What are you up to today if you have a chronic illness? Thread 7

[MewithME]

Last thread 🧵

https://www.mumsnet.com/talk/_chat/5490534-thread-6-good-griefwhat-are-you-up-to-today-if-you-have-chronic-illness

Fill up last one first 😁

It really doesn't work to compare @Dozymoo42

Mine changed as my heart rate zones were updated. I spent ages back and forth with the team to get them right and then had to change my pp. I think it's about right now for me but some people have single digits some have 20+ or 30+. It doesn't mean that you are less bad than someone else who also has mild MEcfs if your pp budget is higher.

It's grey and chilly here this morning. I have to go into work again. My leg is still super sore and itchy from the flipping heat rash thing so I think I'll have to wear short length trousers or it'll drive me mad!

Hope everyone has the best day they can.

I've just got the free version of Visible, so just get the morning score. It's 5 again today. Bit odd.

Going to go to aqua aerobics and see what happens later in the week.

I tried going to install the full version of Visible but it's not compatible with my Android phone.

Morning all.

I've got free Visible too and I do find it useful, although still sometimes confused by it. Got a 3 this morning, which mainly seems down to my HRV being higher than normal. Which might be because I had a better sleep.

Dark and rainy here. The event I was meant to be running at work this morning has been cancelled, so I've got a slightly easier day. Payday too! Just ordered some new glasses after my sunglasses revelation - a pair of sunglasses with the right prescription, and another pair with just a slight tint, which I think could be useful when it's not full-on sun but things still seem too bright.

Morning all! (This has been corrected about 8 times.)

Woke at 6 and got up, than another visual migraine hit. So annoying. Just painful now but I couldn't form words for a bit. Even now lots of typos. Intense light in my eyes yesterday, sunny day, busy week. Perfect storm really!
Hopefully nearly got over it...they often come in clusters. @martha79 sympathise with the photophobia. Can't wait to get new specs in a month or so. I've got cheap sunglasses but they rub my nose raw!

Should be avoiding screens really but bored with DH and his friend taking over dining room for a research project.

Have a good day all!

Thanks @MewithMEit’s good to know things can move and change they’ve started me with 10 points a day so just trying to gage what other people are looking at. Hope you have a easy day in work!

I had a bad week last week 😢 was stuck in bed most of the week but moving slowly in the right direction now hopefully 🤞 yesterday and today woke to a morning score of 4 so I’m aiming to continue resting as I have been then moving slowly back to normal pacing. The doctor has given me 4 weeks off work so I feel more able to rest etc and move slowly rather than how I have been doing everything on the fly up until now.

it is also grey and gloomy here today have a restful day everyone