What are you up to today if you have chronic illness part 2?

[MewithME]

Thread 1 here
https://www.mumsnet.com/talk/_chat/5332156-what-are-you-up-to-today-if-you-have-chronic-illness

Come join us for our ups and down and daily natter.

Oh @TeaAndStrumpets .. increasingly I think ahead about DS and him going to uni and things like that which will be beyond me.... And how sad I will feel that my exh will get to do those things (have to ..if I can't) but I will desperately want to do open days and help with a wedding or grandkids if I am lucky enough to have that.

I guess just have to take things as they come.

How sad that must have been for you xx

Still in bed here after getting up for several coffees, have MIL visiting laster for our usual trip out to the local charity shops, cafe and Co-op. That usually takes up the afternoon.

Hope you all have a good day x

I’m going to make the Mary berry chocolate cake tomorrow!

We have avoided the traitors, we are going to watch it with the kids but haven’t managed al far.

Ocado have been, I had to sit on the floor half way through and I could barely get it all in the fridge. But it’s done.

ds2 and I sat on the floor in the middle of all the shopping and tried the m&s Christmas chocolates by carefully peeling the seal open and then re-sealing it. I’m hoping it’s silly moments like that he remembers and not how knackered and unable to do things I am.

Yes pacing in mini doses, the satsuma one is a classic @MewithME !

I've been lying flat on the sofa all week and as usual feel as if I'll never get any energy back. It will come slowly, I know, but each time I have doubts.

I feel very isolated from the outside world so I LOVE hearing from others on this thread!

Luckily my DDs phone and tell me all their news. Younger DD gives me a blow by blow account of the baby's every nap and tooth, obviously I am very interested! Their dog is 14 today - also great, as the dog has been terminally ill for months. Just keeps plodding on. The baby adores her.
Older DD has finally got central heating after living without for two winters, she had to phone me to brag about wearing socks in her kitchen! Bliss.

Must admit I’m getting regular updates from my DD about the uni open day today and I’m definitely feeling it a bit not being able to be there. It’s also a long distance from home so if she loves it, I’m already thinking I won’t be able to do drop offs ect… I couldn’t with my eldest either as he was at a uni a good 5 hours away and it broke my heart tbh. But I’m going to focus on being excited for her and look forward to hearing all about it when she gets back.

This must be so hard. I bet your DD is so excited about it all, she will be talking about it for days after she gets back, so you will soon know everything!
Is it her first choice?

That will be a great memory! I think my kids mostly remember the daft things I do!

@TeaAndStrumpets totally understand about wondering if you’ll ever get back to your baseline, I’ve been the same lately but I try to remind myself I’ve been here before and it did slowly, gradually improve so it will happen again. Im finally having a better day and hopefully you will soon too 🤞

Lovely your DDs keep in touch with all their news and day to day updates. It really helps you feel part of the world even from the sofa!

Ive just given the dog a new toy that has kept her occupied for a good half an hour and now she’s conked out on my lap so rest time for us both!

@TeaAndStrumpets Its the one she liked the look of most online but has a couple of others to visit too so we’ll have to see. She’s being great at sending me pics and updates on what they're doing bless her so that’s lovely.

@Hotbeverageplease dogs are so funny. DD1's JRT is ferocious with his toys, they just get shredded. One time DD2 and her dog came to stay, and he stole a toy fluffy stoat from this other dog (and stole her food...not a good host!) It was easier to leave the stoat behind so he was allowed to keep it. Well that stoat has been ADORED. He hasn't chewed it at all. He brings it to show honoured visitors, then tucks it away in his basket. I mean, why??

Arghhh! @FurForksSake now you're teasing us! Wonder if i can persuade DH to make it for me 😁

Sadly i missed out on dropping both my kids in uni halls. I was gutted, but I really couldn't have managed it, and I didn't want them to be the kid with the disabled mum.

@BerfyTigot sorry you missed out on uni drop offs too, these milestones are so hard but yes it’s about them getting settled in and not worrying about us on top of that.
Thank goodness for FaceTime, WhatsApp ect so we still get to be part of it in some way.

DD has just gone back for year 3 at uni. I haven't done any drop offs or pick ups since beginning of year 2 when she moved into digs. She's stayed there this year so I'm thankful I can picture the house and her in it.

What makes me most sad is that I can't just nip up and see her under my own steam. It's only a couple of hours away and if I was well, and able to take myself, I'd be up there all the time!

Perhaps it's better I can't, no-one wants their mum gatecrashing all the time 😂

@Swanhilde I think it is that ‘ if I were well I could….’ train of thought that can be hard can’t it but you’re probably right they wouldnt want their mums just popping up randomly! 😂

Being able to visualise where they are is nice though and helps.

This morning was spent pottering around the garden, tidying up the borders. Became breathless so slowed down and sat with a cup of tea DH made. Violas will have to wait.

This afternoon in bed, long nap followed another cuppa.

