to take out my dc who has the pox?

[sleeplessinseatle]

Obviously not to playgroups etc, but I've got a baby at home and don't think I can cope otherwise. Is there anywhere we can safely go where there won't be lots of kids/pregnant women?

MNHQ

Is there any chance that you could make an information page using the anecdotal evidence on this thread to tell people why they need to stay home?

It would give me something to link to, and would help to spread knowledge.

How about a chicken pox awareness campaign??

Any other ideas anyone??

KAQ

I agree entirely. I have to say that I only looked at this thread because of another one. I've been shocked by the exchanges here. But I've also been shocked because I wasn't in any way whatsoever aware of the issues round CP and the risks. I thought it was a mild childhood disease, not what it really can be. If something good could come out of this thread, it would be more information about this issue.

When I had cp as an adult, I was told nothing about the risks to other people or the seriousness of the need for quarantine. I did quarantine myself, though mainly that was because I felt so ill with it, and didn't want to go out all spotty.

But my work were not terribly sympathetic or supportive, and the impression I got was that they wanted me back at work ASAP - luckily my gp signed me off for a couple of weeks, iirc.

Oh - perhaps it is relevant to say that I was a nurse, working in an operating theatre - it seemed to me to be a good idea to stay away from there until all risk of infectiousness was past, but I'm not sure the theatre manager saw it that way.

Fuck it. I'm just going to report my post to mnhq so they notice it and we'll see what they say.

here goes...

Anecdote is not the same as evidence.

Not the same as NL but a type of nonetheless.

" Anecdotal evidence is not necessarily representative of a "typical" experience; statistical evidence can more accurately determine how typical something is." However!

In this situation the anecdotal evidence is compelling enough to me. Yes, everyone needs to decide for themeselves whether its safe/responsible or whatever to take their contagious children out, but it would be helpful to many people to hear what some people have been through and to learn what the risks actually are.

OK I am home from my best friends house....rather the worse for wear The only words I have picked up on are competitive sadding......I cant be arsed to go back through the thread......really cant be arsed. Dont care who said that I was competing for attention, dont care who believes me or who doesnt.......really, really cant be bothered.

I need to say that two of my four sons have died...end of....end of story....dont care if anyone thinks I am competing!

Thank you for your bravery on here SassySusan, Mrs Devere and Shabba.

I am so very sorry for your losses.
And sorry you have had to put up with ignorant arses.

I have been on other similar threads on MN about this topic, and it has always ended with SGB and the 'who cares' brigade seeming to win the argument.

I am SO glad that finally there is a sensible chickenpox thread on here.

I thank you for sharing with us.

I got CP when I was 7 months pregnant with precious firstborn.
I was very sick - hallucinating, fever...
The stupid family member who invited kids with CP to a family function and didn't think to warn me (or anyone else) actually came over and barged in to my room.
She didn't believe I was sick.

I am so lucky that PFB and I survived. I was on bedrest til the end of my pregnancy so he didn't come early - he may not have survived.

There are no words I can say to you women who have shared about your precious children.
I do believe that by sharing here, it will make a difference.

And I am now unapologetically a confront CP parents person.
They need to know the risks.
It is selfish.

My friend's darling daughter, my son's playmate, who had leukaemia died because she caught a cold.

Those who go out and about with active cold symptoms are being dangerous too.

So much of this thread made me but then I got to "competitive sadding" and now I'm just

Jesus H. Christ. ARRRRGHHHHH. Really? REALLY? COMPETITIVE SADDING??

Excuse me while I go beat my head off a brick wall.

Sassy, and everyone else that has posted on here about their loss, I'm so very very sorry. I lost my DS2 almost 4 years ago but I wont go into any details as I don't want to be accuse of engaging in any "competitive sadding." Can I say again?

Thank you to everyone that shared the dangers of CP - I knew it could be dangerous but it was in a very Other People kind of way, iykwim, but hearing people talk of it devistating their families makes the dangers a lot more real and I'll be prepared to stay in when/if my DSs catch it and I'll make sure to pass on this info too.

Jesus fucking H christ in a handcart.

Competitive Sadding?? BALD really - i would have expected better from you

IMHO i think Sassy was right to name names in her blog. Why the fuck shouldn't she? You're all more then happy to own your words on here, so what's the difference? I think those of you that are put out by it should really get a grip, quite frankly.

