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How can NT people be more supportive towards autistic people?

98 replies

eyeseeyou · 10/01/2022 14:12

Reading the autistic support thread for those in relationships with NT people has prompted this.

I can see there are problematic areas. But how can NTs be more supportive (instead of causing problems for autistic people)?

I won't pitch in much (I am NT). This is a space for autistic people to say what they would like so as an NT person I know how to interact (?) live alongside (?) autistic people better.

If that's ok. Ignore if not.

OP posts:
TheLightSideOfTheMoon · 10/01/2022 14:17

Learn some stuff.

I have ADHD and autism (Asperger’s diagnosis but it’s not called that now).

I got an ‘award’ on NYD for being ‘loud’ and ‘messy’.

Was supposed to be a joke, but it hurt.

I am loud. I hate it. Sometimes I scared to speak because of it. I’m also messy. I hate that, too. It makes me anxious AF. At home I have systems in place but obviously work is a shared space.

Sent me into a depressive funk that I’m still getting out of. Not how I wanted to start the year.

So, learn why ND people do certain things. Learn about sensory overload. Just learn about stuff.

TikTok is full of autistic people talking about their experiences.

TheLightSideOfTheMoon · 10/01/2022 14:19

The awards were at work, btw.

I wasn’t the only one upset by it.

A bit of research could’ve avoided the upset.

BurningTheClocks · 10/01/2022 14:20

Both mine say accept the weird.
That’s it really. Listen and learn and accept.

vivariumvivariumsvivaria · 10/01/2022 14:21

"if you've met one autistic person you've met one autistic person". Some general pointers would be helpful though. I don't want to make things difficult for my family member through my clumsiness.

CorrBlimeyGG · 10/01/2022 14:24

Take what we say about ourselves/ our feelings to be true, don't assume some alterior meaning. We're generally pretty straight forward, the idea of meaning something different to what we say is like a foreign language.

Stompythedinosaur · 10/01/2022 14:30

I do not have a diagnosis but suspect strongly I have ASD (I assess ASD as part of my job so not a totally uninformed opinion - but at school I was just "the weird kid" rather that being seen as having additional needs).

Two things that help me are: name labels at bug gatherings like professional conferences, as I really struggle with recognising faces, even if I have met people before. And veing clear if something is a joke. Now I'm in my 40s I am more confident asking if someone is being serious or joking, but I have made some terrible gaffs by taking people seriously when they were joking in the past. It just doesn't seem at all clear to me, aware probably because I am missing cues. My lovely dp now picks up on my "not sure" expression and clarifies "x is joking" which is hugely helpful.

Stompythedinosaur · 10/01/2022 14:31

*big gatherings

Sirzy · 10/01/2022 14:32

Remember they are an individual. Don’t assume just because your Aunts neighbours great grandchild behaves one way every other person you encounter with autism will. Don’t make comparisons, don’t make assumptions.

SuperLoudPoppingAction · 10/01/2022 14:37

Just being believed when we ask for accommodations would be nice.

I dont need tips on how to do things that cause me distress. I need to have days with less distress in them.

Otherwise it depends on your role - can you make communication possible in a written medium? Can you turn off the TV or radio in your workplace?

Just because autistic people have individual needs doesn't mean there aren't changes that would benefit most or all autistic people.

confusedofengland · 10/01/2022 14:51

From a parent's point of view (autistic 10-year old DS) - remember that each person is an individual in their own right & may not conform to the stereotype of what others think they should/may need. My DS presents differently to how people think he should & loves bright lights, loud noises & crowds, so often the 'autism friendly' events don't suit him at all.

EssexLioness · 10/01/2022 14:53

This is a kind thread to post, thank you OP. Autistic adults so rarely get asked to voice their experiences in this way so I really appreciate the question.

If I as a stranger am quiet but still friendly, make an effort to engage in small talk etc, do not decide I need ‘fixing’ or ‘befriending’ just because I am quieter than you. If I am seem happy and am not ignoring you completely then I probably am ok. I need my own space sometimes and you imposing yourself on me forcefully will just make me anxious, overwhelmed and cause me to withdraw into myself. I am not talking about a usual level of friendliness, but I have met several people in my life ho have treated me as some sort of ‘pet project’ and I have felt forced out of several groups/ social situations because one person made it too uncomfortable.

Also never make physical contact with someone unless you know they are ok with it. Autism can make this very difficult and physical touch can even be painful for some, due to sensory issues. Personally I love hugging DH or my sister, but absolutely not up for being hugged or continually stroked by someone I hardly know. It feels awful and like some sort of personal violation. Same with people who stand too close etc. If I step back a little, don’t continue to move forwards!

The above two examples are prob more general lack of social awareness rather than something specific to autism and are things I am struggling with a lot atm.

Other things I can think of is to not say things like ‘we are all a bit autistic’. I hear that so often and it is really ignorant and dismisses my genuine struggles. It’s a bit like when someone says they are ‘a bit OCD’. Also an awareness that autism isn’t the same for everyone. It is a very complex condition. Both DH and I are autistic and whilst there is some similarity, our struggles are completely different. DH is awful in social situations, and his executive functioning generally. Whereas, my masking is excellent (mostly) and I do much better in social situations, and seem fine to the normal world, however I find any social interaction distressing and I struggle to hold down any type of job, am prone to meltdowns/ poor mental health in the past. So it is important to ask questions and find out what that individual struggles with.

