Ds, 19, what are these symptoms??

[medianewbie]

Violent vomiting for hours overnight so thought just bad dose of D&V. But very sore chest. Sore neck (glands like 2 hardboiled eggs). No temp but shivery.
Pale, clammy, massive headache not resolving with ibuprofen / paracetamol. Any ideas what it might be (covid?)
We are due on hols in 12 days (1st flight ever) & would really like him well.

Um. I’ll wait for the apology from you when you look back and see that I have not responded anything to you before my recent post.

I was actually trying to make you feel better by explaining the mistake you had made! I was actually trying to be kind.

You’re welcome!

You’ve really offended me @llizzie I am a very kind person and I hate being accused of something I haven’t done.

Perhaps you might benefit from reading posts a bit more carefully.

Pretty certain op originally said ecg was normal? So this means left ventricular ejection fraction was in normal range.

I had glandular fever at uni start/ post viral fatigue. I phoned the uni a week before starting and deferred a year. This was 25 years ago, but very easy. It was a good decision as I tried various industries in my gap year, working in london etc and meant when I started uni, I kept with my course. It was a very difficult course, but I knew I didn't want any alternatives.

Ejection fraction is measured by echo or cardiac MRI, not ECG, although obviously having a normal ECG is positive!

From the OP's posts, her DS did have reduced ejection fraction when first admitted ('moderate LVSD') which then improved ('mild LVSD') and according to the letter following the MRI his heart function is now normal, which I would take to mean ejection fraction has returned to the normal range.

@llizzie

wow ! for a devout Christian, you are coming across very aggressive when it is you that has not read/understood the original post !

So I am an idiot. Must be the weather. Better not read what I say any more,

I am sorry you feel that a Christian should not try to defend themselves. I spoke as I felt. Did I harm you? Did something I say cause you distress?

A Christian has every right to stick up for themselves against people who are so pleased when they can point out to someone how stupid they are, which can only be intended to humiliate, otherwise, why not send a private message?

If I had received it in a private message, I would have responded in a private message, telling the messenger how thankful I am to him/her for not shaming me in public. Unfortunately that person chose to humiliate and offend.

Since it was posted in public, I responded to it in public.

Absolutely right, especially when it is unclear that the thread is not referring to the OP but to the son.

It has led to me being humiliated by people who take great delight in doing so. I did not notice it was not the OP but the son.

It has become ridiculous.

@llizzie

WOW ! well you've managed to offend at least 2 people on this thread and you call yourself a Christian - or is that just an excuse for ignorance / rudeness / entitlement ...

Your attitude on this thread does not come across very ' Christian ' at all to me.

You would do so much better to read all the replies by the Op then you may understand what she and her son have gone through the past few weeks !

stop making excuses for yourself - which bit of

'Ds, 19, what are these symptoms?? '

caused you difficulty in understanding

I’m case anybody is wondering, I haven’t received a personal message from @llizzie to apologise for incorrectly accusing me of being unkind and posting lots of unpleasant comments to her. Go figure.

Don’t want to derail the thread, so I won’t bother with @llizzie again.

Please: I don't want the thread taken down. I've not had chance yet, but I'm going to save it & one day show it to my son so he can see how many folk were rooting for him & making kind & helpful posts. Its a long old thread now but Every post has been helpful as it has made me feel less alone. Some have also given personal experiences of similar heart issue /recovery which has been really encouraging. Some have given advice on how to deal with intricacies of NHS / what to ask Consultant. This has all helped me a great deal. Which helps my son.
I believe everyone is posting here with good intentions. Let's not fall out x

How is he now @medianewbie ?

He's really tired still (but that could be the betablocker). We see GP Monday at 8.30am for two fasting cholesterol & inflammatory marker blood tests. I"ll ask then about his continuing low level central chest pain as he's fretting. If no joy I'm going to look elsewhere as I don't want him worrying for another month.

@bluecomputerscreen I think I'd rather have taken my chances and risked it as the vaccine has completely rocked my world these past 3.5 years

@medianewbie I wanted to say I'm thinking if you, your son and daughter. As a mother of a special needs adult who can't advocate for himself I've been where you are many, many times. I've had privileged experience here in the US as I've never had to postpone or wait eons for an MRI or CT for my boy (or myself.) I can't imagine the amount of extra stress that's causing you. 3.5 years ago I had the second Pfizer vaccine and my first symptoms was fever and pericarditis. Quite soon after thyroiditis, vasculitis, diabetes, rash, fevers, elevated liver enzymes, fatigue, memory problems. This isn't all the issues I've experienced but it's been crippling. My doctors finally figured out appropriate Rx regimen of five cardiac medications to keep my heart in correct rate and rhythm. I don't know if your son has post covid syndrome or a reaction to vaccine but it's possible.,wishing all of you wellness and peace

Are you acfually seeing a GP for the tests? Blood tests are usually done by the nurse/phlebotomist.

I linked to a company above that do cheap MRI scans across the country including Edinburgh and Glasgow. It’s very quick to get an appt, or at least it is in London, no reason why Edinburgh should be any different. You don’t need a referral. If at any point you want the reassurance of another MRI that is an option.

I think op is fairly rural, I’m in rural Scotland too and the gp does my bloods as the nurse is a travelling one between lots of different surgeries, so might be the gp.

Just catching up on this thread- wish I’d seen it sooner.
my son (18) developed identical symptoms out the blue one night, blue lighted fo hospital. Abnormal ECG and T level, central chest pain, short breath etc
he was diagnosed with pericarditis with some other abnormality on the ECG, long story short the doctors said (off the record) they are convinced it’s either the covid vaccine or covid infection.
it was absolutely terrifying at the time! He too isn’t NT and found the experience traumatising.
He had 3 months treatment but was simply discharged back to GP instructed to return via them or A&E if recurs.
He should be starting Uni in September (6 hours away!!!!) but I’m absolutely terrified. This happened 10 months ago now but I’m still not sure I’m ready to let him loose.

I hope your son is improving ! It doesn’t matter what age our children are the panic when they’re sick doesn’t seem to abate. I’ve debated moving house to be near the University just in case …

Ok great, time to collar them about the chest pain.

WTF - why seek advice on this sh*t show - FFS I see common sense not actually that common

I hope you get this sorted @medianewbie

l don't know if this would help your DS, and I know it's not a solution, but does he have an Apple watch or a fitness tracker? A friend's very healthy 16 year old developed heart issues post-covid (pre vaccine) and made a full recovery, but in the early days, his anxiety, understandably, was awful. He found the heart and respiration rate tracker - and the fact it has an atrial fibrillation warning - really comforting that first year.

Hi - I haven’t RTFT apologies but I had this every time I had covid. Inflammation of the small blood vessels in my heart. MRI shows blood flow then it stops. I’m on dapaglifloxin for life (and Losartan low dose which helps with softening scar tissue of blood vessels generally). I am unwell with it for 9-12 months after each bout and it seems to get worse after each one. I have to still have the vaccine though otherwise the virus could be much worse. (Even though the cardiologist said it can cause heart problems too - it’s a balance.)
She also said fwiw that everyone will have some sort of similar reaction and it’s just the level at which it occurs - this is the nature of covid. (I think this is the hidden cost to the public which government doesn’t acknowledge but that’s another thread…)
I know there was no positive test for your son but could be helpful if it’s another virus. I hope he feels better very soon x