Thread 6? Good grief..what are you up to today if you have chronic illness?

[MewithME]

Link to last thread. https://www.mumsnet.com/talk/_chat/5475947-what-are-you-up-to-today-if-you-have-a-chronic-illness-thread-5

Hello to my chatty poorly friends and welcome to New ones....

Ohhh proper pie with pastry
I was think like shepherd's pie kinda pie 😋

Actually @FurForksSake ... I do a thing with mashed potato mixed with cheese and any green veg (leeks work)...then stick in an over proof dish , make some little wells and crack eggs in and bake.

I am by nature very organised, but at the moment just taking advantage of bits of energy to get ahead where I can.

Have just done an online shop of new wax melts - convincing myself it's spring by packing away all the winter scents for now, and ordering ones that are all fresh air, mountains, minty, laundry sort of things. I am so, so glad that COVID didn't steal my sense of smell (it went very weird for a while, but came back). Nice smells are one of my greatest pleasures in life!

@FurForksSake it's a bit alarming how long those supermarket tortillas last for, what do they do to them?! I buy them now and then but they're very... dense.

You're all making me feel very hungry with this cheese pie talk.

I had a big bag of spinach needing eating up so made bright green soup yesterday and just had the leftovers of that. It was a bit watery in texture but lots of flavour and you feel healthier just looking at how green it is.

Really struggling to get going today. I am supposed to be packing to set off and travel halfway across the country for a conference. It's the one jolly we get at work and in past years I have really enjoyed it but honestly I am kind of dreading it on many levels. I have asked whether they have any accommodations for people who can't stand for long periods waiting for food or cups of tea and they've kind of waved their hands vaguely and said you can ask for assistance - we shall see.......

I can't live without my frequent cups of tea!

That's great about the offer @TeaAndStrumpets . Fingers crossed.

Thanks @VikingNorthUtsire it's been a long road!

I think on a previous thread posters had recommended a little collapsible chair for a hasty sit down. It looked very handy!

Thinking of pies and such, does anyone remember the BeRo baking book? It was brilliant for flans and steamed puddings.

I have one ☺️ it was always our most used book in the kitchen when cooking with my mum so she bought me my own one (albeit the more modern 90s version) when I left home.

Oh I also did this (x2!) but I found some identical editions on eBay for the nostalgia!

Ah, the ones with the hand drawn illustrations? That's what my mum's has. My newfangled one has photos.

Seeds sorted and the sun came out so I went for a potter around the garden ☀️

Back in bed now and I'm fairly sure I'll end up having a nap 😴

I think mine just has photos, on a plain background. Can't put my hand on it but it's 33rd edition from a google images search. They are quite pricey now!

I sometimes wonder what my girls will squabble over when I'm gone. I'm guessing the button tin, actually an old toffee tin.

Here you go @VikingNorthUtsire

This is what I bought a few years ago and they're a godsend. I am always envied on holidays when I whip out my own seat and all benches are full 😊

I can't see a link @MewithME but I think I bookmarked it last time you posted. Unfortunately I leave tomorrow morning so don't think I can obtain anything before then.

I will have a colleague with me so worst case scenario I'll sit down on the floor and send her to queue for me 😂

Joking aside, I think the standing will be just one of many challenges. The people, the noise (I am partly deaf), the remembering where I need to be. The days are 9-6 then roll straight into networking drinks and dinner! I've warned my colleague I am unlikely to make those.

https://amzn.eu/d/000TYB3M

God my brain fog must be bad. Not good for much today!

Morning all!

Beautiful day here. I was woken up again by racing heart, just adrenaline from everything going on with the house sale. Should be OK this time...three failed buyers last year!!

I am going round trying to babyproof the house for our visiting granddaughter later. We gave away all our baby toys as next grandchild in age is 12 and we thought that was our lot. So wooden spoons and some melamine mixing bowls are out ready!

Hope everyone has a nice day!

The sun is shining and we're off to the garden centre for breakfast this morning ☀️

I have been paid and have a list! 😆

Have a relaxing Sunday everyone 💕

Cor. That sounds lovely 😍 enjoy @Swanhilde

@TeaAndStrumpets how lovely. Sounds like fun. I have so many videos of DS playing with cardboard boxes and tubes. You'd think he had a deprived childhood.

