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Why are accommodations for autistic people often seen as unfair?

649 replies

YourPoisedFinch · 19/02/2025 09:39

In my last job, I received some accommodations and explained them to colleagues when they asked why I was coming in late. Instead of understanding, they accused me of fraud and faking my condition to get special treatment. This isn’t just my experience—many people with mental health conditions and other invisible disabilities face similar challenges. They’re either not believed and resented for receiving accommodations or believed but then negatively stereotyped.

OP posts:
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ladyamy · 19/02/2025 19:24

how on earth can having autism mean you’re late? this is getting ridiculous now

Wildflowers99 · 19/02/2025 19:25

WinterBones · 19/02/2025 19:22

what you have to remember is that for all the main kinds of ND diagnosis there is a set criteria, a minimum thresh hold that you have to meet to get a diagnosis.

I have been through both as an adult for myself, and as a spectator/mum for both my kids.

All 3 of us have AuDHD, but all 3 of us are very differently affected, but we ALL meet the threshold for diagnosis.

My son is the most significantly affected, he also has Dyspraxia and an eating disorder because of it... he has higher rate PIP, needs full time care, despite seemingly intelligent to talk to (if he'd talk to you, he's selectively mute with strangers).

My daugher is Demand Avoidant, but very animated, chatty, and her ADHD hyperactive brain is horrendous.

My Autism is quieter, i have more sensory issues, my adhd is inattentive, but i will monologue on favourite subjects.. which i switch regularly XD, i've never held a job down, have had more therapy than i care to mention to help me cope with crippling anxiety and am a functional depressive with a caffeine problem (dopamine seeking) i tried medicating my ADHD and my Autism took the wheel and turned me in an unstable wreck.

The each have their criteria, they need to have been present from childhood, and impact your life significantly.

The fact society likes to self diagnose is watering down the impact of the diagnosis. the fact women who weren't diagnosed as kids because the criteria was based on male presentation means there is a surge in women and girls being diagnosed, its making people think 'everyone' has it. They don't.

if you don't meet the threshold, you don't get a diagnosis, its that simple, and they criteria are not a low bar.

Is a caffeine addiction ‘dopamine seeking’? Would that even be part of the criteria?

AnotherMiranda · 19/02/2025 19:27

cockywoof · 19/02/2025 19:02

But these threads always go this way. Apparently everyone's autistic now because it's so easy to get a diagnosis. Said by people with absolutely no idea what an autism diagnosis involves.

People who have never completed a referral to CAMHS.
People who have never waited three years for a diagnostic appointment.
People who have never had to apply for EHCPs or go through tribunals.
People who have never watched undiagnosed teenagers self-harm or withdraw into themselves, away from school.
People who have never had to call paramedics after an unexpected overdose in the middle of the school day.
People who have never read anything about neurodivergence except in the Daily Mail.
People who have never had to convince a 40-something autistic person that they have a right to be alive despite their multiple failed jobs.
People who think it’s a phase, or a trend, or that everyone’s a little bit autistic.
People whose neighbour’s cousin’s stepdaughter supposedly has ADHD but she’s just doing it to get benefits.
Experts. all of them.

Digdongdoo · 19/02/2025 19:29

I suppose though, you being an hour late every day might mean colleagues fall behind waiting for you, and end up working late themselves. This would not be fair and management should be mitigating it somehow. Absolutely not ok for colleagues to have a go at you.

WinterBones · 19/02/2025 19:30

Wildflowers99 · 19/02/2025 19:25

Is a caffeine addiction ‘dopamine seeking’? Would that even be part of the criteria?

low dopamine is one of the things with ADHD, this is a known fact, its required for a brain to function.

caffeine is a stimulant, it works similarly to how ADHD meds work (also stimulant) in that it allows the dopamine to do its job rather than just not working/not being there (i forget the exact thing rn, i'm tired due to physical disability) so for me, i drink coffee as it helps fire my brain into being able to focus on stuff better.

Dopamine deficiency is behind a lot of the addictive behaviours of people with ADHD. they seek a 'high' and that can be chemical (drugs/alcohol) or pleasure (sex, physical thrill, fun hobbies, new obsessions, sugar/food).

ERthree · 19/02/2025 19:31

Being disabled myself i understand the need for adjustments. What i don't think is fair is when others have to pick up the slack, work longer and harder for the same pay to cover those that need adjustments. It has to be fair on everyone.

Jimmyneutronsforehead · 19/02/2025 19:33

GreatTiming · 19/02/2025 17:35

Sorry, what does NT stand for? I meant to say ND. I feel like almost everyone meets the standard for ND at this point.

