Meet the Other Phone. Protection built in.

Meet the Other Phone.
Protection built in.

Buy now

Please or to access all these features

Chat

Join the discussion and chat with other Mumsnetters about everyday life, relationships and parenting.

Failed my autism assessment...what now?

112 replies

malificent7 · 14/10/2025 08:35

Always struggled growing up with friendships, work, eating disorders,alchohol,depression etc.
Sdd diagnosed with aitism and I could see myself in her.
Went for my nhs assessment and apparently I am not autistic as I speak well and join in conversations.
But they gave me no other advice/ feedback...just left me hanging.
I mean i might have CPTSD as my mum was violent towards me. What now? So there is no excuse for me being me?

OP posts:
MintDog · 26/10/2025 12:58

Didwesayitall · 14/10/2025 12:47

It does make it interesting when people suggest private providers to get an ND diagnosis when someone didn't get one on the NHS. People always seem confident that they'd get the diagnosis there instead.

Is there something the private providers do that the NHS assessors don't? Aren't they supposed to be working with the same NICE criteria and report from the patient?

People do get diagnosed privately though. You're paying for it! Lots of children in my child's clinic who were refused diagnosis by the NHS for ADHD (just had poor behaviour) but then diagnosed privately. The drugs don't work on them and just make them worse. Actually beautifully ironic when you think about it! Then they do have to accept it's a behavior/discipline problem rather than being ND.n

LeedsZebra90 · 26/10/2025 13:07

This is interesting, it may be worth exploring the possible CPTSD - i was diagnosed with this at 33 following some very difficult childhood experiences. I previously got an ADD diagnoses at 14 (this was in the states). It has been suggested by numerous professionals since that the ADD diagnosis was largely the result of symptoms which overlap with trauma.

I hope you can move forwards and find the support you need.

CharlieKirkRIP · 26/10/2025 15:17

thisishowloween · 26/10/2025 12:55

Did you mean to be quite so offensive?

My autism is NOT an "affliction".

I didn’t mean to offend you!

I don’t know anyone who is autistic so based the use of the word affliction on this where people describe it as being an affliction -

https://www.quora.com/Is-autism-an-affliction-or-a-trait

Interested in this thread?

Then you might like threads about this subject:

FuzzyWolf · 26/10/2025 15:57

CharlieKirkRIP · 26/10/2025 12:54

Rather than be disappointed you don’t have an affliction, shouldn’t you rejoice that the behavioural traits that made you think you are autistic are actually learnt behaviour and can be cured by counselling etc?

Right, because that’s how it works! 🙄

thisishowloween · 26/10/2025 15:58

CharlieKirkRIP · 26/10/2025 15:17

I didn’t mean to offend you!

I don’t know anyone who is autistic so based the use of the word affliction on this where people describe it as being an affliction -

https://www.quora.com/Is-autism-an-affliction-or-a-trait

If you don't know anything about it, maybe you shouldn't respond as though you do.

FuzzyWolf · 26/10/2025 16:00

MintDog · 26/10/2025 12:58

People do get diagnosed privately though. You're paying for it! Lots of children in my child's clinic who were refused diagnosis by the NHS for ADHD (just had poor behaviour) but then diagnosed privately. The drugs don't work on them and just make them worse. Actually beautifully ironic when you think about it! Then they do have to accept it's a behavior/discipline problem rather than being ND.n

You pay for an assessment, not a diagnosis. Lots of children and adults don’t reach the assessment threshold on the NHS but that doesn’t mean they don’t have ADHD.

ADHD meds also won’t make a child without ADHD worse. That’s just not how they work.

surprisebaby12 · 26/10/2025 16:00

It’s very possible your assessor had a biased view of autism, it’s a particularly common challenge for women who may not present stereotypically. I’d contest it personally

seanconneryseyebrow · 26/10/2025 17:26

I’m an autism assessor. I have to drum home at booking that they are booking for an assessment NOT a diagnosis. Some don’t get the diagnosis but usually it’s cos there’s something else going on and we refer on. But women do present very differently and are hugely under diagnosed and misdiagnosed. We still get referrals from GPs saying unlikely cos has good eye contact and functioning well. It doesn’t work like that! Understanding amongst professionals is poor.

Blushingm · 26/10/2025 17:28

Why does it make a difference if you’ve got autism or not?

FuzzyWolf · 26/10/2025 17:29

Blushingm · 26/10/2025 17:28

Why does it make a difference if you’ve got autism or not?

For some people it makes a massive difference.

thisishowloween · 26/10/2025 18:16

Blushingm · 26/10/2025 17:28

Why does it make a difference if you’ve got autism or not?

When I was diagnosed, it was like the final piece of the puzzle - my life suddenly made sense. I suddenly had answers as to why I struggled so much with basic, everyday life.

TigerRag · 26/10/2025 19:17

Blushingm · 26/10/2025 17:28

Why does it make a difference if you’ve got autism or not?

Unless you've got Autism (or any other medical condition) you won't get why it makes a difference

New posts on this thread. Refresh page
Swipe left for the next trending thread