My husband is in hospital facing a liver cirrhosis diagnosis. Im alone and terrified.

[Loopylou6]

Has anyone been through this? So terrified of my phone ringing to say he's died

I'm so sorry
Thinking of you xx

I haven’t been through it, may do one day which terrifies me, but would like to offer a hand hold.

Hang in there Loopylou. Is there a friend who could come round and sit with you?

No experience but thinking of you!

Can you call the ward and see how he’s doing? Put your mind at rest so you can sleep maybe?

Do you want to be with him and can’t be? I’m so sorry this is happening, I can only imagine what’s led up to it.

Stay strong. Thinking of you and sending love

((Hugs)) thinking of you.

I've called, They won't tell me anything because there isn't a password. I didn't know there was supposed to be.
I've messaged him, but he just keeps saying 'let me sleep'
I called the ward about 11pm, they said he was having repeat blood tests because 'something' was too low, and something was too high, but wouldn't tell me anything else.
They don't do blood tests at 11pm for nothing do they? They'd wait till morning.

He's literally just messaged. Apparently they're giving him phosphate? Wtf is that?

Is this a surprise diagnosis?

I lost my partner 5 years ago to liver cirrhosis. Is it due to alcohol or natural causes?

Low phosphate is often found in patients with liver problems. They’ll be giving him a drip with it in to bring his back up to normal levels.

This must be a very worrying time. Hopefully you can get some answers from his doctor in the morning.

Purple, so it's not concerning per se, a part from the liver problem obv.
Regrettably it's alcohol abuse yes.

First thing, he is in the right place, if he has alcohol problems they will do a detox whilst he is in hospital & impress on him that he must never drink again. If he has ascites, they may do a drain to make him more comfortable. They will put a camera down his throat to check for varicose veins in his gullet & stomach, they will band them to stop them bleeding, an ultrasound to look how badly scarred his liver is. He needs to be careful about anything that may make him bleed as due to his liver his blood won't clot as well as usual, he may have brain fog due to the toxins that aren't getting filtered by his liver, they give them lactulose to help clear the toxins out. If he has ascites he will be put on diuretics to try & stop the fluid building up, when he comes home he needs a high protein, low salt diet, lots of eggs,meat, fish, fruit & veg. Anything else you need to know, just ask.

They will put him on yellow bags in a drip, they are B complex vitamins to prevent him getting a form of dementia linked to alcohol abuse. He should be allocated a drugs & alcohol worker who will support him stopping drinking & staying sober. Roughly how much is he drinking? I lost my partner to alcohol abuse, he was only 34.

@Nat6999 thank you VERY much for that, I appreciate you taking the time. I'll be sure to message if I have more questions.
Thank you again

Yes, he's on the yellow bags. He was drinking about half litre, he's cut right down to 35cl after tonic clonic seizures, but has very quickly declined over the past week.

No acitis thankfully ( that's fluid build up yeah? ) he's severely malnutrition tho.

It sends your head in a spin when you get the diagnosis, my late partner blew up to looking pregnant over the space of a week, I dragged him to the doctors & we saw a consultant at the hospital a week later, unfortunately my partner didn't get enough help to stop drinking & died 4 months after diagnosis, but if yours can stop drinking, he has a good chance of beating this, if he stays sober for 6 months he could go on the liver transplant list if he needed to.

And kidneys apparently fine which is surely positive

Compared to my late partner, he isn't drinking that much, mine was drinking 15 cans of cider & half a bottle of vodka a day at his worst. If he has malnutrition, the best thing you can do is take him lots of food that he likes in with you, he needs to replace all the alcoholic calories with good ones. They will put him on tranquilizers to stop him having the seizures & something to stop him craving alcohol.

meant to say, I'm sorry for your loss, Nat. Like you say, your head does go into a spin.
He's lucky enough that whilst he's now in hospital, he's being given librium, so they're detoxing him. Dreading what tomorrow may bring.

I would try and get some rest now. You’re going to get lots of information and probably have lots of questions for his doctor tomorrow. That’s better if you’re fresher.

Thank you for sharing Nat x