What are you up to today if you have a chronic illness Thread 8.. plodding on gently...

[MewithME]

Linky to last thread 🧵 https://www.mumsnet.com/talk/_chat/5506529-what-are-you-up-to-today-if-you-have-a-chronic-illness-thread-7

Let's be good and use those last posts up first. Nice to be tidy here if not in my house! 😉

Hope you sleep better tonight @martha79 but glad you’re enjoying having your dad stay. Just general chit chat is tiring isn’t it but you’re doing the right thing to take breaks when you need them.

As an aside, I went to the post office again today £7.20 for 4 stamps. Absolute robbery. I was amazed

@Oioiqueen Glad all went well after pick up. good luck with the PiP form. Just take it one question at a time. I do think a charity helping you fill it out can be very useful.

@TodayIsatrickyone Well done getting that appointment. It is a shame we need to be loud to get what we need.

Got my sisters dog here this weekend so two labradors in the house. She is very active so everytime I move she's up and eager. Making pizza this evening and then a bit of TV. That's it for today.

Hope everyone is ok.

It's awful, and not a wonderful service either. I was surprised at Christmas that it costs as much to send a card to France as to Australia. I don't see the reasoning for that.

😆 just a pay uplift this time @TeaAndStrumpets - happy with that

I've managed to get back in again - don't know why Mumsnet won't let me in! @MewithME may be having the same problem 🤔

Anyway I've been to the allotment this morning and had a long nap this afternoon 😴

No plans for tomorrow but hopefully I'll be able to log in and see what everyone's up to 💕

Oh dear have you been banned? That is outrageous! Can't lose our tea lady. 😟

Just found out my favourite member of staff at a hospital where I have had several admissions has moved on, of course this is the way of things but I’m unexpectedly gutted. Doubt I’ll ever see them again 😩

Thanks for checking on me. No, not banned yet! Sorry you're having problems @Swanhilde

I've just been utterly exhausted and had a hell of a week all round. 🫩😭

I'll check in properly tomorrow.

Love to all x

Oh no that sucks. Maybe you’ll get to see them out and about?

I've just noticed our bag of rice flour expired in 2024 . It only gets used to make GF gravy and there's plenty left! I am the gravy and sauce maker in this house. DH does the everyday food but is scared of gravy because he worries about lumps. I was a kitchen skivvy from a young age, so am a dab hand with a wooden spoon!

I went through my cupboards and found something from 2019 I think it was a spice but still!

Not likely their new post is quite far away, in the next county over and obviously we can’t stay in touch due to professional boundaries

We had an awful lot of tinned tomatoes after lockdown!

@TodayIsatrickyone well done on pushing for an appointment. It can be extremely frustrating. Used to be under a fantastic GP. It was him ringing neurology that got me seen & diagnosed so quickly. You could get a same day appointment. After a problem he rang me a few days later to see how I was. Talk about personal service!
Unfortunately when we moved a few years ago we had to change to the local village practice. I rang to book a blood test for my dd & the receptionist tried to give her a phone appointment. You couldn't make it up.

Hope you all have a lovely weekend.

A telephone appointment! The mind boggles. The system seems to be set up to weed people out rather than help them.

Yes hope all goes well today @TodayIsatrickyone

Thanks @TeaAndStrumpets Its actually tomorrow as receptionist got the wrong date but that’s okay. Seems odd on a Sunday though!

@CoffeeBeansGalore That’s crazy booking a tel app for a blood test!
When I joined this practice many years ago I had a fabulous GP who sounds similar to yours. She picked up a heart murmur no one else ever had and after an infertility journey to conceive my son, she actually popped round to check on us once he was born. Not in an official capacity, just to say congratulations!
She suspected ME promptly and referred me on. After diagnosis she would always make a review appointment for me every year or two to see how things were going. I was so sad when she retired but I’m so thankful to have had her support when I most needed it. The practice joined several others in the area so it’s just big and impersonal now and I never see the same person twice.

Hope everyone can have a peaceful day today.

I'm still here 🥳 No idea why I was getting an error message, I only post here so can't think that I was banned ... 🤔

Today I have woken up feeling very dizzy. I'm listening to my body so it's a day in bed with DH providing the hot drinks. DS and GF are coming over later and DH is cooking a curry for tea. It will be lovely to see them but I feel I'll be off to bed early 😴

Have a peaceful day all 💕

Well done on listening to your body @Swanhilde I hope a day in bed does the trick and you can manage a bit of time with your visitors later.

And how rude of MN to ban our very own tea lady! 😜 I do sometimes find the site can glitch a bit so maybe just one of those things.

@Swanhilde when the website doesn’t work well, I use the app. Is that a possibility for you?