I'm cooking today, so it's a Sainsbury's chicken pie and roasted broccoli - even I can bung that in the oven for half an hour!

Then a cozy evening in front of the telly watching Strictly 💃

Getting ready to go to my covid jab. Washed and dressed (sorry no shower today!) All clothes laid out last night to save wandering around. HR 130, oxygen 92. More normal after 5 minutes sitting. Next up hair and teeth. Another rest day looms!

I'm going swimming this morning. I need to exercise and that is about the only way I can do it comfortably.
I've spent the last couple of weeks planning and preparing for my retirement party. We're having a few of my work friends over for pizza etc. I'm very bad at socialising so I am both excited and anxious about it, but I have ordered the shopping for Monday, the party is on Tuesday so there will still be time to get things if anything is missing. My cleaner is coming on Monday. I have sorted out all the plages, glasses, cutlery etc. we will need. DH has made a play list for me. Everything is ready to go. It's all sorted so if I don't feel well I will just sit in a chair and let it all happen around me. DH can look after the pizzas and the drinks.

It’s ok @TeaAndStrumpets I’ve had a shower for the both of us.

today ds1 was going to go back to scout camp for the morning, but he’s too tired so sensibly cried off.

ds2 and I are going to refill the bird feeders and make a cake. I’m doing a slow roast beef so that can go in the oven shortly and pootle all day.

Today I'm taking the dog out for a 15 min walk. I've been looking forward to it for the last few days because it's somewhere I used to walk before I got ill.

But annoyingly I don't feel 100% today. Sometimes i can just push through and I don't have anything else i need to do today so I might risk it.

I've got a john lewis order to collect (new mattress protector) but that can wait till tomorrow.

@FurForksSake did you make that chocolate cake yesterday?

@DilemmaDelilah retirement? Whoop whoop... congratulations 🎉 Enjoy your party. Sounds lovely.

Hope you're ok after the jab @TeaAndStrumpets

Pootling sounds good. Pottering and pootling are our kind of verbs @FurForksSake

Anyone remember the Flumps? Pootle was my favourite. 😉

I've had a lovely long time in bed. I fell asleep very early last night. Woke a few times but I've had a good rest for me.

I've actually put the heating on though. It's foggy here and all chilly.

I'm dreaming of trees again but I'll have to get up and at em if I'm going to actually do it today. DS back at lunchtime and his friend is coming for lunch.

Think I will do Yorkshire puds. They'll be very happy 😊

DH is going out with DS (16) to a fleamarket which is quite a drive. When they were little they often used to go to these and come back with all sorts of random stuff. Now they are more discerning but still find odd stuff so will see what comes back later!

I was thinking of going but it is quite a drive and I don't get on so well in the car these days.

In bed with a hot water bottle and some pain meds as my tummy is sore today (adhesions) but glad of the cosiness.

Other DS is away at his girlfriends, so another day alone here, but I feel less lonely chatting to you all, online.

Sorry I am not up to quoting everyone / naming, but I think the pizza party sounds a good plan. Nice and simple

I wonder if we can get lower oxygen levels and higher heart rate with ME / CFS? if that is what is going on. Hope the jab goes OK, I have the flu one tomorrow. Not eligible for covid this time despite DH being immune suppressed. He got his though.

Dog walks and swimming sound good, not too OTT. I just cancelled this session at my gym where they want to do some kind of exercise plan with me, just going to stick to the swimming and pilates for now. That is enough.

And that is OK. I am having some chat from MIL about 'doing more' and people she 'admires. who do so much / are so busy' etc so trying to ignore it. As they say in mindfulness, we are human beings not human 'doings'

We are also planning on Yorkshire puds later, have some in the freezer ready.

Covid clinic was a shambles. It started late because of the fog. Then it transpired the afternoon session had been cancelled and everyone told to turn up this morning and we all queued despite having appointments booked, so first come first served. It was held in a dental clinic with 4 chairs in the waiting room so we were squashed in like sardines. I stood for 30 minutes til I got to the chairs! Kept doing all the jiggly tensing muscle tricks to keep the blood flowing. There were people with sticks and quite poorly looking as well as younger people. DH was the only man to refuse a chair but he is terribly polite about that sort of thing, opens doors etc.

As to the oxygen thing I had it very badly last year and ended up having a chest x ray but nothing found. I think it was caused by stress, physical and mental. I lost two brothers last year and I think my reserves of mental and physical energy got used up. Also swear I had covid twice but only tested positive once.

Anyway, back home with my favourite hot water bottle and a pot of tea incoming!

Thanks all, love hearing about what you're up to.

Day of rest here today, will be mostly spent in bed drinking tea.

I am slowly making an apple crumble in stages, which will be for tea following chicken soup and DH's homemade cheesy bread. After the effects of the disappointing chocolate biscuits and the NT scone, I am experimenting with amounts of sugar. Hopefully DH won't notice if I add plenty of mixed spice 🤞