What are you up to today if you have chronic illness?

[MewithME]

I do like the What are you doing today thread. But as someone with an energy limiting illness, I find myself marvelling at the level of activity that is beyond me.

Sometimes I feel sad about it even after accepting my illness for a few years now.

My week at work has been brutal and I'm feeling very weak and worn down. I am trying to find some inner peace.

This morning I managed a bath and ds helped when shopping arrived. I sat in the garden for a little while but newish neighbours were playing loud music which I found a bit stressful.

I've managed to put a wash on and made some lunch for us. I'm now in bed listening to some music festival in town floating on the breeze. There's sirens going off, so hope nothing bad has happened to anyone.

I'm going to lie down for a couple of hours. Hoping to watch a film with DS later. Pizza for dinner.

I found a nice new podcast called Shedunnit with lots of Agatha Christie in it which is up my street.

I may just lay here and listen to that for a while.

So if you have ME or LC or fibro or anything else that is a flipping funsucker of a thing to deal with, do share your little things. Our world is smaller but we are here.

I will add I know there are those worse off than I am, but not matter what we deal with, chronic illness is hard and it's hard to feel part of the world.

I had a really busy day yesterday so today I’ve been both exhausted and in pain. I slept for the morning, and I’ve just been out with my mother for some errands (she drives, I don’t). Now I’m home I’ll likely have another nap and then watch television for the evening, honestly. I’m meeting up with some friends tomorrow for a local event and I need my energy back for that.

I would love that cauliflower recipe please @ShinySquirrel

I’ve watered the glasshouse and tunnels, checked the sheep, done a tiny bit of weeding and sat with the dogs in the garden but now I am tired but wired lying down and can’t switch off to rest properly.

It does seem harder when the weather is so nice and so much needs doing.

Aw @Stuckinhospital that sounds tough. Have you got a book with you or some good headphones?

Well, my rest got dramatically interrupted as DS has a phone issue. I expect I'll be setting up a new one tomorrow. Last time it took hours and caused no end of stress. I hate it.

I was out at a music event last night. Slept until 11.30. Cleaned kitchen. Made healthy lunch. About to nap again. Did make an effort to sit outside. But largely am exhausted today - I'm on an immunosuppressant, don't want to say what for as it's so rare will be outing. But this is how it goes sometimes.

It's annoying as I know if I lost weight and was fitter I'd feel better. Bit it's so hard to get into a consistent exercise routine.

I have stage 3 cancer and going through cancer treatment. Today has actually been a really good day (they are hit and miss really). Got up, had coffee and breakfast, put wash on, fed my chickens, children sorted themselves with some shouting, packed for day out.

Then we went for a day at the beach, had a picnic lunch and ice cream, I went for a swim. Then came home and now sitting in the garden, did some watering and sorting of plants. Kids playing. We’re having a BBQ later, I don’t need to do any of the cooking.

Evenings once the kids are getting in the shower, I take myself to bed and everyone comes to me for bedtime 😂 because I’m done. I often have both of them in with me and Dh puts them back in their rooms when he comes to bed.

It’s quite typical though that I need to go lie down in bed for a few hours most days. Sometimes because I’m tired. Other times because I get really cold (treatment side effect, I have a heated blanket). Today has been a good day because I haven’t had to take myself to bed yet.

I’m on the sofa - did some work - then back in bed - I did however enjoy the smell of bbqs coming through the window

currently on the sofa - you are not alone - I agree I feel sad being inside on such a lovely day

Today has been a bed day for me (long term cancer treatment and am low energy for a few days after each). DH is at the rugby so I’ve been creating & scheduling social media content for work - have covered all next week so that will free some time up for me when my energy is back! Also did an online shop and bought ingredients to make Ramen for dinner tonight - super quick but feels fancy, and some brunch & dinner ingredients for tomorrow.

So lazy, but productive enough that I don’t feel too bad about it 🙂

Lovely thread.

got up about 10. No bath as too much effort.

i have a garden sofa so I sat out there and then repotted three basil plants.

ate hummus and bread for lunch then a 2 hour nap.

currently mums netting and thinking about making dinner - packet ravioli and sauce.

it was a good nap.

I've got lupus and RA, they had been behaving themselves for a while too but I've been in bed for nearly a week with flu 😔

Next weekend I need to drive 5 hours to see family, so fingers crossed.

