What are you up to today if you have a chronic illness? Thread 7

[MewithME]

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https://www.mumsnet.com/talk/_chat/5490534-thread-6-good-griefwhat-are-you-up-to-today-if-you-have-chronic-illness

Fill up last one first 😁

Perfect!

Good thinking! It gets most of us in the end 😎

Friday night curry sounds good!

I've had an unsuccessful trip to the charity shop - thought I'd go for 9am when it opens so it was quieter (and the weather's meant to really warm up later). No luck with clothes and I came over all weird/ dizzy/ anxious in the shop. It's all uphill on the way home and it felt like my legs could barely manage it. Back in bed now.

Hope you all have a good Saturday.

Morning. I’m sorry I’m not really keeping up in here at the moment. I’m back to working full time, my anxiety is raging and I’m having huge amounts of palpitations. I managed to get the shopping pot away, my bed stripped and the kids to strip their beds and dh did his own. So I’ve got something done. I’m hoping we’ll have a 2-3 slow walk this afternoon before I do utterly nothing tomorrow. The kids have parade with dh so it’ll just be picking up my new car and dropping them off and picking them up.

Well I woke again with acid reflux last night which wasn't great. I took my tablet yesterday too so it's a bit concerning. Anyway I slept ok after that apart from the usual 3am wake up.

Woke up to a cacophony this morning from the builders doing up the house that backs ontoy garden and the idiot neighbours who thank goodness have their house for sale because they're incapable of using a normal volume and they all just shout at each other.

It's going to be an earbuds day!

Morning. Lovely & sunny here.
@MewithME surprised your council allow residential building works at the weekend. Sounds awful.

I think as with most things these days, despite rules..... people do as they please. Next door had their builders on bank holidays. Same happened to my friend elsewhere.

I think these neighbours are possibly doing it up themselves so could be a mate doing it with them. Anyway... At least the screaming and shouting neighbours have gone out now.

At this moment I can hear the birds 🙂

@MewithME that sounds awful. It's the weekend DIY people who are the worst ones! At least with professionals the job will be finished hopefully at some point.

Well so much for decluttering! I managed to get rid of DD2's piano and have been enjoying the space. I also gave away our spare bed, not anticipating guests this summer, now my friend is booked in for August I have panicked! The spare room is piled high with boxes. I have ordered a chair bed and nowhere for it to go until the boxes have gone, so it will just fit where the piano was! Literally musical chairs 😄

@TeaAndStrumpets is a chair bed like a sofa bed? I do like a sofa bed

@MewithME that doesn’t sound good but at least they’ve gone out for a bit so you can have a bit of peace and it is nice to hear the birds 🙂

@martha79 depending on where the charity shop is to your home, would a mobility scooter help?

@FurForksSake thats good you got something done 🙂 if you’re struggling with work full time, could you go part time again?

@JewelleryCat it's chair sized but the size of a single bed when unfolded but fine for one visitor. I found one half RRP with free delivery so couldn't resist. Also it's emerald green so very cheerful! (Described as sage but it's very bright....maybe it's my new eye lol)

Sounds very interesting and a bargain with half off plus free delivery. I like a bargain lol and how’s the new eye?

Yes I love a bargain! New eye is very good thanks, still getting a bit of glare but will hopefully settle. Big sun specs essential!

That's very rude of your neighbours @MewithME

@TeaAndStrumpets the chair bed sounds great and even better being a bargain.

@JewelleryCat I think I'd be an absolute liability with a mobility scooter! I reckon it was less the walk and more a combination of it being really bright and that I wasn't up to being in a massive shop (it used to be a kitchen showroom so is huge), trying to find things in a bit of a jumble. Feel a bit better for some time back in bed and might do a Vinted hunt instead later.

@martha79 have you considered having a really good trolley for your shopping trips? I bought one for DD1 when her boys were small and it was very useful. I think it was German made so very sturdy and good on curbs etc.

Afternoon everyone. I've been knitting outside and have caught the sun a bit on my shoulder!! I tried to use our new hosepipe and managed to have the end fall off and the hose sprayed me straight in the face. Hope the neighbours weren't watching!! I'm sure they already think I'm a bit strange

Sorry about your dizziness @martha79i get that in shops sometimes and it's awful. Hope you're feeling a bit better now?

Take it easy @FurForksSakewe are here when you need us

Hate your neighbours @MewithMEhow rude of them. We have some like that who only have one volume which is SHOUTING. Lets hope they stay quiet now!!

Happy to hear you're getting on with your new eye @TeaAndStrumpetsfor some reason I imagine you popping to the eye shop and choosing a new one 👁

I like the sound of the chair @TeaAndStrumpets My chair I got before Xmas makes me happy. It's v 'funky' with big stripes. My mother was unimpressed which means it's good 😅

Builders are still at it but it's tolerable and thank god at least they're not listening to the radio. Shouty neighbours are still out. Skylarks are twittering away.

