What are you up to today if you have chronic illness part 2?

[MewithME]

Thread 1 here
https://www.mumsnet.com/talk/_chat/5332156-what-are-you-up-to-today-if-you-have-chronic-illness

Come join us for our ups and down and daily natter.

Oh it's so stressful having viewings, tidying up etc. DH has been going on about moving at some point but I am hoping not, so as not to go through all that. I hope it goes OK.

Thank you! It's just this one last push to be in an easy house nearer to family. But it is somewhat humiliating to expose our shabby- not - chic home to all the world and his wife. I am trying not to care but I hate how run-down it is. Most of our would-be buyers are developers, though, so they actually don't care.

Hey all
Can i join?

I have me / cfs
( and am preg )

Last night we saw a play
Called
Yawn play
At theatre
Based on cfs

Highly recommend.

Today i went for a walk.

Tomorrow im seeing a mate.
Then my partner & i are doing an online baby class

Hello @worldwidetravel2017 great to have you join, of course but sorry you're in our crappy chronic illness club!

I love how you wrote your post. Looks like a poem. 😊 I hadn't heard of that play. I shall Google. I don't manage to go to the theatre but I have a national theatre at home subscription. I love it. I have heard some people in another group on FB say they felt better when pg so hope that may be so for you!

@TeaAndStrumpets @Orangesandlemons77 though I have a love/hate relationship with my house and the town we live in, the thought of moving just feels insurmountable so I am at peace with where I live for now.

I have got my Apple TV sub now. I am going to wait until DS sees his Dad (if he can be bothered to put in an appearance) so I will watch slow horses on the big telly in all it's glory.

Food shop coming tomorrow. I got a camembert for the oven as a lazy dinner treat.

It'll be the usual laundry slog too this weekend. But I must must must rest as much as I can . I feel really bad just now.

Back in bed now.

By the way... If I do a ❤️ on a post..it might mean I'm too knackered to reply right now but I'm sending love and showing I've read it.

Realised I do this but sometimes I'm "loving" a post when people are saying things are tough which might not come across right?

My poor tired brain not sure if I'm making sense.

@MewithME makes perfect sense! sorry things are no better. It’s incredibly tough living with ME, day in, so you’re def entitled to moan if you need to. Hope you can rest, rest, rest this weekend.

Not the best day here either, had a moan and a cry at my DH earlier. He’s pretty supportive generally re illness but I think in some ways, he so used to me always feeling unwell to some degree, he doesn’t realise if I say I’m not feeling great, I actually mean I feel bloody dreadful and I’m really struggling. I mean who wants to say that every day or hear it either! I’ve been struggling since our week away in July tbh and he did say today, he really hadn’t realised quite how much. I guess the recent doggy addition has added to the general exhaustion and it all came tumbling out today. He came back from the school run with flowers to cheer me up. I just need the teen to be a bit less stroppy now as I’ve been walking on eggshells with her since term started again.

@TeaAndStrumpets cant imagine how exhausting it must be to have to get the house ready for viewers. Part of me thinks we should downsize and move to something more manageable that needs less work once my daughter moves out but the practicalities fill me with dread!

@Hotbeverageplease your DH sounds like a keeper! Yes it's such a blessing to have a caring partner. Mine has learned all sorts of domestic skills but house cleaning/tidying/decluttering is not one of them. I did ask him to start packing his study which looks like a bomb site so now we have a large quantity of boxes, many labelled "various" ....

I wish we had moved years ago but it's just been too much to contemplate. Never again though. The trouble with this stupid illness is I just don't have the stamina to go looking at flooring, bathrooms etc so it is not at all enjoyable.

@worldwidetravel2017 How lovely that you have a baby on the way! My younger DD recently had her first baby at 41 and is cherishing every moment.

I hope you stay well, and rest while you can.

Had a shower standing up! On bad days I need my old person's stool and on very bad days I just can't. You can do a lot with a soapy flannel, and luckily we have a bidet. I read all the shower threads on Mumsnet in amazement! It's another world.

I grew my hair in lockdown so washing/rinsing that is the energy sapping bit, but it is my best feature and I think we're all allowed some vanity ;-) So am sitting here letting it dry naturally, with a pot of tea to hand, now a bit of pacing is called for.

Wishing you all a restful day.

@TeaAndStrumpetscongrats on your shower! I bet that felt nice

I feel a bit miserable today. I love Autumn, my favourite season and I used to love going for long walks with the dog and now all I can do is lie inside and look out the window.

Had a bad night’s sleep too - there was a commotion somewhere at 2am which woke me up and kept me up so I’m like a zombie today.

Oh I know, sleep is so precious. I was just drifting off last night when there was a great screeching noise under my window. I'm pretty sure it was foxes, they're even louder than cats!
We live in town at the moment but still get a lot of wildlife visiting (huge garden) , foxes, squirrels, even muntjac deer occasionally. So i can see a lot of nature out of my window but it isn't the same as a lovely walk through the autumn leaves.
Sorry you're feeling miserable today, hope something nice happens to cheer you up.