@Swanhilde you are right to listen to your body. Let them pamper you 😊

Hello all. Sorry I've been missing in action or I should say inaction with MEcfs I guess.

I've read recent posts but struggling to remember who said what now. Brain is being uncooperative. I'm just overwhelmed at the moment. Been so much going on and so much is really identifying so I'm hesitating to lay it out too much anyway...Epic boring udpate incoming.....brace yourself.....

Basically a couple of deaths is one thing that's happened in the last week...nobody close but on my doorstep kind of, so it's raked a lot up about losing my Dad suddenly and it's making me think about when Mum goes which is maudlin but it will happen of course. The other person who has died has taken their own life. It's tragic. She had illnesses similar to MEcfs but mental health issues too and it's just a big shock and horrible. Makes you sad for what we all go through with chronic illness.

Then exh has been an absolutely unbearable disrespectful pain in the ass with some other stuff from his family on top (bang out of order). Ive got a lot of feelings swishing around from the mental abuse he put me through. He's really pushed a few buttons and it's raked things up there too. I'm feeling resentful which isn't good. And..second weekend alone in a row with DS not here. I've barely seen him this week which I need to get used to because he's getting older.

Work has been full on.

Car needs a service and haven't sorted it.

Loo seat triumph is now not so trumphant because it's loose already. WTF. Maybe I didn't have the strength to tighten it enough.

There's more but I have dumped on my counsellor at least. Went back after finishing for a few months. I felt a bit better for talking about it yesterday but it hasn't lasted.

Today I feel awful and lonely and I've been in pain loads which makes me a bit emotional.

Tldr is me just feeling sorry for myself! Sorry. It's very self indulgent. Been alone too much.

I'm sorry things have been tough for you too @Oioiqueen and I think @Dozymoo42 had a wobble?

@Bluebellsandwishingwells I want to know more about your book please? Well done.

How are the creative endeavours elsewhere? Any ceramics going on?

@Swanhilde have you been naughty? Been causing a stir on AIBU and got banned? 😉 I do hope not.

Did someone say something about nothing happening so they haven't posted? You know that was actually the point of this. ... 😘 We can chat about nothing much going on if it isn't. My little world doesn't belong on the other long running thread of people doing gigs and weekends away and DIY etc etc. I am missing it though. Watching others live their lives. Anyway, we can be boring and yet we're not boring. You're all brilliant. X

Anyway, I am going to go eat stuff and maybe even have a drink and charge my phone and maybe I'll call my bestie later. .. though now I've said that I feel like maybe a nap would be better. 🙈
I need to stop typing.... Sorry 😐 🧠🤦🏻

Today I feel awful and lonely

We’re here @MewithME I too find particularly the long evenings after tea before bed hard, (Single, no DC)

As to creative endeavours I’ve been painting, but I fear I’ve already hashed it early doors

Sending you big hugs @MewithME, sorry there's so much going on at once.

I started today well, popped to the shops, bought the papers, did crosswords with my dad, made lunch. Then I went for a nap and woke up feeling absolutely awful, dizzy/ big rush of adrenaline/ dodgy stomach/ shaky legs. It's settled after some electrolytes, biscuits and ice packs, but was the worst one for a while. Maybe just because I've been doing a bit more than usual. About to order takeaway and have a quiet evening.

Sounds like an awful lot going on @MewithME and sending hugs your way. I find sometimes I need to be alone to rest/ recover etc but then I’m incredibly lonely at spending so much time alone. It’s a tough illness. Hope you can catch up with your bestie and fit a nap in too.

Hope things settle @martha79

After the morning resting in bed, managed to be up a couple of hours but pain not great so came back to bed so I could prop cushions every where and just get more comfortable. Listened to my audio book and then tiredness hit so slept for a while. Definitely not an exciting day here! Little dog snuggled in with me too so that’s nice and emotions are calmer today so I’ll take that.

Get lots of rest @MewithME it sounds like a heck of a week. Each one of those things individually is a massive upset so no wonder the whole lot at once has flattened you.

@ValleyClouds the evenings do stretch out don't they? I think it's worse with the extra daylight in Summer. I have DH but occasionally he's been abroad for 10 days at a time and those times I find I want to have an early tea, early bed, get the day over with! More energy in the morning too. Hope you can find some nice things to take your fancy. Until my neck got so stiff I could always get stuck into a sewing project. There's usually someone around on this thread if you're at a loose end, which is so nice to have.

@martha79 you sound as if your candle has been burning at both ends. Nothing more tiring than visitors and talking! Hope your adrenaline calms down, but from my experience it takes longer than you think, like earthquake aftershocks.

@TodayIsatrickyone I'm avoiding screens still and listening to audiobooks, only ones I've read before so I nod off and know where I am when I come to!