we knew about exit passes (from carrying DS through Queuelines kicking and screaming) however....

We shall retreat to Chessington where we have always found people lovely!!!

OP posts:
tabulahrasa · 05/09/2011 11:20

The thing is, my DS can't read his own writing, still struggles to tie his own shoe laces, can't make friends, can't speak clearly enough that most strangers can understand him - but he's high functioning so on top of all that, he is acutely aware of his differences.

He's never been on a residential school trip alone - which I have paid for anyway, I had to go with him when he got too old for that and drive him an hour and a half daily to drop him off and pick him up for one so that he could take part. Not just because of his difficulties, but because his fellow pupils can't be considerate enough to allow him to share a room.

He's never managed to take part in an out of school activity, we tried football, the other children couldn't cope with him getting upset when something went wrong, we tried martial arts but he asked to be taken out when other children noticed his co-ordination difficulties. We tried army cadets and had to withdraw him after they refused to allow him to leave a room with a brass band playing in it because the noise upset him. (he would have been fine outside the door and is entirely responsible enough to stay where he's told to).

At school, he is seperated from the other pupils at break and lunchtime for his own safety, he has been punched in the face at least five times, he's had his school shirt urinated on while changing for PE and for two months people hugged him every time he passed because they worked out that it made him cry. He was told by his home economics teacher that he was not allowed to pick home economics as an exam subject because even though he enjoys it and is good at it, he can't lift a full pan of water. (All dealt with btw, not ongoing issues)

He is called mongo, retard and other lovely names so often that he quite often never even tells anyone so that it can be dealt with - even better DD now gets children in the park telling her her brother is all these things.

If he gets the exam results he's expected to this year, he will with the right support go to university - but he'll more than likely have to do that from home. I think he'll live independently after that, and hopefully once his peers are not teenagers he'll make more friends, but I doubt he'll have a relationship, or children - even though he loves small children.

Like I said pages back, we've never used exit passes because he was 13 before he got his official diagnosis, by which time although he finds the queues stressful, he understands the concept of them and is perfectly willing to put up with the stress to get to go on the ride. If it was too stressful or he struggled with the concept, there's no way in the world I would deny him yet another experience just so that the person behind us was inconvienced for 5 minutes.

And for what it's worth when he does have a meltdown, he doesn't lash out or get angry, he cries, he curls up into a ball and cries - if he did that in a queue it would disrupt the people behind far more than us skipping it, because I can't move a 5 ft 11 completely adult size 15 yr old.

Whatmeworry · 05/09/2011 11:22

This is how good it can be. This is how good it could be in this country

I think it is helpful to differentiate between Not-For-Profit and For-Profit provided services though, as they do have different underlying economics.

tabulahrasa · 05/09/2011 11:23

then when he got too old for that...

and

wasn't inconvinienced...

I'm sure there's plenty more typos, but those ones affect the meaning, lol

aliceliddell · 05/09/2011 11:46

umf 'this is how good it could be in this country'
Not with this bloody government.Sad

fanjoforthemammaries7850 · 05/09/2011 11:51

My Dh's auntie has SLDs and lives in a house with her friend and they both have 24 hour support..so it does happen in this country.

fanjoforthemammaries7850 · 05/09/2011 11:53

organised through SW too, they don't pay for it.

Peachy · 05/09/2011 12:00

Gve up on the muffins, made a massive fruit cake as had some raisins soaking in tea with apricots so added goji, tin apples, spices and cake batter; have DF custard in anyhowso will make a good pud.

Subs don't bother me a lot as a food hoarder Blush and my freezer and cupboards are actually at bbursting point, so can usually get by.

A good theme park for first tiemrs is Paulton Park: really good with people with Sn

Tabulah yur ds sounds at a similar level to ds4, luckily ds3 starts cubs tomorrow- the leader is a TA who specilaises in kids with ASD and they are well up for it. He is lucky. DS1 starts St Johns cadets next week, not so up for it but he still wants to go to uni and will need a CV like everyone else to get a place.

Peachy · 05/09/2011 12:02

Fanjo it does

It's county based: next county on from us supposedly fab SSD provision less so on schools, we get good schools.

Schools are what we need most. Respite would be a nice break.

fanjoforthemammaries7850 · 05/09/2011 12:05

yes, its a postcode lottery..they are in the North of Scotland. Would seriously consider moving there when DD is an adult

tabulahrasa · 05/09/2011 12:16

I know we've been unlucky more than anything with clubs and what have you - the army cadets have a really good reputation for supporting children with ASDs, unfortunately the one we tried just didn't understand his issues. I had explained, they insisted on a letter outlining his difficulties from his doctor, but what happened was at a public event and it wasn't so much that he had a meltdown because he wasn't allowed to wait outside (they weren't actually doing anything at the time, so he wasn't needed) but that they left him, upset and ignored it to the point where members of the public removed him and got him to phone me from where I was helicopter parenting about 5 minutes walk away, lol.

I'm fairly rural, so once that had happened he didn't want to go back and I don't have any other options for him.