I am seeing lots of planes in the sky and I get all wistful thinking about what it's like to be normal and be able to just get up and fly someone exciting. Its probably exh and his holiday plans rubbing it in for me.

A friend invited me to tag along to the opening of a new venue in town. But I really don't think I would cope. Another friend texted me but she's booked up doing stuff as usual. It's lonely being ill isn't it ?

Still I have the birds for company. DS home tomorrow and I must ring my mum later.

Hope you are all okay.

I'd not thought about a shopping trolley @TeaAndStrumpets - I may investigate!

Bit better now thanks @bedfrog - just a bit fuzzy.

Found a nice bundle of clothes on Vinted - four pairs of summery trousers (with elasticated/ drawstring waists so hopefully comfy with my fluctuating weight/ bloatedness), plus a very bright turquoise tshirt dress and some pyjamas - all for about £20 including the postage.

I'm sorry you're feeling the loneliness @MewithME. Everyone around me seems to be booking summer holidays at the moment. And I was invited to a gig this evening but it's in another city so can't even consider that 🙄

@bedfrog that would be me with the hosepipe!

@MewithME it's nice to get invited to things even if you can't go...next time maybe!

You're right @TeaAndStrumpets . It was nice to be invited ☺️

I just had a long chat with my Mum so that's cheered us both up. It is now blissful quiet in the garden so enjoying the bees buzzing away.

Going to see how I feel tomorrow but if I'm ok enough I might go to the garden centre and have lunch with Ds and buy a few plants. If that's too ambitious we can do it another day. It's my favourite thing, I love our garden centre. Café is great and plants are the best quality.

@martha79 that sounds like a good bargain! I've never tried vinted. Feel like I need a clear out before trying to get anything else in the wardrobe. I am actually wearing a dress I bought last year for about a tenner from Tu. It's bright red which suits me but I feel a bit conspicuous in it out and about so maybe it's better for lounging about in. The bees keep landing on me .... probably think I'm a ginormous flower 😁

Happy Saturday evening all. Today's been lovely despite fatigue. Drove a local town, wandered through and then sat outside overlooking a lovely castle. It was really nice. Browsed the few shops there. There was a gluten free cafe I wanted to go to for gluten free doughnuts but we left a bit late. Better luck next time. One silver lining with this illness is that you become very accepting of missing out and just have hope for doing things another time.

On the talk of holidays I walked past a high street travel agents and looked at the holidays. Would love a cruise especially.

@FurForksSake I hope your ok. I remember my phased return being too quick and it wrecked me

Hope everyone has a lovely evening.

Breaded chicken, waffles and beans/salad for dinner. Healthy I know! Then BGT and bed.

That sounds so lovely @Tiredandwired2 . Yes, acceptance of missing out is definitely something I have got used to.

I've got my PJ's on now. Naughty guey baked camembert for tea. Zero effort

@MewithME your red dress sounds excellent. I've had some great bargains on Vinted although it can be a bit addictive. I picked up a couple of loose linen tops on there yesterday too.

@Tiredandwired2 that sounds like a nice day out.

Don't know what to do with myself today - need to find some way to move gently as I'm SO stiff. Am tracking a couple of friends who are running the London Marathon and feeling a bit envious - of the ability anyway, I wouldn't want to actually do London, it's way too busy. I'm really pleased for both of them though that they've made it to the start - they've had a tricky journey there, and one of them has raised an incredible (like, ten times her original target) amount for a charity that's important to her.

DS has come back from his dad's and gone straight in the shower. Not sure why he can't seem to wash at Dad's house!

Anyway I shall go and get dressed in a mo. Coffee number 2 outside with my book I think. Will sort some laundry first.

Going to just plod and see whether I'm feeling up to doing anything later. DS is happy to be home and gaming I think so no pressure at least.

Some gentle yoga @martha79 ? I keep meaning to try that again. I did enjoy it a while back before I got ill and I spend so much time in bed it might help me somehow. Nothing strenuous just maybe a bit of gentle stretches.

It was a really lovely day out but took it out of me. Feeling slow today and like my joints are not working properly. Was shattered last night. No BGT as DD couldn't manage it and was anxious about the live aspect of it e.g. what if something went wrong or they showed something inappropriate. The anxiety is taking over all areas of her life.

I ended up just listening to my Outlander audiobook in bed and fell asleep fairly early.

Camembert for dinner sounded nice @MewithME . I love an easy dinner. It's so easy without the kids to cater for isn't it. Especially when you have a fussy eater.

Been for a dog walk and popped to the shop for milk and a few bits. Now need to decide what I can manage for the day. I mentioned going to the city centre on Friday and my DS who has ASD has latched onto it but DD is struggling to move and I'm in pain and fatigued. Changing plans risks a 'kick off' though so I have to approach it carefully.

I long for an easier life.

Hope everyone has a lovely day and can enjoy this weather