Do you know what i think has pissed most people off - the fact that us bereaved paresnts, have for once, bitten back. We're not hiding in the shadows anymore. We do have a voice and we will use it. And that makes you who DHAC uncomfortable, doesn't it? Because we're not in a corner sobbing uncontrollably you can't pat us on the head and tell us 'There. there' or put our words down to ranting of the madly bereaved.

TBh i think this thread is a culmination of a lot of thread and has been a bloody long time coming. I for one applaud every bereaved parent - and those that actually understand - here, and thank them for having the balls to not lie down and be troden over yet again.

oh ffs... are we back on competitive sadding???

A man falls down a hole and cant get back out. A priest walks past and the man shouts I cant get out will you help me.. priest throws down a prayer and keeps walking
A doctor walks past and again the man cries out.. the doctor throws down some bandages and walks past.
A friend comes along the man cries out - the friend jumps in beside him. The man says you idiot now we are both down here...

and the friend says.. yeah I know but I have been down here before and I know the way out.

I like to think thats the aim of the bereavment section on here .. where I never see the words competitive sadding or I know your child is dead so maybe we can excuse your behaviour etc etc etc

And yes sometimes bereavment spills onto the main board... thats life.. you cant expect us all to stay over there in case we upset someone .

By the same token I dont necessarily expect anyone outwith the bereavement section to understand or to know what to say. But I do expect them as a human being and a mother to be sympathetic and know what not to say

Very good post frasersmummy, many feel the same way about the snboard.
I can't begin to understand how a bereaved parent feels, but I am so much more informed about the dangers of CP to swathes of the population after reading the entire thread.
So I am grateful, and will do my best to spread the word as a primary teacher.
You are right of course, to the majority of parents, losing a child for whatever reason is the worst nightmare most of us could have.

Davidtennant sadly that doesn't surprise me. The NHS are terrible for recognising genuine illness and infection risk in staff. You did the right thing staying away.

I am also very pleased the bereaved parents have spoken out. It has been a great education for all of us. If people are unaware of the risks of something then hearing the worst case senario can give you the bare faced facts. Unfortunatly sassysusan cannot bring Catherine back but she can help to prevent someone - which could be anyone of us - having to suffer as she has.

Shabs, dee, loudlass, Mredevere, please do join us here more often you are as welcome as anyone and I do not think that calling it competitive saddening is respectful in the least.

goblinchild as usual many words of wisdom from you, I agree if you have a child with SN its easier to empathise with other parents with a child with sn but it shouldn't prevent others from trying. - and certaining doesn't excuse the sn top trumps attitude some take.

My DS has developed mild unknown allergies and lately I have posted there. I was worried I would get but its mild compared to my childs anyphalatic shock to x,y and z but all I've had is support. That is what MN is for support, emapthy, advice and more importantly the truth.

I do think that if there could be repercussions for avril then her name should be moved from the blog.

I thought Avril Heytch was her MN nickname? I didn't think she would be stupid enough to use her real name... would she?

Judging by her reaction I would say it is her real name or very close to it. I don't expect she anticpated being cast as Chief Demon.

If you actually take the time to read Sassy's blog, you'll see that in the end it's not actually about Averil. She's just the symptom, whereas other peoples complete fuckmuppetry is the cause.

What's it they say? Suck it up and swallow it down...

Nobody would have a chance to say anything Pixie - as that thread would disappear quicker than kettle chips at a buffet!

That's the problem for me - it's all about her and all about here but it's outside the rules that pertain to this place. It was meant to hurt.

Quote..

'Avril was one of many, but she stands out for me because she was so dumb. Personal attacks are not allowed on the forum. Insensitivy and poor taste are. How convenient. So it is only here that I can address the question is Avril Heytch a dumb-arse bitch?

The answer is no. Unfortuantely not. She is, I'm afraid, fairly average.

How fucking disappointing is that? '

I have read every word on this thread and I have posted about my own ignorance and how deeply sorry I am for the bereaved.

I have also done something instead of sitting faceless at my computer with my healthy family around me. I've linked this thread to my fb page because of the controversy in it. Rarely has anything been so powerful and I'd urge others to do the same. This thread has educated me and changed my mind. I will never knowingly expose anyone to cp.

But what it has also done has been to go off on a nasty tangent. I'm really sad at the way Avril has been singled out. It is unfair and unpleasant. I am saying that as one MNer to another. Personal circumstances, no matter how tragic, undeserved and downright unfair are not justification for what would be unacceptable behaviour on any other thread.

Let's do something positive. Let's make a difference by educating others instead of sniping at each other.