Ffs this thread is a bloody depressing read. My daughter has ASD with PDA profile.
it would really help if everyone understood more about PDA and reframed it as a nervous system disability, where individuals (through no fault of their own) perceive orders, requests etc an assault on their autonomy and can go into fight or flight mode, so the easiest thing to do is shut down and avoid requests.
with all of that in mind, let’s now go back and reframe it again as a communication challenge. If I ask my daughter to brush her teeth she won’t do it “because I’ve asked her to do it”, and that’s me asserting authority over her / taking away her autonomy.
Since I understand her PDA, instead of asking her to brush her teeth, I might say something like “would you mind checking that there are some clean towels in the bathroom while you’re brushing your teeth?”. And off she goes.
is this a pain in the backside? Yes. Does it take some time to consider how I communicate with my child? Yes. Does it make the relationship challenging? Yes. Am I worried about how she will engage in adult relationships? Yes.
However, all I can hope is that she meets someone who loves her enough to want to learn her language and communicate with her in a way which works for her.
she’s not a bad person; she’s just got a nervous system disability which affects how she gets through the day so seems overly stubborn.
she is also super intelligent, very sociable, in a mainstream school and doing really well.
sharing a PDA diagnosis can’t be easy, so the best thing to do is take some time to properly understand it and work out if this is something you can live with.