Ds, 19, what are these symptoms??

[medianewbie]

Violent vomiting for hours overnight so thought just bad dose of D&V. But very sore chest. Sore neck (glands like 2 hardboiled eggs). No temp but shivery.
Pale, clammy, massive headache not resolving with ibuprofen / paracetamol. Any ideas what it might be (covid?)
We are due on hols in 12 days (1st flight ever) & would really like him well.

@medianewbie Can you call the Uni and explain the situation and request that he is deferred for a year? I’m sure students change their minds about gap years all the time.

It was a long time ago. Didn't realise. Why is the thread still running?

Because people keep commenting without reading the thread.

And because peole are giving advice on the current situation.

Which is?

@llizzie which is easy to find if you click ‘see all’ under the op.

Because the situation is ongoing if you read the thread.

@llizzie - I started an update thread but this is the one which kept going.

Current situation is: scheduled to wait nearly 4 more weeks to see Cardiologist.
Still very exhausted (could be betablockers, could be post viral, or both)
Still having some central chest pain although it seems now to be reducing a bit

I have been learning a lot about Myocarditus & how very variable treatment & recovery is. Good news is locum GP just agreed to a blood test for inflammatory markers. That, & one for his high Cholesterol (which I told reg GP should've been tested for years ago when exH was dx with familial hypercholesteramia) Head GP is a copper bottomed arse. Local small hospital with no Pals or Pass just their own internal 'patient experience team' which is window dressing at best. So I've been getting some advice re seeking advice outwith area or going private if needed. I am in Scotland, rural, disabled myself & with a 2nd child. exH is also a copper bottomed arse & our experience of 5 days hosptial was patchy.

Amongst all this is Ds place at Uni due to start in 5 weeks, 4 hours away.
He is also Autistic & unable to advocate for himself healthwise.
Plus he has Dyslexia so will need a package of academic support.
It looks like deferral might be most sensibe but of course that will keep him in hopeless GP/ cottage hospital land & there are limited opportunities here. I don't want him to get depressed & lonely waiting another year to escape from Dodge.

So it's complicated time & this thread has been extremely helpful & supportive to me during that.

As a medical professional I feel mumsnet should stop medical related enquiries, use 111 for advice, much safer.

Troponin is a protein of the heart, but when there's damage to the heart it can leak into the blood. High levels suggest a heart attack has occurred, or there's damage to the heart. This is why the levels are probably so high. The fact Troponin has now dropped might suggest the heart is recovering.

Dapagliflozin is a diabetic medication and one I take myself- Did they say why he needs to take this?

I would definitely put a complaint in. Are you able to afford private? Don't forget to contact ADP/PIP and tell them he has had a new condition diagnosed and and deterioration to his health. Updates help for future renewal of PIP/ADP. You can also call and request to become POA, or apply to become an appointment and ask for a BF56. Does he have a social worker? They are pretty good at advocating for the family in these situations and can argue back with the hospital.

I'm sorry you've both been put through the ringer. I hope you get a moment to relax and take a breather for yourself soon. Maybe ask your friend to sit with them both while you take a few hours for yourself?

Some additional points - sorry if they've been covered and I've missed them:
familial high cholesterol - is this being addressed? Is he on a statin? A good website is https://www.heartuk.org.uk/fh/what-is-fh

(As well as SADS, another cause of 'heart attacks' in young people is SCAD - https://www.bhf.org.uk/informationsupport/conditions/spontaneous-coronary-artery-dissection)

Chest pain - you refer to 'a stitch-like pain' which sounds like angina. Mine started when I was in my teens (caused by heavy DDT exposure, not a virus). It was poo-poohed - 'you can't have chest pain at your age'. I found I needed to stop what I was doing, relax and centre down as I had learned to do in Quaker meeting, and breathe very slowly. It happened particularly when I walked or cycled uphill, and when I jumped into cold water.
Perhaps some low impact training like Pilates, along with mindfulness and breathing exercises, would give him some focus for this year out if you could find the right person to relate to him.

