Oh my gosh does anyone know how to stop this stomach problems I feel like im wasting away here

[Ihavenoideawhatmybodydoes]

I have been ill since the start of December, diahrea stomach pains (althought not awful) and general tiredness dizziness etc.

Saw doctor multiple times eventually ended up in hospital for a week because I was so dehydrated and I had lost 26 pounds.

they did all kinds of tests the only one that came back abnormal was the stool test for calprotectin which was 1100 but they found nothing else. I had an endoscopy and sigmoidoscopy that found barrats esophagus but nothing that would explain the stomach issues.

its been nearly two weeks since I was discharged and I’m still so miserable today was so awful I had stomach pain all day although nothing diahrea but then this evening again been stuck on the toilet . I’m so tired I’m just bascially managing to cook and eat then lie in bed all day! I’ve tried immodium etc that makes it way worse as then I just get really bad pain.

I messaged the doctor last week asking for more help but they could only offer me a review appointment this Friday.

what the hell can I do! Has anyone had this before the hospital discharged me and the gp doesn’t really seem to be that worried but I’m going crazy!

You definitely need a gastro referral and a colonoscopy. There is medication available for colitis. I found it took 18 months to clear the inflammation with a combination of low fodmap diet, some supplements and probiotics.

What does calprotectin 1100 indicate or suggest - what did the GP say about that?

Diverticulaer? Try Symprove. It’s a probiotic.

No I’m very much an indoor person i do do some gardening but nothing exotic!

I’m not sure exactly what they checked for they just said they ruled out infections but nothing sure which ones exactly!

I do have my gallbladder I know I have Small gallstones from a ct scan I had a year ago (I had appendicitis!) but they said they are not causing problems .

I had a sigmoidoscopy but not a colonoscopy not sure how different those are!

He didn’t say anything . They did two tests at the hospital a week apart the first was 700 the second over a thousand but they didn’t seem too bothered tbh!

Yes they did biopsies but I don’t know the results yet.

Yes I have been on lanzoprozole for a couple of years I had an ulcer and esophagitis I’ve been on it since then . They have doubled the dose for 4 weeks then it goes back down.

Have they ruled out Diverticulitis? My Mum has it, and it can be awful. Stomach pains, diarrhea, tiredness etc. My Mum's was picked up from a colonoscopy.

I don't know how old you are, but when I'd been taking HRT (tablet and gel) for 6 months, I suddenly got unexplained diarrhea, stomach cramps and feeling generally awful. It turned out that I am sensitive to progesterone. As soon as I stopped taking HRT, my symptoms completely disappeared.

Came on to mention Pepto Bismol as well. If it helps significantly, it’s a strong indication that you have Hydrogen Sulfide SIBO. It’s a post infectious gut condition that has diarrhea and swift, significant weight loss as symptoms.

That said, with those Calprotectin levels they should be investigating for IBD/Crohn’s urgently.

I was tested for celiac disease and they said I was fine. I’m not. I don’t eat wheat or dairy and my symptoms went away.

You poor thing - i had escalating bouts of diarrhoea for years which really affected my quality of life and caused constant anxiety - my pharmacist recommended Alforex probiotic which she said was life changing for many including herself. Within a couple of weeks I developed normal toilet functions

I’m 42 the didn’t mention diverticulitis so I’m not sure at all if they looked at it - I am taking some medications but nothing new before this started so I’m not sure!

@Ihavenoideawhatmybodydoesa sigmoidoscopy examines the lower third of the bowel and the rectum. A colonoscopy examines the lower and upper parts. I would push for a colonoscopy.

I figured out how to log in to the hospital portal where you can see results but the result I can see is this one I’m not sure what else they tested for tbh or really what it even means they just didn’t seem concerned but they were desperate for beds - each morning I’d be kicked out of my bed and put in a chair so that someone who needed oxygen or who couldn’t move could have the bed . Then by night I’d be found another bed somewhere in the hospital so each day saw a totally different set of doctors.

You can have microscopic colitis which is why they take biopsies. I’d bet money on one of your samples coming back with this.

Gastro issues are one of the worst to diagnose. You can get consultants telling you it's in your head and anxiety is making it worse and then it's so easy to use the IBS label.

Yeah I actually managed to see the gp today instead of in a few days and I have no idea how to feel about it. He ordered another calprotcin test and another one called elastase? But he also was obsessed with an I under stress and he even wrote in the notes that I was tearful (I was not)

This clearly says IBD possible
and
urgent referral if symptoms suggest IBD

Id ask your GP about this

He’s falsifying his notes
I’d complain and ask for that to be removed
and
because I’m so untrusting of the nhs these days
turn your phone on to record appointments
It will also help you afterwards to go over what’s been said

Have you had your b12 checked? PPI's can affect absorption of b12 and make you very poorly. As your D and Folate are low i'd suspect this is too. Can cause a myriad of issues including liver and gastro.

I'd be bloody tearful if I'd had diarrhoea and stomach pains for as long as you have.

My mum has diverticulitis and a flare up is similar to what you're experiencing.

I'm surprised they haven't given you a colonoscopy.

This very much describes the symptoms of a family member who felt so weak, sick and had stomach pains for months and months, could not eat much. Endoscopy, colonoscopy, blood tests etc. In the end it was ecoli. Likely caught on a holiday several months before the first symptom even presented in full force. She'd even asked for a test for parasites but this one was neglected for some reason. Anyway, you are probably going to get loads of theories thrown at you but here's another one!