Seriously considering my teen trying weed

[ProbsamURbutImattheendofmytether]

I know, I know.

It sounds horrendous and would make me a shit mum.

She has been having myoclonic seizures for years, they are painful and make her life pretty unbearable.

She has no friends, no life outside of the house, can't really do anything much, can't sleep, her education is suffering massively.

I've tried everything, every medication offered, it doesn't help, every type of alternative therapy, every type of traditional therapy, there is nothing I haven't tried.

I just want her to be able to live a somewhat normal life.

I know there are issues with weed, but the side effects of all the meds she has been on have been worse tbh.

I just don't know how to watch her go through this anymore.

I'm giving it some very serious consideration.

I'm not brave enough for AIBU, but I guess that's what I'm asking.

Please be kind, I'm a Mum who hasn't had longer than an hours sleep for 5 years and watching her suffer and be unable to go to school again today has pushed me to the edge honestly.

(NC been on MN for ages if you want to check, I'm not ragebaiting I'm just trying to get opinions because I can't discuss it irl for obvious reasons).

I have posted a photo of a dry herb vape from amazon
. If you are going to use marajuna... ( The weed type).. you just need a tiny bit in the top.. its not like the vapes people use instead of smoking.
I have brutally horrific chronic pain.. that not even morphine patches touch.. but l vape weed.. when it gets too much.
My Grandson has non epilepsy seizures and it helps him.
You do know some GPs will prescribe it now here in the UK?

Ops the photo.

Thanks to everyone saying I'm a good Mum, I really don't feel like one, and I can't really talk to anyone irl about this either, just in case, so it means a lot.

Atm I'm making butter with it infused and using that to make her cookies and she's having one before bed. Fortunately she hasn't got stoned, she was just a bit sleepy, but we sorted the timings out and she's fine now.

When she's a bit older we will definitely look into other ways she can take it, but the day of her 18th birthday I'll be making sure she can get it legally.

Thanks for all the advice/support 💐

Hi sorry @ProbsamURbutImattheendofmytether but o just want to circle back to the cannabidiol liquid I mentioned before.

you mention that you asked the specialist about medical cannabis and they said no as she’s under 18 but this specific product is licensed for children age 2 and over so I’m curious if you were asking about the correct product. It is only available for certain forms of epilepsy so may not be suitable for you child but it’s definitely worth the ask.

I’ve linked some more info here which also explains why the medicinal liquid epidyolex is superior to health store “cbd” oils, which I can see you’ve tried before unsuccessfully.

I think it is important to remember that by using grow she’s also using thc, so it’s definitely worth enquiring again about the prescribed liquid

if she has the type of epilepsy it’s allowed for then I’m not sure why they won’t prescribe it due to her age?

www.nhs.uk/medicines/medical-cannabis/

Thank you.

I didn't ask about it specifically by name, but I did discuss CBD at length with her neurologist, her regular paediatrician and her specialist and none of them recommended it for her seizures.

Believe me when I say that this has been an absolute last resort after years of appointments and various medications and therapies.

are you in uk?

I don’t think anyone can judge you in this situation. As parents we do whatever we can to alleviate our kids suffering, and with things like this there is no black and white.

My daughter is epileptic and I’d try it in a heartbeat if needed. Wouldn’t have any issue with using it at all. She already uses cbd alongside her medication and it has helped.
Some of the epilepsy medications are awful and I’d reach for weed before using some of them.

Yes I'm in the UK.

I don't want to be too specific or outing, but the doctors have their reasons why they won't prescribe this to dd at the moment. I don't agree, but they all do.

When I say I have researched everything and tried everything before I got to this point, I really mean I have tried everything I can.

You have nothing to lose in trying it. Good luck.

You don’t need to be outing/disclose details you don’t wish to share. I just wanted to check in we were talking about the same medication. It’s such a shame if the doctors are aware and she is eligible and they won’t prescribe when it puts you in this situation.

I wish you and you daughter well. I truly do xx

Just another quick update in case anyone is interested.

Dd had her regular blood tests done, I was very nervous about it, but they clearly don't routinely check for drugs as nothing like that came back.

She's still on a small amount and it has made a huge impact on her. Her seizures and pain levels have significantly changed for the better.

Over Christmas, for the first time in years she even opened her gifts downstairs, she usually hides in her bedroom and will leave gifts for everyone else somewhere we can find them, but she actually handed them out to us this year. It may seem like small thing but it's huge to us.

Another thing is that she has tried 2 new foods, chosen by her, over the last month which is almost unheard of for her. Again its a small victory for most, but it's massive for us.

She is still quite anxious in general, and still has a lot of OCD symptoms, but there have been a few steps in a good direction recently.

All I can say is that, for us, so far, it's been really positive, and no side effects at all.

Who knows what the future may hold, but right now I have more hope than I have in a long time.

Hope you all had a Merry Christmas 💐

So glad it's worked out for you OP.
My partner was prescribed medicinal cannabis for borderline personality disorder and it has been life changing. To the point he's been discharged from all mental health services, and hasn't had a single episode since (used to be at least one weekly).

You've done the best you can possibly do in a bad situation. Happy christmas to you and your daughter, I hope the New year is much better for you both!

Read the update, that's great

That's amazing.

I would never in a million years have thought that it could help BPD.

I'm absolutely delighted it's worked out for you and your dp.

I understand why you would think of trying this

I’m from the states where it’s either legalised or legalised for medical reasons in the states my family lives so
i have no judgement about this whatsoever. I think you sound like an amazing mother who would do anything to help your child. I hope this helps.

Definitely worth a try.

Thank you.

I don't feel like a great Mum, just a desperate one ❤️

Just coming back to update, if anyone is interested, or is contemplating doing this.

It's been a real game changer. Dd is regular at school now, her pain and seizures have lessened. They did creep back up slightly but I adjusted the dose slightly and all is well again. After a short period of being a little bit sleeper things have settled back down. She is also eating a bit more. The variety of food expanded a tiny bit, and the trying new things has settled a lot, but she's definitely eating more than she did.

All on all she's doing well, and life is significantly better for her (and me).

That’s a fantastic update-I’m so glad to hear what a difference it has made. ❤️

No harm in trying it. It does help a lot of people.

Brilliant update op I'm so pleased for you and your dd

I am really really glad you’ve found what helps. :-)))

Thank you, I just hope it continues working for her as it has been.

Absoute life changer for us and I'm so grateful for all of the advice.