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Wardrobes DH ICU

999 replies

Wardrobes123 · 19/01/2021 20:30

Just thought I’d create a new thread. To help us to keep track of what’s happened.

My DH was ventilated last week. We’ve had two calls to see him due to him being very close to death. He isn’t stable but he is still alive at the moment. All we can do is wait.

I’m not going to lie, I’m not coping at all. My mum has moved in to help me cope with daily life. We’ve spoken with the children and they know how serious it is. They are also struggling now with the youngest stepping back from schooling when she needs to.

I can’t think ahead. Just usually about the hour or two that we’re living in. It’s very surreal. And incredibly difficult. Doctors are very realistic about prognosis and survival, which is really hard to hear.

I am incredibly grateful for all the support we’ve had as a family. MN is a remarkable place at times.

@groovinpeanut - Flowers my heart goes out to you and your family and I’m so sorry for the loss of your DH, message me anytime X

@intheshadowofthemushroomcloud - Flowers for all your support and messages.

I have had several messages from other mnetters who don’t have their own threads but who are also experiencing this living hell Flowers it’s a horrible journey and we don’t know how it will end but all we can do is hope/pray for a better outcome.

I haven’t always had the energy to post, too fearful of jinxing things and generally the last few days have been very raw and intense. But I’ve read every message and I’m so grateful of the support.

OP posts:
Whenwillow · 28/01/2021 14:34

Love and best wishes to you and your family (I've only just found this update thread) Flowers

Wardrobes123 · 28/01/2021 14:50

@ChasingRainbows19 - oh your poor mum. I'm pleased she's better now though, thats the main thing. A trachy wasn't something we discussed but I am familiar with how they work. Like you said - slow and steady progress is the best way.

OP posts:
FossilisedFanny · 28/01/2021 14:55

Really pleased he’s heading in the right direction. Xx

spiderlight · 28/01/2021 15:03

Really good news!

sarahC40 · 28/01/2021 15:15

All power to you all, but especially Mr Wardrobe.

MrsPerfect12 · 28/01/2021 15:50

Great news. Slow and steady wins the race. Xx

Picassosfriend · 28/01/2021 15:54

Fantastic news 👏👏👏. Take care of yourself Wardrobe.

Hugoslavia · 28/01/2021 16:03

I'm so glad that your husband is making small steps in the right direction. He's previously been ventilated hasn't he in the past? If so, I'm sure that you will be aware of how delirious and scared he may be once they reduce sedation and that this can last for 2-3 days. It's not uncommon to have hideous hallucinations. My husband thought that he was in a laboratory full of rats and that they were going to operate on him without any anaesthesia. Worse still, he dreamt that he was at a Phil Collins concert that went on for 48 hours!! This was followed by several days of a personality change, whereby my quiet reserved husband, became a crass comedian with a specialism in telling jokes about pigeons!! Of course, none of his jokes were remotely funny, but that didn't curb his enthusiasm!

My husband went from a ventilator to an oxygen machine (his lungs filled with fluid and one collapsed/stuck together at the bottom). He was also on full dialysis and had feeding tubes etc. We were also warned that he might not cope and have to go back on the ventilator. The consultant told us that if there was a 50% chance of him of him being able to cope off the ventilator, then they would always push for it as it was better to try it out than not try it.

Really hoping that he manages to cope and that you are still hanging on in there!

X

KeziaOAP · 28/01/2021 16:04

So pleased to read your update. As pp said slow and steady.

H1978 · 28/01/2021 16:06

Excellent update, keep your chin up, lovely ❤️

justanotherneighinparadise · 28/01/2021 16:07

Still here 💐💐💐

SoupDragon · 28/01/2021 16:09

So pleased there is some progress Flowers

SunshineCake · 28/01/2021 16:10

Wonderful to have good progress Flowers.

squishedblueberry · 28/01/2021 16:13

Delurking to say I am so so pleased to hear this positive update. You’re doing so well Wardrobes . Sending all the love and positivity I really hope things continue going in the right direction

LIZS · 28/01/2021 16:13

Positive news. Definitely a rollercoaster with spurts of progress and the occasional step back, but it does seem as if he is getting there.

CanNotStandTheBull · 28/01/2021 16:19

Positive news. Onwards and upwards Flowers

claracluck1978 · 28/01/2021 16:35

Delurking to say I'm so pleased to read your update. Thanks

EarringsandLipstick · 28/01/2021 17:41

So
W

EarringsandLipstick · 28/01/2021 17:43

Sorry posted too quickly in my eagerness!

Such wonderful news! I'm so glad it's looking a bit more positive, tho I appreciate the long road ahead.

You sound so lovely Wardrobes thinking of others throughout. X

Loshad · 28/01/2021 19:15

Great news @Wardrobes123, hopefully to continue on this trend for Mr W Flowers

2018SoFarSoGreat · 28/01/2021 19:18

@Wardrobes123 the road may be long and difficult, but it is a road - and he is on it! that's the best news.

You're doing a great job, hang in there.

dublingirl66 · 28/01/2021 19:20

You are all in my prayers ❤️❤️❤️❤️❤️❤️

uncomfortablydumb53 · 28/01/2021 19:59

That's great news! He's come a long way in a short time, although I'm sure every day is like an eternity Take care of yourself
Thinking of you allThanks

dillydallydollydaydream7 · 28/01/2021 20:55

Great to hear positive news! Thanks

StrugglingICUnurse · 28/01/2021 23:37

This is great news @Wardrobes123! I'm so pleased for you all. In these times, 50% O2 sounds great. Good that they have a weaning plan. He will still have some up and down days, but it really does sound positive. Smile

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