What are you up to today if you have chronic illness?

[MewithME]

I do like the What are you doing today thread. But as someone with an energy limiting illness, I find myself marvelling at the level of activity that is beyond me.

Sometimes I feel sad about it even after accepting my illness for a few years now.

My week at work has been brutal and I'm feeling very weak and worn down. I am trying to find some inner peace.

This morning I managed a bath and ds helped when shopping arrived. I sat in the garden for a little while but newish neighbours were playing loud music which I found a bit stressful.

I've managed to put a wash on and made some lunch for us. I'm now in bed listening to some music festival in town floating on the breeze. There's sirens going off, so hope nothing bad has happened to anyone.

I'm going to lie down for a couple of hours. Hoping to watch a film with DS later. Pizza for dinner.

I found a nice new podcast called Shedunnit with lots of Agatha Christie in it which is up my street.

I may just lay here and listen to that for a while.

So if you have ME or LC or fibro or anything else that is a flipping funsucker of a thing to deal with, do share your little things. Our world is smaller but we are here.

I will add I know there are those worse off than I am, but not matter what we deal with, chronic illness is hard and it's hard to feel part of the world.

Awww I read them all as an adult in my twenties and they gave me great pleasure. I used to sit on Brighton beach during my lunch break. Bliss. You enjoy!

I read too many heavy books now. . And very slowly as my attention span is not what it was. I currently have one by George Monbiot on the go about Neolibralism which is very good but not a barrel of laughs. Maybe I should get my HP off the shelf 😁

Did 2 wash loads yesterday and put on the line; didn't bring in last night as I was exhausted so, of course, it rained overnight (rain was forecast later today but not overnight or I would have brought it in!) so, today I need to get it dried ready for school tomorrow.

Going to take kids to see MiL for a couple of hours then DH will hopefully cook later on - otherwise it will be roast chicken and salad and something else for kids. I will try to do little this afternoon apart from reading with kids and starting on their homework (only number work this week)

Migraines are awful. I've only ever had one but two good friends suffer. Hope it passes quickly.

Same as I do every day for four years since my medication was stopped. Lie in bed. Cry a lot deal with my declining relationship due to illness and scream in pain. No eating to brighten day. I now am fed via PEJ so. Great day enjoy everybody.

@Pasithean I'm so sorry for what you go through every day and wish I could say something that would help but I know platitudes are not helpful. I can only say I hear what you are saying and I am sorry.

When my neighbours are being loud I double up on loops earplugs plus noise cancelling headphones that I play nature sounds and birdsong into. It really helps to calm my nervous system down and helps me to relax. Might be worth a try? I think we can underestimate how exhausting noise can be!

Absolutely. That's an interesting idea! I have earbuds and not headphones. Might borrow DS's and give that a try. I haven't found loop that great. I have the experience pro ones.

Thanks for the suggestion. It was bliss when the event in town stopped at 9pm last night and the thumping bass finally quit!

Sitting somewhat uncomfortably checking through my diary of cancelled/rearranged appointments. Just realised that one rebooked for next week is for the wrong clinic (again) as a result of being sent to the wrong clinic last year. Trying to figure out if I will be able to speak to anyone sensible before the appointment. Hoping to sit in the garden later. I had 5 appointments in the diary for this year. Every single one has been cancelled and re booked at least once. An urgent one for a biopsy has been rebooked 3 times, each time as a phone appointment. I am very tired.

I think we're definitely on the same wavelength - thumping bass makes me have palpitations because it feels like the bass is my heartbeat. Awful. I love peace and quiet so much, I'm glad you got to experience some last night!

Peaceful in the garden right now. I've managed to put a wash on and lunch. I'll rest for 15 mins while it cooks. Watching the bees enjoy my unkempt and weed riddled 'lawn'.

@endofthelinefinally that sounds so frustrating and hard to manage. Hope all will be as well as it can be. Enjoy the garden if you can. Even a few minutes seems to help me, mentally at least.