I’ve got MS. I’m on a 12 hour shift as a paediatric nurse. Another one tomorrow. Not walking well today. But I’ll get through it.

I’ve done faaaaaarrr too much today 🫠 this week has been full on too but already in bed and getting the guilts over the outstanding to do list 😬

Went for a short walk around the local folk festival and DH drove us out to M&S Food to grab a joint for a roast tomorrow. Now laying in bed watching Criminal Minds as my knees are playing up.

I have arthritis in numerous places so limited mobility. I do like to sit in the garden with a cuppa and listen to the birds as much as possible. My son went shopping for me and we both cooked lunch. Sending gentle hugs to anyone else who needs them 🫂💐🙏❤️

Don't feel guilty. Listen to your body.

I've not had enough rest and not done enough either. Still, I did get my film with my Ds which was nice. He's my star. As hard as life can be with him as a single mum, he's just a lovely lad and he's been so kind to me today. I'm grateful.

@FNDandme you can only do so much. If you need to rest, rest. Sending hugs x

@ohmondew hope you will manage. I know it's hard when there's a big thing coming. Keep resting and storing the energy if you can.

@CosmicCuppa flipping knees! Mine are rubbish just now. I used glucosamine patches. They really help. Makes me smell weird though 😂

I have fibromyalgia and I'm finally having some good days after several months of bad days.

I managed to cook a meal and take the dog out (drove to a field and sat in bench). Also took some clothes to clothing bank.

Absolutely shattered now, despite an afternoon nap, but feeling really positive about having achieved a few things.

I also like reading the what are you doing today threads and am in awe at what people achieve!

I have ME.

Yesterday I spent the morning reading outside, then came in for a nap when it got too hot and loud out there (neighbours mowing lawns and yelling). In the late afternoon I managed a woodland walk with my husband which was the first time since I had covid and severely lowered my baseline last year. I had a lovely day but am definitely feeling it today!

I have EDS/FIbro/chronic migraine/endo/ etc etc.

Worked full time this week, signed up for new allotment yesterday, massive monthly supermarket shop, did tea etc yesterday.

Woke in the night with a migraine and so now on sofa in PJ's instead of going to big sporting fixture with DH and friends. Sad but for the best (though stuck at home with DCs revising for GCSEs and A levels)

@Stuckinhospital am guessing you may be an IBD warrior
Huge sympathies and sorry you are a bit alone
To everyone with a chronic health condition you have my huge love.
I would not have grasped how debilitating it is until my own DC got a diagnosis.
Trying to support them through end of school exams currently and watching them try to manage limited resources and being at the whim of a condition that fluctuates daily is tough but nowhere near as tough as having the condition

Aw, sometimes it is so worth it. I miss nature. I feel so grateful when I manage a walk somewhere lovely.

Yay, I have found my tribe!! 😃 As well as my username condition, I have various other things going on plus neurodivergency in the mix 🥴.

Am currently slowly coming out of a flare up. About to visit a local farm place for some cute animal petting with my children (also ND so very draining to go out with) and then will chill this afternoon with a brew and trying to make some progress with my pile of books (for work and pleasure). I just picked up the 5th Harry Potter book from the library. It's 800 pages!!! 😱 Xx

Today I woke early and felt shockingly weak and really quite weird. I'm slowly coming round but my symptoms are increasing just now.

I will make an effort to get back on my vitamin regimen. I do think it helps a bit.

Today's plan was sorting a new phone for DS which I am dreading but it's not going to be in stock until tomorrow so I feel somewhat relieved. I will empty the washing machine and put another on. I'm counting down until I don't have school uniform to do anymore! Another two years!

Will Try and get the robot vac on. Do a Sunday lunch (ready bought York puds....I always home make them but they looked ok so thought I'd try) bit later.

Will try and rest and read if I can today. The neighbours' noise is better than yesterday so far. Just dogs yapping and the sound of strimming.

If I have the energy later, I will ring my Mum.

Hope @Stuckinhospital you managed some sleep. Hospitals are the worst place to get rest!

Lying in bed having had to cancel my plans to be at a choir rehearsal all day. Bastarding migraines. My triptans have kicked in enough that I can have a lamp on and use my phone, but I'm not fit to move anywhere yet.