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What are you up to today if you have chronic illness?

980 replies

MewithME · 10/05/2025 14:02

I do like the What are you doing today thread. But as someone with an energy limiting illness, I find myself marvelling at the level of activity that is beyond me.

Sometimes I feel sad about it even after accepting my illness for a few years now.

My week at work has been brutal and I'm feeling very weak and worn down. I am trying to find some inner peace.

This morning I managed a bath and ds helped when shopping arrived. I sat in the garden for a little while but newish neighbours were playing loud music which I found a bit stressful.

I've managed to put a wash on and made some lunch for us. I'm now in bed listening to some music festival in town floating on the breeze. There's sirens going off, so hope nothing bad has happened to anyone.

I'm going to lie down for a couple of hours. Hoping to watch a film with DS later. Pizza for dinner.

I found a nice new podcast called Shedunnit with lots of Agatha Christie in it which is up my street.

I may just lay here and listen to that for a while.

So if you have ME or LC or fibro or anything else that is a flipping funsucker of a thing to deal with, do share your little things. Our world is smaller but we are here.

I will add I know there are those worse off than I am, but not matter what we deal with, chronic illness is hard and it's hard to feel part of the world.

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Stonewallslemon · 22/09/2025 16:38

Hi everyone I hope I can join you?
I have RA, currently flaring and I’m looking forward (!) to a rheumatology review later in the week and hopefully steroid intervention to calm things down. Currently it feels like pushing through concrete and I’m in what I call ‘ survival mode’ - managing the basics, trying to manage pain and trying to balance activity and rest.

It’s good to hear how everyone is doing and heartening when reading positive experiences. Hope everyone has a good evening.

MewithME · 22/09/2025 16:40

@Stonewallslemon join us on the new thread

https://www.mumsnet.com/talk/_chat/5406424-what-are-you-up-to-today-if-you-have-chronic-illness-part-2?utm_campaign=thread&utm_medium=app_share

: - )

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mbonfield · 06/10/2025 11:31

My wife has Chronic Stage 5 kidney disease and will require dialysis treatment in the next 12 months and I think that she is having memory issues.

The memory issue has been gradual but yesterday was a turning point.

How has anyone else coped?

MewithME · 08/10/2025 21:22

mbonfield · 06/10/2025 11:31

My wife has Chronic Stage 5 kidney disease and will require dialysis treatment in the next 12 months and I think that she is having memory issues.

The memory issue has been gradual but yesterday was a turning point.

How has anyone else coped?

Hello. Sorry you're finding things tough. We have a new thread. It is mainly those of us living with chronic illness sharing our daily trials and tribulations.

I'm afraid I don't know much about your wife's issue but someone might. You're welcome to chat with us of course just for general support but might be useful to start your own thread if you need more specific advice from people and carers dealing with the same thing?

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