I have osteoarthritis and disc issues. Today pain is around a 3 so I got up with my son for a couple hours then rested for a bit, I’m working my way through a series called parenthood. Then we got dressed and had lunch and we are going to the park as today’s a good day and the sun is shining. I’ll have another lay down after , do my physio and then wewill have tea, dh is making chilli.

Thank you.

Got through two 12 hour shifts. Today was hard work as having an MS flare. Going off sick is an absolute last resort though. So will power through. Got an MRI scan tomorrow. In an Asda car park apparently!

I have found my people!! I was chuffed with what I got done today, cleaned the toilet, made the bed, one load of laundry washed dried and returned upstairs (but of course not folded or put away, that's another days problem). Emptied and loaded the dishwasher. I read a lot today and had a bath too. Ready for another night of horrible sleep.

I'm severely disabled... physically ( sometimes wheelchair/ crutches/ stick) Fibromyalgia/ osteoarthritis and a host of other things.. but I'm lucky.. my sister drives.. we have been out for a 2 hour drive into the country.. stopped at a pub at side of the river for dinner...
I don't let it stop me doing many things.. I'm going on holiday next week with her .. a villa in Cyprus.
Life's for living it as best you can..
Okay l got home at 7 and straight into to bed to rest.. but it's so so worth it.

I managed to wash myself today and it feels wonderful.

Today has been quite a good day for me health wise. I have Myasthenia so it is very unpredictable.

I had a lie in till 10, then I did an online course for a couple of hours. Then DH and I went for a little dog walk in some woods but it was hot so I got tired after a couple of hundred metres. We had lunch at a pub by the river which was really nice. Then I rested this afternoon and did a little bit more of my course. We went on another dog walk and I took my electric wheelchair this time so we got a bit further! I rested this evening and DH made dinner

No children this evening so I made the most of it.

Had a shower, washed my hair, went to Aldi and the petrol station
made two nice meals for lunch and tea
sat in the garden for a bit
had a nap
job hunted - redundancy with health conditions is shit

Evening all. Went out with DH yesterday, so today was a bit of a write-off. Frustrating times at the moment, as I'm in one of my increasingly frequent spells where I can't drive, even for short distances. Opiates affect my thinking, meaning my shopping is much less efficient than usual, and I just want to nip down and get the bin bags or whatever, but it didn't happen. So what did I actually do? Um, one load of laundry, my hair, and cooked a few bits of veg to be put together for dinner. About to find out whether it's enough to get me some sleep.

Morning all. Happy ME awareness day to those in my club! Hope everyone managed some sleep. I had wild dreams so must have got into a decent deep sleep for a while. Working today. Feeling quite weak, but WFH today at least so will try hard to pace even though I have deadlines!

Today is a rest day. Doing the school run and then I plan to do nothing but read my book. In the middle of a flare up and not sleeping great it’s the damn weather going hot, cold, hot, cold causing a flare. :(

I am working today, I am lucky I can work from home. I dropped several rungs of the career ladder though to get a job I can manage around my health.

I had to go to the opticians this morning, and a lady came through the waiting room struggling to walk even with a stick. The lady next to me turned to me and made a comment about how lucky we are to have legs that work. I tried to explain to her that often my legs (in fact my whole body) doesn't work and I have to use an electric wheelchair but she looked like she struggled to believe me. I hope she didn't mind me correcting her but I felt that it was a good chance to talk about invisible disability

Another MS-er here. I'm in work or on training 6 days this week so it will be interesting to see how I am by the end of it. Hope your walking improves again soon ❤️ Mine is always terrible the last few weeks before treatment and tends to pick up again after. Are you due one soon?

I've been asleep all morning. Went back to bed after getting the kids out to school and woke up at 12.30. I'm considering going to the swimming pool to do 4 lengths.

I hate my stupid chronic illness life.