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My husband is in hospital facing a liver cirrhosis diagnosis. Im alone and terrified.

113 replies

Loopylou6 · 02/03/2020 00:21

Has anyone been through this? So terrified of my phone ringing to say he's died

OP posts:
Dowser · 03/03/2020 21:16

Hope he can get the help he needs loopy
It sounds very hard to to give up and if you don’t have a problem with it..then it’s true you don’t understand it

Nat6999 · 03/03/2020 21:49

Could you persuade him to go in rehab? I know the one near here they have to go in for 6 months, the first month they aren't allowed out unaccompanied, but then they start going out working on projects & working in the community. I know someone who went through the rehab there, 3 years later he is still not drinking & is working.

datasgingercatspot · 03/03/2020 21:52

Sadly Amy Winehouse also had a long history of drug abuse and opiate addiction.

springydaff · 03/03/2020 21:58

Hope he can get the help he needs

No, it's hope he can TAKE the help he needs. Because its out there, at least 3 times a day through AA. The services are watching his back, they will deal with the physical detox. But unless he engages with recovery, well, there isn't much hope.

It's not like AA is hard to get to, or you have to jump through hoops to get there, or pass an arduous exam, or come up with an especial behaviour. No, you just turn up as you are. That's all it is.

It's an amazing program, quietly witnessing miracle after miracle every day of the year, every year. He just has to go.

Nat6999 · 03/03/2020 22:33

Springydaff It isn't just attending AA meetings that successfully stops someone drinking, it is having a good drug & alcohol treatment service, mental health services, counselling & psychotherapy. There are many reasons people become addicted to alcohol, it isn't a lifestyle choice & just attending AA meetings alone isn't the answer. When my late partner needed the drug & alcohol services, the area we lived in was going over to being run by a private company, the staff were having to apply for their jobs with the new company, for 3 months there wasn't a service in the area, without a drug & alcohol service patients can't receive the detox treatment, there is no community service for addicts to receive treatment in their own homes, patients can't be referred to mental health services, counselling & psychotherapy, there simply aren't enough beds for in patient treatment for every addict. Aa can help in the support of addicts & their families but there needs to be all the other services involved to treat all the problems & illnesses that are linked to addiction. If it was just a case of going to meetings, standing up & saying "My name is ....... I am an alcoholic" but it isn't.

springydaff · 03/03/2020 23:26

But it isn't just that, Nat. It's a 12 step programme and they work the steps with a sponsor. That's where the power is. The 12 steps are a big deal, not some sweet little thing to making people feel good or whatever. Goodness me, it takes a robust programme to tackle such a deep and conclusive illness.

Yy some alcoholics need physical support/treatment, of course, but 12 step addresses the rest. It's a powerful programme and not for the faint-hearted. You have to be serious to do it, it's not a piece of cake by any stretch at all.

Shannith · 03/03/2020 23:26

@Loopylou6 have PMed you.

DickAmbush · 04/03/2020 05:13

@Nat699 you're right about the addiction treatment services. The excellent charity-run agency in my city was taken over by a council-funded business, and my god, they don't half run it like a business. It's shocking. Yet of course, because it's council-run, funding keeps on being cut and people aren't getting the necessary treatment.

For everyone asking why OP's brother can't be sectioned, the mental health services won't just section or admit someone because they're an alcoholic. Obviously addiction of any kind is usually pre-dated by or comorbid with some kind of mental health issue, but many avenues of psychiatric treatment (CBT, DBT, some trauma therapies) are closed off to alcoholics, until they get their drinking under control. In so many instances, treatment is seen as futile if the patient refuses to stop drinking, which is a horrible catch-22 situation. Again, funding cuts mean this approach isn't going to change any time soon.

Shannith · 04/03/2020 06:48

I am only talk from my experience and that is that 1. NHS alcohol support services are woeful. 2. AA is very powerful.

This may well be because I was still drinking when I accessed them but they certainly didn't make me stop. It was too easy to lie and be believed. I also had lots of very expensive private mental health support. That didn't work either because I never told them I was an alcoholic. It just made me an even more practiced, manipulative liar.

And I was a very good liar. All alcoholics are. It's what we do. Lie to everyone about everything, including of course ourselves. But the real damage is the lies we tell people.

AA works because step one is admitting that we are alcoholics. This is more than just saying, "Hi I'm Shannith and I'm an alcoholic." It means admitting that I am powerless over alcohol.

That I can never control my drinking. I can't cut back, measure it or drink like a normal person. I drink myself to death.

The thing with A.A. is that everyone in the room admits that and once you've done that all that's left is the truth. People share the truth about their experiences and no one bats an eyelid. No matter how terrible the things I have done, how low I have gone, everyone in the room has been there and gets it. No judgement.

All we did is listen, identify and share how it was for us and how using the rest of the steps we find the strength and hope to stay sober just one day at a time.

And how we try to put right our wrongs and help other alcoholics get and stay sober.

It's not a cult and you don't have to believe in God - all of which put me off massively- as well as thinking I could just say I was an alcoholic and, job done. I've admitted it, now hey presto I'm cured.

It's a bit more than that but it's actually very simple. And it's a petty good way to live.

Imagine a place were you could say anything, admit you anything and people will just say, "me too. I'm like that. I think like that, I've been there and this is how I got well and you can too. It's going to be ok."

It's pretty good stuff.