Neurodivergent is things like autism, adhd, dyslexia, dyspraxia etc. NT means neurotypical, so they have a brain that developed typically. Doesn't mean they won't have struggles, but their brain developed typically and so their disabilities and struggles aren't due to a neurodevelopmental disorder.

CassandraWebb · 19/02/2025 19:33

2021x · 19/02/2025 19:03

To be clear the term neurodivergent has no actual value. Everyone has differences with the way their neurology operates but it’s mostly within the range of normal.

When it falls out of the range of normal it therefore dysfunctional and that is when people are unable to participate in society, and require extra accommodations. These people are called neuro-atypical and are extremely easy to spot.

Most of the people I have met go “to be diagnosed” which isn’t how diagnosis works. There is an industry now telling people that if they are average it means they are disabled. It’s very seductive to think that you are special and people just need to swim around you, and that’s why your are not happy and successful.

My mother was obsessed with the fact that she was dyslexic as the only reason she could pass exams. She got tested when she was in her 50’s and they said her IQ was 140. My mother is not a genius with mild learning disability. In reality she is an averagely intelligent woman whose father thought women were only good for marriage and making babies and didn’t pay attention to her education.

If you are struggling, the onus is on you not society to manage your life in a way that means you are able contribute. If you hate the crowds you could actually come in earlier, lots of people in my office do it because they also hate crowds and it is their preference.

Edited

An IQ test is not a dyslexia diagnosis.
People with dyslexia can be positioned anywhere on the IQ scale. It is easier to mask if you are highly intelligent though

Barrenfieldoffucks · 19/02/2025 19:34

WinterBones · 19/02/2025 19:30

low dopamine is one of the things with ADHD, this is a known fact, its required for a brain to function.

caffeine is a stimulant, it works similarly to how ADHD meds work (also stimulant) in that it allows the dopamine to do its job rather than just not working/not being there (i forget the exact thing rn, i'm tired due to physical disability) so for me, i drink coffee as it helps fire my brain into being able to focus on stuff better.

Dopamine deficiency is behind a lot of the addictive behaviours of people with ADHD. they seek a 'high' and that can be chemical (drugs/alcohol) or pleasure (sex, physical thrill, fun hobbies, new obsessions, sugar/food).

Agreed. In actual fact many people with ADHD find caffeine calming, as the way it hits the brain gives it what it needs. So traditional 'caffeine addiction ' wouldn't apply for them necessarily as it doesn't give them energy! Opposite for me for example, a cup of tea before bed helps me sleep, and a cup of coffee in the morning calms me so I can start work without my brain flipping out. I can't even explain what the flipping out looks or feels like, luckily my GP recognised it for what it was and referred me.

cockywoof · 19/02/2025 19:37

satsumaqueen · 19/02/2025 19:19

Surely a reasonable adjustment is done within working hours though and doesn’t cover commuting time?

For me a reasonable adjustment would be something like if the whole office shuts down for lunch at 12 but the OP struggles to take a break because there are too many people, the company allowing the OP to take her lunch at a different time to everyone else would be a reasonable adjustment.

Flexible start and end times are reasonable adjustments, but this would mean arriving later and finishing later to avoid peak travel time or getting paid less for working less hours. I haven’t read the whole thread has the OP replied and said whether she is getting paid the same for less hours worked?

OP has confirmed she works 10-6 rather than 9-5

But I find it amazing on this page that apparently everyone is in the type of job that you get paid exactly the same hourly rate as all of your colleagues. I've actually never worked in a job where there was the case - I know they exist (my DH has often worked in the type of job where everyone at the same grade has the same pay) but it is odd to me that there's an assumption that's the case. Even if OP was working one hour less a day, why the assumption that means she's getting paid more an hour than Bob who just threatened to leave and got a big pay rise to stay? I've worked on teams where there's more than a 15% pay discrepancy, and not always based on merit.

Wildflowers99 · 19/02/2025 19:38

Barrenfieldoffucks · 19/02/2025 19:34

Agreed. In actual fact many people with ADHD find caffeine calming, as the way it hits the brain gives it what it needs. So traditional 'caffeine addiction ' wouldn't apply for them necessarily as it doesn't give them energy! Opposite for me for example, a cup of tea before bed helps me sleep, and a cup of coffee in the morning calms me so I can start work without my brain flipping out. I can't even explain what the flipping out looks or feels like, luckily my GP recognised it for what it was and referred me.

I thought most people focus better after a good cup of coffee!

Barrenfieldoffucks · 19/02/2025 19:39

But for different reasons! It doesn't wake me up, or give me energy, it calms me down.

