Ds, 19, what are these symptoms??

[medianewbie]

Violent vomiting for hours overnight so thought just bad dose of D&V. But very sore chest. Sore neck (glands like 2 hardboiled eggs). No temp but shivery.
Pale, clammy, massive headache not resolving with ibuprofen / paracetamol. Any ideas what it might be (covid?)
We are due on hols in 12 days (1st flight ever) & would really like him well.

sorry your ds is so unwell.

hopefully you can rebook the holiday once he's better (might help recovery).

keeping fingers crossed for his recovery.

Great news and also not great news.

So sorry this is happening OP.

I’m so sorry to hear that but so relieved that they are moving him and doing all the necessary tests. This is the worst of it.
The HDU a will be lovely compared to where you are, you will get answers and a treatment and hopefully will be able to go home soon.

You are doing a great job, have done everything perfectly and keep going now you are nearly there.

Thinking of you both and sending good wishes from Ireland x

Does the hospital know he is ASD? Obviously you’re right not to have mentioned the anxiety but they should be able to do as much as possible to minimise the sensory overload in the ward.

I am also ASD and was in hospital for a fortnight last year (sepsis). I was ill enough that I had a private room for all but the last night and I have no doubt I would have taken longer to recover if I was on a busy ward. Hopefully the HDU will be quieter.

Are you able to rest and eat yourself? Are the hospital offering you any food?

@Silviasilvertoes - Scottish schools are now on their summer holidays so that's both a blessing (not that we get fined for non-attendance up here) as it's once less thing to worry about and a hindrance, in that the support isn't so readily available.

I forget Scotland terms are different. Would SS be any use? They supported a single parent friend of mine a couple of years ago when she had a child in hospital with meningitis.

I've been thinking of you the past couple days since I first saw the thread and I keep coming back to check on it. Stay strong and keep us updated. Hope you're feeding yourself, getting whatever rest you can and are OK x

Re Dd. I went home last teatime & overnight & she's fine. Fortunately my friend is now available & dd gets on with her so she will cook for her, keep her company & they can eat & walk her dogs together which Dd will love.

Dd will be 17 in a few days. She is also Autistic but much more independent. However she also needs time & care esp as she's worried about her brother. I'm glad she's got my friend now.

Oh that’s good news.

OP I am sorry to hear you ds is still unwell but thankful they have a working diagnosis now which will get him the right treatment. Really feel for you.

Glad he has been seen & plan made - at least you work around it all.

I’m so pleased you’re getting answers and ds is getting good tests and treatment now OP. Good news too about your dd. Wishing you all well.

ps .. assume you have holiday insurance in place? So at least you can claim for this holiday and maybe go on another one later in the year.

Hang in there. So glad ( but not glad) you are getting to bottom of problem and not in limbo land anymore.. now cardio are on it hopefully things will move much faster and smoother. Not now but you might find it useful to contact your local cardiac charity- there are quite a few excellent ones with amazing families who support each other and parents… hope you have a peaceful day

I’m glad they are taking it seriously and it sounds like your DS will be better off in HDU than on a general ward, hopefully less stressful and easier for you.

it is inconceivable to me that your STBX isn’t fully on board with being involved, regardless of your marital status they’re still his children. I’m very glad you’ve got a friend for support.

I wish you and your son all the best and that they find a treatment to get him better asap. Will be thinking of you x

I've been thinking about you and following the thread.

I know of someone who had this health issue from the astrazenica jab - not antivax - he had Pfizer for his remaining jabs, once he recovered ....it was confirmed by his consultant that the astra jab caused the heart problem

It was quite a prolonged recovery (months) but he made a 100% recovery and all is now well

Sending you, DS and DD lots of love ❤️

They can give him meds for his nausea
He needs to drink otherwise he will die - Im not trying to scare you, but if his not drinking and not peeing this will make his kidneys fail and he will have a whole lot of organs start to fail within days!
You need to make the staff aware of this NOW

They couldn't do the Cardiac MRI.
Ds was incredibly upset & they couldn't get the cannula in.
It took the Dr, me & a nurse holding him & he was screaming.
It was beyond awful & by the time they gave him (more) oral sedatives there was no longer a slot to do the scan today & they are saying no scan slot now available until Friday now (plus the results will take 3/4 days)
It was completely not their fault that they couldn't site the cannula but also Ds is not really coping now & had a major panic attack, and all for nothing re scan (the time of which got changed 4 time during the day which didn't help matters much)
They plan to keep him on 'preventative meds' & hopefully get it done on Friday.

I am in a small hospital in rural Scotland. I did ask if he could have the scan in Edinburgh or Glasgow but they said it would'nt speed things up - I don't see how this can be the case??? An argument for keeping hiim here is that they only have 4 cardiac patients so can get to know them & keep an eye on them, plus close to home makes it easy for me to visit him but he needs this scan now.

They also said that normally a Cardiac MRI is outpatient but they want to keep him in. Once he's had the scan he can maybe go home until the results.
Also that they have changed their mind about doing the pulmonary embolism one again. They want to do the MRI first & see if it needs doing after?)

I think I've reached the stage where I am using this thread as a notebook sorry but if anyone has any comments on whether I should push for a 'big city' scan I'd be glad of them.

I’ve no advice but a handhold from me x

You’re unlikely to get one before Friday tbh in an NHS hospital, or even if you went privately. I’d let sleeping dogs lie. He’s in hospital they can keep an eye on him.

The only obvious reason for discharging him and starting again elsewhere is if you feel the care is suboptimal or he is deteriorating.

Unfortunately all the big hospitals will be chok-a-block with their own patients waiting an MRI. You won't get one sooner than Friday in a big hospital, I'm afraid.

It sounds really hard on you all at the minute, hang on in there.

You might find a cancelled slot comes up before that.

It’s probably because he is so dehydrated that they couldn’t get the line in. Keep pushing the fluids, this is what will get him.

Im sorry and hope you get some answers soon.

Having been a patient (post vax, so may be different) I would try to find out if any of the major hospitals have specialists. Then whether he can be transferred or if there can at least be liaison.

MRI important. Ask about colchicine and steroids. Also ACE inhibitors. I was just a patient, so no medicals background hence just to ask as I do not know what best practice is in other cases.

Best wishes. Rest after getting out is very important. As are follow up MRIs to be sure inflammation has gone. Plus I would really want to know what caused it to try and avoid recurrence.

Sending best wishes.