There's a bit of sunshine here too. Not sure it'll last.

I'm still feeling very heavy and fatigued but also been on my own too much and having some darker thoughts about my Mum getting older and what'll become of me one day in my house I can't manage to fix. I think it's another symptom of chronic fatigue... everything feels a bit hopeless. Energy feels like possibility. It's hard when you don't feel that.

I'm still numbing myself with mindless TV. Trying to let my body and brain recover a bit. Back in work tomorrow. I fear I'm booming and busting just now and not pacing. Sometimes it's hard to remember.

Anyway, I'm ok really... sorry that sounded too gloomy. I will perk up!

Honestly, it's seems like a feature of PEM. I'm usually quite cheerful but when my fatigue is bad everything seems hopeless. Just keep pacing as much as you can and if you can't pace one day then there'll be another day when you can. X

Sorry thr thoughts are crowding in a bit today @MewithME Distraction in the form of comforting tv or books sounds a good plan.

@TeaAndStrumpets Enjoy seeing your little granddaughter.

I think that’s really insightful that the feeling of hopelessness is part of PEM. I’d never thought of that but it does make sense. I’ve been worrying lately too about the future and what it might look like. Mums health and only me local to support her, DH, my health. It’s been brought to the surface with this latest flare and the reminder that I’ll likely need heart surgery too at some point in the future. ( hopefully not for a while) Then a slightly better day happens and I seem to regain perspective a bit and tell myself I’ll deal with what I need to deal with one thing at a time and I’m stronger than I give myself credit for.

My DH isn’t well this weekend, chest infection. I’m trying to be mindful he feels like crap and do what I can to help, but he’s very grumpy and I’ve just got annoyed at him after he snapped me again so I’m ‘ resting’ but mainly to get out of his way! I regularly feel like crap but manage not to bite everyone else’s head off.

Enjoy the garden centre visit @Swanhilde sounds fab.

Afternoon all

Hope you enjoyed the garden centre @Swanhilde

Sorry you're having a tough time @MewithME

Have fun with your granddaughter @TeaAndStrumpets

I think you're right about thoughts being worse when fatigue is bad. I find it hard to untangle which are physical anxiety-like feelings and which are actually worries, I'm not sure they can be completely untangled. I discovered this week that our local NHS 'talking therapies' service does a couple of courses around anxiety/ feeling down and long term health conditions which I'm considering self-referring to.

Had a nice morning here - friend's birthday yesterday so we went out for brunch at the local city farm. Seeing the animals always feels therapeutic, and the cafe is good. I struggled a bit when it got busy and noisy, but managed to breathe through it. Sofa for the afternoon now, and trying not to think about work.

Afternoon all. Bit grey & gloomy here.
Infusion part 2 tomorrow. Hope they get the cannula in right first go this time 🤞. Part 2 is usually shorter so hopefully done & dusted in 5 hours.

@MewithME hope you manage to pull yourself up into a better mindset. Sometimes I listen to sleep music on Youtube. Can be very relaxing & lets you float away for a while.
@TeaAndStrumpets enjoy your grandchild. The Wiggles or Bear in the big blue house on Youtube can be quite entertaining.
@martha79 your morning sounded lovely. Hope you have a good rest on the sofa.

The garden centre was lovely, full of Easter goodies, and the breakfast was 😋

I bought another hellebore, pea and sweet pea seeds, onion sets and a canna lily bulb. But they will have to wait as I fell asleep after we got home 😴

Having a brew now and then will go and have a shower/weekly hair wash. Soup for tea and ft with DD this evening, and an early night ❤️

@martha79 talking therapy really helped me. It's definitely worth giving it a go.

Good luck with the infusion @CoffeeBeansGalore Not a fun start to the week but I hope you have something to look forward to later.

I am on my knees after very busy little granddaughter's visit, 4 adults could barely keep up with her. She eventually started to wind down and her parents ran for it so she could nap on the 2 hour journey home. It is comical to see her confidently marching about as she is very short for her age!