What are you up to today if you have a chronic illness Thread 8.. plodding on gently...

[MewithME]

Linky to last thread 🧵 https://www.mumsnet.com/talk/_chat/5506529-what-are-you-up-to-today-if-you-have-a-chronic-illness-thread-7

Let's be good and use those last posts up first. Nice to be tidy here if not in my house! 😉

Morning. Restless night here - sore stomach, cats coming and lying on my stomach (sure they were trying to help but ouch), people arguing in the street... think I was awake 3.30-5.30ish then dozed off again.

Back to work tomorrow so taking it easy today. I need to pop out to post something but otherwise no plans.

My neighbour opposite has one with spotlights like some flipping prison. It goes off during the day too and I think I may set it off when I get up from my desk. Really irritating. Ahhh modern life. 😊

Also my friend thought I would bow out and so we're not meeting now. My fault for not messaging earlier. I'm relieved in a way so I can rest this morning. Going to read my book in the garden.

What are you reading? @MewithME

I'm reading Sociopath by Patric Gagne. Not as heavy as it sounds. It's funny, sad, chilling and interesting so far.

https://amzn.eu/d/0ilOks07

Just catching up while listening to Eva Cassidy on Spotify. Feels nice and peaceful.

I have been watching 2 weeks in August on player with DH. Quite dark / funny / cringey. We have got quite into it and are saving the last two episodes.

It's nice it it a bit less bright /hot outside. Hoping to be able to get out a bit more this week.

I have added Sociopath to my list - looks interesting.

Woke up at 3, back to sleep about 6, woke up about 10 with half the day gone. I hate doing that, but it seems to be a regular thing. Not every day, but a lot. I asked DH to wake me at 8, but he wont as he thinks if I am asleep I must need it. Which is very lovely of him, and probably right, but still irritating. I should've set my phone alarm, but it was in the living room, and I was too tired to go and get it.

Feeling very grumpy, looked at the meat I defrosted for sunday lunch, but cant face it now. Went to the co-op and got some decent ham, so we are having ham egg and chips. I get squeamish about raw meat, but with having to have mostly low FODMAP nearly all the time, I cannot face going completely veggie either.

Ignore me, I am a grumpy old bag today, DH has retreated to the shed, and I can't say I blame him.

Hope everyone has a nice Sunday, and my mood improves, I am pissing myself off now.

@danglethedingle you're not an old bag and you're allowed to be grumpy. It will pass.

I'm retreating for a nap/lie down. I can barely stay awake.

I'm still feeling stressed underneath everything. Can't unwind properly. I do wonder if it's menopause. Fun fun....grump grump.

@JewelleryCat I love CTM, it's my go to in the background for when I'm working from home as its an easy feel good watch.

Easy weekend after being away for half term. I didn't want to overdo it this weekend with going back to work and next cycle of chemo starting up. Haven't slept all that well with the heat and I keep getting hot flashes on and off at the moment. Think I'm heading into chemical induced menopause now which has been interesting. Haven't been too bad with the heatwave overall but looking forward to sightly cooler weather.

I thought of some more comfort tv people might like 🙂

Madame Blanc Mysteries which airs on C5 and it’s just been on ITV, A Taste of Murder

Hiws everyone’s Sunday been? I’ve been off all day, mega warm so hopefully the unsettled weather next week will cool things down

I love Madame Blanc - they should make more!

Fairly quiet day - couple of ten minute walks and a bit of tidying in the garden. And a massive nap.

Mixed feelings about going back to work tomorrow but it shouldn't be too hectic. Got my first proper counselling appointment tomorrow too.

Good luck for all of it tomorrow @martha79and yes, they should make more Madame Blanc. Seems ages since the Christmas special

Good Luck @martha79

Hope it goes well @martha79

Ive got my appointment with the therapist from the Stroke team tomorrow too. I had to push for it as I was really struggling with my emotions but in typical fashion, I’ve felt calmer this last week! There are things I want to talk about though so hopefully it will help.

I've spent the day binging Tom Scott videos on YouTube, lots of super interesting places that I'd never get the chance to see otherwise.

Good luck to both @martha79 and @TodayIsatrickyone

Morning all!