I would love for people to understand that whilst I make an effort to mask, be friendly etc it is because I care/ am trying to be kind and polite. It doesn’t mean I want to be there or am coping ok. People don’t see the cost of social situations, even a short trip to the supermarket can be utterly draining and I need time to recover. It is utterly exhausting being autistic. Wherever I go, the noise is much louder (like being in a nightclub), lights might hurt my eyes (eg strip lights), smells might make me feel sick, then I am also socialising (which makes me feel stressed), whilst trying to think about what to say next, my facial expressions, what I am doing with my hands etc. None of this comes naturally, it is like rehearsing for a play, even with people I am close to. I never switch off from monitoring my speech and reactions in this way.

Understand that if I don’t feel chatty or want to meet up, it is prob not personal, it is more likely I am burnt out and my mental health is on its knees and I need time alone to recharge.

Don’t comment negatively if I behave in a way that is slightly different to you. It will only make me feel self conscious. Many people with autism grow up with an awareness they are different, and are often bullied, ostracised or made to feel wrong for being different. For example, if we don’t make eye contact, or if we ‘stir’ eg I flap my hands a little or clap when I’m very excited, I can’t help it, it is instinctive, like a smile might be to you. Or if I am anxious/ stressed I wiggle my toes, or move my hands in a set pattern of wiggling each finger. I try to be subtle but I can’t stop altogether and it helps calm me slightly.

Also, my mind works in quite an abrupt way. I am one of the most polite and kind people you could meet, but sometimes my mouth has no filter. I try really hard but sometimes I will answer a question in a direct way, which can seem rude. I wish people would just take this at face value and realise I am just not adding all the extra social niceties.

I can’t think of anything else yet, but will mull it over. Basically, we can’t help being different and please don’t make us feel bad about being different.

EssexLioness · 10/01/2022 14:53

Omg, I am so sorry! My posts are always way longer than I intend! 😳 (I am prone to waffling)

Lostinafield · 10/01/2022 14:54

Accept us. Don't try and change us. If we don't want to do something social, just accept it.
Thanks for asking.

eyeseeyou · 10/01/2022 14:58

For those who've thanked me, you're all very welcome.Smile

I would just like to thank everyone for taking the time to post, I think this can help everyone get along better.Smile

OP posts:
EssexLioness · 10/01/2022 15:08

Oh and I am very literal, both in real life and online, as just demonstrated on another thread! 😆 if I completely misunderstand something it is likely due to this, so no need to mock me or imply I am stupid, just a factual correction is enough. I also don’t understand when someone is teasing me or being straight with me so I prefer not to be teased/ have banter etc as I don’t understand and don’t know how to respond

Floundery · 10/01/2022 15:24

This reply has been withdrawn

Message from MNHQ: This post has been withdrawn

orinocosfavoritecake · 10/01/2022 15:32

Worth looking up the double empathy idea.

orinocosfavoritecake · 10/01/2022 15:32

And what Floundery said.

EssexLioness · 10/01/2022 15:33

@Floundery completely agree. Some of the attitudes re autism on here are awful and so ignorant. Autism isn’t a synonym for abusive dickhead!

hivemindneeded · 10/01/2022 15:34

@TheLightSideOfTheMoon

The awards were at work, btw.

I wasn’t the only one upset by it.

A bit of research could’ve avoided the upset.

I see this sort of thing again and again. DH and DS2 are autistic. Autistic people are labelled as insensitive and unable to process emotions, yet it is neurotypical people who behave with this sort of insensitivity and inability to imagine someone else's experience.
TheDrsDocMartens · 10/01/2022 15:35

Do what you say you will.

If you work somewhere public facing don’t try and fob me off, I just want answers and problems to go away.

Give notice of changes and dates/events etc in advance.

Megmargs · 10/01/2022 15:40

Something I’m struggling with right now - be specific and if you say you’re going to do something please do it! I’m sitting here waiting for somebody who said they would “call around 3pm”. It’s now 3:39pm and I’ve been sitting waiting since 2:55. I’m completely unable to go and fill the time with jobs because that really stresses me out as I might not finish what I started, or get halfway through and forget. Even typing this is super stressful in case they call!

BlackeyedSusan · 10/01/2022 15:42

Make sure there is an email address to contact.

Don't be a twat and refuse to use email with someone who says they prefer this method of communication. Or like BCH who don't provide accessible communication at all.

TheDrsDocMartens · 10/01/2022 15:43

YES exactly! I can take a ‘will call at 3pm but might be late’ from GP etc as I understand their time isn’t exact but it needs to be said upfront

ZettaaY · 10/01/2022 15:44

A rather large one rather than an everyday person one, if you work high up in a business where you get to influence this stuff, see if you can work with charities for apprenticeships/work experiences etc targeting autistic people, only 20% of autistic adults are in paid employment and have big gaps etc on cv ambitiousaboutautism have lots but it seems to be targeting a certain type of person, would be lovely to have a broader selection.

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