Barrenfieldoffucks · 19/02/2025 19:39

And it isn't a diagnostic tool for ADHD anyway so...

BlondiePortz · 19/02/2025 19:40

So you come in late and finish late? Great you work the same hours get paid the same and do the same amount of work?

Yes that could be accomodated

AnotherMiranda · 19/02/2025 19:40

CucumberBagel · 19/02/2025 18:57

Because many NTs are obsessed with the idea that someone out there might be getting something they're not. It keeps them up at night.

They can’t stand it when someone works 10-6 instead of 9-5 and they don’t want their taxes to pay to feed, house and clothe people who can’t work 9-5 in a workplace full of small-minded, judgemental autism experts.

cockywoof · 19/02/2025 19:41

Barrenfieldoffucks · 19/02/2025 19:39

But for different reasons! It doesn't wake me up, or give me energy, it calms me down.

It was actually reading about the caffeine that made me suddenly click I might have ADHD as well as autism. I went 'ooooh' as I headed for my third red bull on a particularly stressful day.

I hadn't realised despite a DH and DS with ADHD because they present so differently because they're not AuDHD.

cockywoof · 19/02/2025 19:43

cockywoof · 19/02/2025 19:41

It was actually reading about the caffeine that made me suddenly click I might have ADHD as well as autism. I went 'ooooh' as I headed for my third red bull on a particularly stressful day.

I hadn't realised despite a DH and DS with ADHD because they present so differently because they're not AuDHD.

But I should say when I last checked, the scientific position on caffeine and ADHD is mixed - I don't think it's been fully proven to be a real thing rather than just anecdotal evidence/confirmation bias.

Barrenfieldoffucks · 19/02/2025 19:43

cockywoof · 19/02/2025 19:41

It was actually reading about the caffeine that made me suddenly click I might have ADHD as well as autism. I went 'ooooh' as I headed for my third red bull on a particularly stressful day.

I hadn't realised despite a DH and DS with ADHD because they present so differently because they're not AuDHD.

Absolutely. I used to work as a 1-1 TA with a a child with AUDHD. He couldn't handle caffeine in any way shape or form, his parents even had to be careful with chocolate. Yet another student of the same age was allowed an energy drink before school every day because of how calming he found it! 😂

CassandraWebb · 19/02/2025 19:44

AnotherMiranda · 19/02/2025 19:40

They can’t stand it when someone works 10-6 instead of 9-5 and they don’t want their taxes to pay to feed, house and clothe people who can’t work 9-5 in a workplace full of small-minded, judgemental autism experts.

But if one member of the team can work flexibly why not extend it to all? I let all my team work flexibly, they didn't have to have a reason.

WinterBones · 19/02/2025 19:44

Wildflowers99 · 19/02/2025 19:38

I thought most people focus better after a good cup of coffee!

NT people tend to focus because it wakes them up, gets the brain going a bit better, working faster...etc gives them an energy boost.

In ADHD it has the opposite effect, its stops the brain zooming/bouncing off its own walls like a hyper toddler, and allows it to function in a straight line.. its also quite likely to send us to sleep.

But its not diagnostic, thats just a noted difference in how caffeine/adhd interacts.

AnotherMiranda · 19/02/2025 19:45

CassandraWebb · 19/02/2025 19:44

But if one member of the team can work flexibly why not extend it to all? I let all my team work flexibly, they didn't have to have a reason.

Great, that’s good management.

2021x · 19/02/2025 19:45

DoggoQuestions · 19/02/2025 18:45

Fair doesn't mean treating everyone the same.

Equality Vs Equity

You are missing the point of this diagram.

The final picture is the fence removed… which is something that affects all 3 people equally.

Jimmyneutronsforehead · 19/02/2025 19:47

ladyamy · 19/02/2025 19:24

how on earth can having autism mean you’re late? this is getting ridiculous now

Go on. Think for a few minutes.

cockywoof · 19/02/2025 19:47

CassandraWebb · 19/02/2025 19:44

But if one member of the team can work flexibly why not extend it to all? I let all my team work flexibly, they didn't have to have a reason.

Well of course. But why blame the disabled person because the employer will only be flexible if forced to do so by law? The fact that the employer isn't flexible isn't anything to do with OP.

CassandraWebb · 19/02/2025 19:49

cockywoof · 19/02/2025 19:47

Well of course. But why blame the disabled person because the employer will only be flexible if forced to do so by law? The fact that the employer isn't flexible isn't anything to do with OP.

Oh quite, and that would be the better point for her colleagues to focus on