Woke up with a jolt at 5am, adrenaline and disturbing dreams. I am getting PEM from last week and of course Saturday was exciting with visitors. Yesterday DH was out all day and I dozed a fair bit. In between I did a very small amount of handwashing which does use some energy I confess. DH does all the laundry but it does come out very rumpled! Some things I need to do myself so they don't need ironing (which he refuses to do as he thinks they don't need it)

I found a moth sitting on my big shawl so that's gone in the freezer. I hope we don't have a cool spell because I wear my shawl a lot. I hate moths. We've got traps everywhere and DH hoovers all the edges and under the bed, but they never really go.

I may go back to bed for a while, my heartrate has gone down a bit. Off to the osteopath later, can't wait.

Wishing everyone a peaceful day!

Well today has dawned brighter than yesterday, bigger blocks of sleep, and I am up already so that's a better start. Still in pajamas, but I'm getting there.

The thing that drove me over the edge yesterday was DH making decisions for my own good, the fact that he was right made it worse.

Honestly! life is hard enough without DHs going around being right all the time! 😁

Made a bit of a mistake by trying a soya pudding, tasted nice, but bad idea. But at least I know, and I was sensible, it was the only novel thing I ate yesterday so the bellyache must be due to that. I've got three more of them, of course they only come in packs of 4. Its vanilla, so DH might eat it as a custard I suppose.

Good luck at the bone crunchers @TeaAndStrumpets

Hope the week goes well for everyone.

Sorry about the soya @danglethedingle I got away with it for years until my body objected. It was so handy!

I always get a good crunch at the osteopath. Luckily there's a charity shop just along the pavement so I can drop off a box of clutter every time I go. Still got mountains to get rid of though....

Morning All!

Hope your first day back in work goes well @martha79💐

Hope your first appointment with the therapist is helpful to you @TodayIsatrickyone 💐

I’m not a fan of moths either @TeaAndStrumpets enjoy the osteopath!

@danglethedingle I live in my pjs as long as you’re comfortable! Not another husband being right 🫣

think I am the only person in my house that is happy with the cooler weather and little bouts of rain 😂 currently sat on the bed with the dogs a brew and listening to the birds - hope everyone has a nice restful day

@Dozymoo42 I live in pjs too. Have you heard of cyberjammies? They are expensive but very good quality so I would recommend them and their prints are nice too but they do plain colours too. I also like George by Asda pjs too and they’re more affordable. I’ve had pjs from Matalan in the past too and liked them. Material wise, I usually go for cotton but cyberjammies use modal

Morning all, hope you can enjoy a peaceful day and work is manageable for those with the dreaded Monday feeling.

Therapist has been and gone and whilst she didn’t say anything I didn’t already know really it was quite useful to chat over this anxiety of having another stroke.
She basically reminded me to practice self compassion and that it’s early days and that I’m actually making good progress physically which hopefully will in turn impact my mental health too.
She was also really positive that our upcoming cruise was actually a really good idea in terms of recuperation. I talked it over with a couple of people last week who all thought if I can literally just get there, have low expectations of what I’ll manage and focus instead on just resting, relaxing and reading on a balcony or a quiet spot it will be good for my recovery so I’m beginning to get into the headspace of I might just manage this in another 5/ 6 weeks.

So quiet rest of the day as I did get a tad emotional. Currently resting and cuddling a soppy sausage dog who missed me during my appointment!

I haven’t heard of them but I will have a look thank
you! 😊 hubby says I am PJ obsessed 🫣 o ask for them for Christmas,birthdays mothers days etc

Afternoon

Glad the therapist was helpful @TodayIsatrickyone and hooray for sausage cuddles.

Thanks for the good wishes - work has been OK once I got through the hundreds of emails (where do they all come from?).

Counselling also good if really full-on, feel like we covered a lot and I came out with a few things that surprised me. I think it's going to be helpful anyway. Got to get back to work but have saved all the repetitive admin for this afternoon.

A vote for Next PJs here - I like the 100% cotton ones with cuffed legs (because otherwise the legs always creep up and strangle my knees.

Regarding cuffed legs, I’ve found some are good but some are so tight and I don’t like that and with not being able to get to a store, you can’t check them out so you can only hope when you buy them online

@Dozymoo42its ok to be pj obsessed, so am I lol

Also pj obsessed here…. I had to extend my pj drawer and they now fill two pretty large drawers and are still quite stuffed 🫢 😂 I do need to go through them at some point when energy permits!
Another vote for Next ones here, always seem comfortable and fit me well.

Glad the counselling went well @martha79