I was brought up to push myself, as we all were in those days. I was always active but I could never keep up with my peers eg hill walking. He would be well advised, as I should have been, that it is good to be active but to live within his capacity, and bad to constantly strive and overdo everything.

medianewbie ·

I do hope they find something soon, and hope they make you better. I wish I could be more helpful. Have you considered endometriosis? It is a very painful condition, and causes pain in any and all parts. The sickness comes with that too. I have not suffered from it, but know women who have and the pain can be severe.

I just cannot believe you typed and then posted that.

Seriously?!?

Try reading it all again. Slowly
From the beginning.

PS - I'll give you a clue. Who is ill?

Indeed. It's in the fucking title

Before requesting statins it might be helpful to read The Great Cholesterol Con by Malcolm Kendrick.

Does your son have a proven track record of functioning independently re cooking, laundry, life admin etc? If not I really recommend him deferring uni given he is ND and not well. My physically fit ND son really struggled with studying, working PT, social life and staying on top of general 'adulting' and eventually left after first term of year 2. I know all young people are different but it could be very challenging going when he is not well.

Why are you so rude? What is it about my hoping that they will soon be well that you find you have to insult me?

What have I done that you should imply that I am lacking in ability? Does it matter if the thread is off at a tangent? If someone is ill, or has something wrong, my saying that I hoped by now that something is found and hope for a happy result is surely not an indication of illiteracy and stupidity.

I am a devout Christian. It is what we do when someone is unwell. What do you do when someone has said they are unwell? Don't you send a message that you hope there is an improvement? Probably not, otherwise you would not ridicule me. My late husband was an Anglican Priest and I would always give someone hope where I can. If I have not read something properly, why do you chose to comment in that way? If you were unwell, wouldn't you like people to think of you and pray for you? Never underestimate the power of thought.

@llizzie i think the problem is that however well meaning, you suggested the OP considered a condition they affects women…the patient is a man.

That’s what people meant when they said read the thread.

I have heart disease and thyroid disease and a lot more beside. It could be many things. I had statins for years. Now I am off them for 18 months and make no difference. I have been disabled for a long time with CIDP, the chronic form of Guillain Barre Syndrome. I got up to go to work one morning and my legs gave way. If I had known when I went happily to bed the night before that I would not be able to walk the next day, perhaps it would not have been the shock it was. GBS disease which starts in the feet goes up the body and involves the organs inside the body. Crohn's, gastric reflux, heart disease, thyroid disease (from which there is carpal tunnel syndrome). Eventually it leaves you with areas of skin which have no feeling and other parts which have pain with a nerve which is just stuck on life. It is very rare. The further away from the heart it starts, the better chance you have of living.

Many people have little idea of the complexities of living in the 21st century world, with so many virus diseases. If I had not had private insurance, I probably would not be here communicating with you all on this site. Having a disease of the central nervous system means that you do not know when a nerve is inflamed, so you can sit down to a meal and the swallowing reflex which worked perfectly well one day, reduces you to eating baby food on a fork and hope sipping it works.

I am just telling you that I understand how difficult it can be to be investigated for something unknown. It is frightening, and affects people around you.

I could see nothing in the original post which indicated the sex of the OP. References to 'his' or 'him' were in replies and could have been reference of a son or brother.

There was still no reason to be rude and insensitive. If it were me, I would send a private message. Since you did not, and hinted so many times, giving yourself some superiority no doubt, I have to assume that you do not have it in you to be kind to anyone.

I could see nothing in the original post...
It's in the title of the thread.

This thread is about the OP's son (DS in the title stands for Dear Son - this is standard Mumsnet terminology, there's a glossary somewhere if you're new here). The OP also calls him 'him' in the opening post, as well as in multiple replies.

It says DS in the title which means Dear/darling Son. And the very last sentence in her first post says "& would really like him well".