Morning all, bad nights sleep here too, on period again and am just the wrong temperature. The minute I do something I'm covered in sweat too. Got small food shop and Amazon delivered. Washing up, cleaned hob, fed puppies and dogs. Cleaned one puppy pen gearing up for the other. Still need to depoop garden. DH slowly getting to the end of
sorting downstairs and out into the garage, still has the garden to tidy. I've booked 3 days off work next week and hope to clean downstairs and shampoo the carpet on the landing. Just want to curl up and drink tea!

@TeaAndStrumpets glad you had a win with the shower today. So lovely when you manage something like that. My DH is fab in many ways but yes like yours decluttering/ tidying are not on his skill set 😊

@ChampagneRose sorry you’re a bit sad today and hope it passes. This was me yesterday tbf but today I feel a bit more positive so it does change doesn’t it. I do miss going for a walk though, I really do.

@Stressybetty that sounds like a lot on your to do list and I hope you can at least curl up and drink tea for part of the day! How are all your puppies doing? It must be very full on. My new little rescue dog who is 10 months is exhausting enough! At least when she naps on me though, it’s a nice excuse to stay lying on the sofa and ignore any jobs 😊 I’ve missed that doggy companionship so very much since we lost our other dog last year.

Hope everyone is having a restful Saturday anf pain/ fatigue are manageable today.

Hello all.

I totally hear you all about autumn. I miss big walks with my old dog and a pint in the pub. I have neither husband, dog or health anymore. The sun is coming out here and I was tempted for a moment to go to the woods nearby and have a few mins in nature but I need to be realistic. My head is banging. My joints hurt. My throat is sore.

I've got to do laundry this weekend and change the sheets and be a bit sociable with a couple of phone calls.... I haven't got anything in the tank for going out anywhere.

I did get a shopping delivery and I've got some non UPF food cooking for a change 🙈

I also got my old recipe books out. I enjoy flicking through. Don't think I'll make anything fancy but I do love them. I feel we've lost a lot with just browsing everything online. They're like old friends my recipe books. I'm a soppy thing, i know.

Anyway, telly is on. I have a zero percent Guinness. DS has actually gone to his Dad's. I will eat something, sort laundry and have a nap I expect.

@TeaAndStrumpets I tried to buy some lino when I was really not well. Drove to nearby shop and "chose" the first one is saw. It's not awful but not great 😕

I can also sympathise with not having the energy to have a shower and have used wet wipes instead. Lots of adult body wipes on amazon.

But in really bad times when my husband was away for work I went to bed in my clothes and wore them again the next day ( glad this is anonymous 😆).

Kudos to all the single mums who have fatigue-based illnesses

@ChampagneRose sorry to hear that you're feeling low today. I also miss dog walks but I can drive to a bench nearby and let the dog off which we both love. But need to be feeling good to start with.

Wow @Stressybetty you're doing well!

@MewithME enjoy your nap - housework can wait!

I'm trying to rest today to keep something in reserve for looking after dad

@BerfyTigot I said housework could wait last weekend...the sheets really must be changed today...but can wait until tomorrow. 🙈

Sheets can go another week!! I dare you 🤣

@BerfyTigot 🤣 It's for my boy's bed though...I feel like a crap mum as it is.

We had a delightfully dotty friend who claimed he could make his Y fronts last 6 days on camping trips. Day one normal gusset placement, day 2 rotate gusset to hip left side, day 3 rotate gusset to right side, turn inside out then repeat for days 4, 5 and 6. I THINK he was kidding us!

During house viewings I have made the bed fresh every time, but on viewings two days running the second day I just change the pillow cases.

It is so physically tiring @MewithME but I totally get it.

@TeaAndStrumpets thank you for making me chuckle today with your friend’s Y front story 😂 I do hope he was kidding!

@MewithME enjoy your nap and I hear you on changing the sheets. It's such an exhausting job and horrible when you know they desperately need doing! Can you rest today and make it first priority tomorrow maybe?

That's the plan @Hotbeverageplease 👍🏻

At least mine were done fairly recently! I just need to dig DSs out from all his soft toys. Bless him. He still loves them. I think it's an autistic thing. He a sweetie.

Didn't nap but have had a nice lie down. Started rewatching the Morning Show. I began the new season and couldn't remember what was going on 🙄

@TeaAndStrumpets I'm not that level yet... goodness me.

Just in bed, had toast and tea, considering getting up but sitting up in a chair triggers my shoulder and hips pain.

Had a migrane last night

( cfs & pregnancy)

We have cinema @ lunch time

Good morning everyone, hope Sunday is a day of rest for most of us. Friday was an absolutely rotten day, my little boy has VVS and blood is a trigger, we were about ready to leave the house for his therapy appointment (I'm his carer, ASD also) and I totally out of the blue took a nose bleed! Tried my hardest to hide it from him but he clocked it and down he went on the kitchen floor, so there is me attempting to protect his head from the tiles, stem the flow from my nose before he comes around, then physically carrying him to the sofa, then calling CAHM'S and cancelling the appointment with only 15 minutes notice 🙄 talk about stress.

So yesterday I made up for it by staying off my phone as much as possible, lots of reading, meditation, watching a documentary and just generally chilling out!

Sorry for all those suffering- migranes, nose bleeds and general fatigue.

Hoping for a reasonably quiet day today. Going to make a stew for this evening so will put it in the crock pot shortly 😋.

The thought of nice food gets me through the day.