I'd never have believed it was possible to live without drinking. In my case I was physically very addicted. If I stopped drinking I went into seizures- hence the multiple hospital admissions.

I've got cirrhosis, downgraded from advanced liver disease. But I'm healthy. Reasonably sane and sometimes even serene.

It's a miracle I'm still alive and A.A. is full of people just like me.

@loopou66 the best thing you can do is take your DH to a local A.A. meeting. And make him keep going.

Even if you want nothing more to do with him, it could well save his life.

An Al Anon is also wonderful for people how have had to live with or still live with alcoholics. Everyone there understands the disease and will know evey emotion you are going through and will give you a place to be listened to and most of all understood.

I really never thought I'd become an advocate for A.A. but do you know what, I'd not be writing this without the support and love I've had from a bunch of random drunks in various church halls/other odd rooms for hire over the last year.

God (as you understand it/him/her/they/whatever moves in very strange ways indeed Grin

Frownette · 04/03/2020 08:35

Loopy good luck for today. Hope you got a good night's sleep and the medical staff are helpful with advice about ongoing support when he's discharged.

I had some good news yesterday, I tentatively asked my brother about alcohol and he hasn't drank in a few weeks. He never got to the point of hospital/illness but was drinking too much stressed about a situation. We've been helping him deal with it and come back down to earth. @drippingwet he's about same age as your brother, I did feel for you Flowers

Frownette · 04/03/2020 08:38

He got a little adipose fat as well, he's normally very compact. I sort of squealed and pounced on it when I saw him in a t-shirt and said 'what's this???' Poor bloke!

Shannith · 04/03/2020 18:05

Loopy hope today went ok. Been thinking of you.

Loopylou6 · 05/03/2020 19:01

Thanks for the well wishes everyone, and apologies for the late update.
He's doing fabulous, he's back up and about, doing all the things he's abandoned, I just hope it continues x

OP posts:
springydaff · 07/03/2020 00:45
Flowers
Frownette · 07/03/2020 06:47

@Loopylou6 so the emphasis now is on nutrition, exercise and support? Did it look like the NHS came up with a good aftercare plan?

Glad you're both well and he's home. I had to look up tonic clonic seizures but I was none the wiser!

Loopylou6 · 07/03/2020 09:24

Yes, mainly nutrition.
There's an appointment being sent for the liver clinic for a few days time, but other than that, there is no plan as such, I think it's pretty much gonna be handed over to his GP.

OP posts:
Loopylou6 · 07/03/2020 18:47

@BritishLiverTrust
@Shannith
@Nat6999
Can any of you advise just how bad his results were if I inbox you a shot of his discharge note?

OP posts:
Nat6999 · 07/03/2020 18:57

I'm not good on the scores, just know the one for alcohol levels in the liver.

Loopylou6 · 07/03/2020 19:03

@nat6999 Bili 43
Alt 205
Alp 90

OP posts:
Loopylou6 · 07/03/2020 19:04

Ah sorry just re read your reply

OP posts:
Frownette · 07/03/2020 20:56

Nat how is it for you all 3 years on? I guess you miss him but also feel some anger that it took him over, he was quite young. He probably thought he was invincible since he was very sporty. I can't remember how much you said he drank I'll have to scroll back.

Have you thought about meeting someone or is that part dead for now?

Nat6999 · 07/03/2020 22:40

Frownette it's 5 years since I lost my partner, I haven't had a relationship since, I have male friends but no relationships. I walked out of my marriage for him & I loved him like nobody else, I still love the person I met, a lovely, quiet & kind man, but I hate what drink did to him & I hate the fact that drink robbed me of the man I loved & the life we could have had together. Since he died I have had a lot of health problems which have left me disabled & virtually housebound, I wouldn't want a relationship with me, so how could I expect anyone else to want one.

Frownette · 08/03/2020 08:57

Nat sorry to get the years wrong, I was quite sleepy last night. I'm also sorry to hear physical problems are impacting on your life.

I assume you're quite young since partner passed away young, you should be able to find some happiness and peace.

Loopy ask doctor to explain the results this week. It's fine to rely on them for a bit!

QueenOfOversharing · 08/03/2020 09:28

Another (recovering) alcoholic here. Almost 11 years sober. It's heartbreaking for me to read your posts about active alcoholics. It's a horrific thing to go through. My ex was an addict, years before I started drinking, and I couldn't understand why he couldn't just not use! Then I ended up sliding into a pit of my own. The difference was I wanted it to stop - my choices were suicide or sobriety. I was very lucky to have a friend who had been in AA for years.

AA definitely changed my life, but I will add the caveat that AA cannot always resolve every issue alcoholics have. I have needed intensive psychotherapy & ongoing MH support. Not everyone in AA agree with outside agencies or medications, but that hardline stuff isn't for me.

I hope your DP chooses sobriety after this - but as PPs have said, protect yourself & your sanity. AlAnon are really fantastic too - I have gone for my relationships & family members who are/were addicts.

Huge congrats to my sober fellowship on here too! One day at a time. 🙏🏼

iamjustlurking · 08/03/2020 09:38

@Nat6999 I'm really sorry you went through this. I've had similar my ex husband died 7 years ago leaving 3 broken children.
I left him 16 years ago. You never love like that again. I miss the sober man I fell in love with everyday
@Loopylou6 I really hope he turns his life around but please for your own sanity dont sacrifice anymore of yourself trying to save someone not ready to be saved