@Tooembarrassingtomention
Very few people cant work at all- it is about getting the right support in place.
Can you get advice and help with this?
Jesus!
I support a woman who has what is coloquially known as 'sudden drop epilepsy'. She can't work, ever. Can't even volunteer as her condition is utterly inconsistent and she can have an episode at any moment. When she is good she is a little frail, tottery on her feet but otherwise seems perfectly normal. When she has an episode her body goes rigid and she 'flaps' full body length, has put holes in walls, ripped radiators of walls with her head.
Her DH is her full time carer. He gets no repsite. Her medication is not supported in day care homes, it's given via anal suppository.
Not only does he get questioned about his nonworking/carer status she does. Over and over again her consultant has sent detailed, starkly written letters. We have detailed the cost of the NHS supplying 24/7 medical care and compared it to the cost of their combined benefit care.
And still she gets grilled because when she is not having or recovering from an episode she seems 'perfectly normal'. As we know only too well, having lost a good friend, any attack can be fatal and the more she has the more of her mental faculties become eroded. She is now in her late 40s, miraculously still alive but less and less mobile, less able to talk etc.
And yet she still has that letter on a regular basis.
She isn't alone. And there are many other conditions that are similarly constraining, no amount of support wil change that.
@user874326686 have you got a local advice centre, often called Neighbourhood Projects or One Stop Shops? They will have an advisor who an help you write your next letter, maybe get you access to an emergency payment.
Best of luck