I know that was all a load of fairly horrible things, on the whole he's great, he gets up and happily goes to school even though he hates it and has a massively low opinion of the majority of pupils because he loves learning. He has a very small group of friends that are all in his little secluded group at school, he plays warhammer which seems to attract nice, understanding if obsessive people, lol, and the older he gets the more you can see that once he no longer has to go to school on the whole he'll manage fine...

He's bright, socially aware, kind, funny, if anything far too responsible - he's fab

tabulahrasa · 05/09/2011 12:17

socially aware as in politics and world issues btw - just to make that clear, not social skills, they're shocking, lol

Kladdkaka · 05/09/2011 12:50

It's different in Sweden though. The idea of 'self' is far less evident. It's a society built on socialism. You can feel the difference. There is a social cohesion that sadly Britain lost a long, long time ago.

DandyLioness · 05/09/2011 13:14

This reply has been deleted

Message withdrawn at poster's request.

MmeLindor. · 05/09/2011 13:18

I read part of the way through this thread earlier, and did not have anything else to add that had not already been said.

I have however noticed Spiderpig on other threads from the past few days, generally posting strong worded against-the-grain-of-the-thread comments and thought I would mention it here. I would not waste another second of your day thinking about his/her comments.

He/she seems to enjoy causing a bit of a rumpus.

DandyLioness · 05/09/2011 13:21

This reply has been deleted

Message withdrawn at poster's request.

maryellenwalton · 05/09/2011 13:28

I probably should leave it but I am still fascinated by spiderpig's complete refusal to understand the waiting issue

Hmm, what is it they say about lack of empathy again?

Mouseface · 05/09/2011 14:00

Exactly Mme. As I posted last night, spiderpig has form.

Peachy · 05/09/2011 14:24

umf I did a similar job once, albeit 4 adults in a bungalow with a mix of needs, but that was in Somerset, the cuts there are widely acknowledged to have been devastating to the disabled community and I read the thought of whwere those people are now/

They paid taxis etc but heck the money was there for it; that's the bit that matters.

I have no idea what will heppen to ds3m Ild have loved that set up for him, fat chance.

Peachy · 05/09/2011 14:27

MMe I am sure youa re rigth but sometimes I quite like having my ideas challenged a bit, makes me think about what I am trying toa chieve.

Obviously I wish such people would do one but failing that it's possible for me to get a benefit from the posts if that makes sense?

MmeLindor. · 05/09/2011 14:38

Good point, Peachy.

I guess the advantage of threads such as this (and posters such as Spiderpig) is that more people read them and gain understanding of the issues that parents of children with SN face.

I would never have imagined that you would be berated for daring to go someplace with your DC, or told you should stay home so as not to trip someone up with the wheelchair.. etc.

Kladdkaka · 05/09/2011 14:43

MmeLindor it's not just bravado on an internet forum either. I'm currently funding my law degree with compensation I was awarded after being evicted from a national tourist attraction because me being there with my walking frame spoilt the enjoyment of other visitors.

Peachy · 05/09/2011 14:45

It works in different ways though.

We have had abuse towards ds3 from someone in a wheelchair; he was wobbling when he walked (as he does) and got yelled at as he amde the person in their chair nervous- full on f word using yelled at.

One thing these posters do that I loathe is draw the lines between Sn and NT so clearly: they set us against each other. In reality it should be drawn as bigot against non bigot. Bigots can come in all shapes and sizes (and diagnoses) and likewise there are plenty in the NT world who take my general view.

Also there is plenty of education stuff between the DX's: i;ve learned laods about physical SN on here, and I remember a thread with 2shoes where my ds3 had aked why the bog girl was in a buggy referring to a young woman in her wheelchair and 2shoes ahd admitted she didn't realise that was a part of ASD and would have got angry.

I think we have to be careful not to be divided into NT and Sn because as well as being divisive it pushes Sn issues further into the 'niche' box which is harmful to all. And naive given the fact many of us will be disabled one day, perhaps in our later years, or a carer.

Peachy · 05/09/2011 14:46

Bloody hell kladd that's ridiculous!

Againagainagain · 05/09/2011 14:48

There was a child in ds2 class who has ASD (ds2 has moved school in the last year) they are 8 now and had all been together since nursery. He can't talk but all the children were taught sign language so they could communicate with him. They all understood that he had sn and found something's/situations difficult. There were some parents that weren't so understanding.

I do wonder how it will be If he goes to a main stream secondary school. Hopefully with more children with sn being in main stream school as time goes on there will be less bullying as children will have a better understanding of sn. Unfortunately people like spiderpig are probably passing on their stupid views to their own children which is probably one of the reasons children with asd are still suffering from bullying

MmeLindor. · 05/09/2011 14:55

yes, again a good point, Peachy.

We may have to go back to Germany at some point, and one of the things that I HATE about the German school system is their Sonderschule. They send children to Sonderschule for anything from behavioural difficulties, to ASD/ADHD/Aspergers, to general learning difficulties. Our nephew was in a Sonderschule and it was so wrong for him. And moving back and forth between "normal" school and Sonderschule was a problem.

Integration is important, but it only works if both sides put some effort into it.