@helenadove that’s ridiculous them not properly investigating, diagnosing and treating the cause, there must be one! Surely also that would have been cheaper than prescribing all those meds and all the gp appointments
Over the years I’ve had good and bad treatment in the nhs.
Allergies and lung infections as a child which I was unfortunately prone to were swiftly diagnosed and treated.
I’m asthmatic and if we’d had a USA model my family would probably have really struggled to pay for my treatment and preventive meds.
Couple of minor accidents as a kid but necessitated a&e visits and follow up treatment which again under USA model parents would have struggled to cover.
However, also 14 years of ignoring classic endo symptoms which if I’d been referred to Gynae far earlier could have prevented ovarian torsion and 2 mc inc partial ectopic as well as many years of suffering “milder” symptoms of chronic pain, heavy bleeding, anaemia, migraine, nausea, fainting etc. I feel certain that a referral, diagnosis and treatment would not only have greatly reduced my suffering but would have been much cheaper overall than the cost of all the gp appointments, prescriptions for meds to treat the symptoms and several surgeries.
It’s the short sightedness and illogical approach which pisses me off.
I was also “cleared” after my car accident as x-rays showed no bone damage but x-rays can’t check for soft tissue or nerve damage which took several months to be acknowledged and I still don’t 13 years later have an agreed dx for let alone treatment. I’m only 47 but in pain every day and in last couple of years have noticed a deterioration in mobility and in things like I can’t reliably grip with my hands. Also since the accident (and it was actually someone else and not a hcp that noticed the timing of this and suggested a possible link) I have had problems with becoming allergic/having bad reactions to medications I had taken without any problem for years prior to the accident. This person and others have signposted me to relatively new research that shows that trauma even minor to certain organs can cause problems like this, yet I cannot get anyone in the nhs to take my concerns about this seriously enough to even discuss it properly.
I also suffer badly with mh issues, again the lack of co-ordinated care means I am much worse than I was even when this all started with a “breakdown” shortly after the accident. My main condition (but certainly not the only one) is ocd, for which there are recognised ideal ways of treating BUT the various different treatments are supposed to occur at the same time to tackle it properly. Again in 13 years across 4 different health boards this has NEVER happened. In addition after many years of thinking the main treatment for it (cbt) didn’t work for me after disastrous experiences with therapists I recently learned that it was implemented incorrectly, which has done more harm than good.
I’m currently, despite being the most unwell I’ve ever been, housebound almost 2 years, barely leave my bedroom, eating 1 meal a day and sleeping 4 hours in a 24 hour period on average, getting NO support from mh services whatsoever.
I was dumped from the service in April, I have yet to receive an official explanation let alone an apology! My cpn at the time gave the impression it was because I was ‘failing’ to get better in a way they were happy with. At this point I had been literally BEGGING for my medications to be reviewed, for a referral to the psychology team and for a general review by someone more senior for over a year and had been getting stonewalled that whole time.
I’ve been left languishing on a medication that isn’t really helping but which is one which has serious withdrawal effects both physical and mental such that patients are very strongly advised not to consider even trying to withdraw without considerable support. On the rare occasions I even take it a little later than usual I do notice the awful effects. I’m also supposed to have blood tests 6 monthly as it can have detrimental effects on certain organs, in around 18 months I’ve only had 1.
I cannot even get anyone from the mh team to return my calls, they’re not even returning gps calls.
I’m in the process of organising a formal complaint but this is not straightforward either.
In some areas the nhs can be wonderful, I have friends and family who’ve had great care for cancer, certain injuries and certain chronic conditions. (Which is absolutely not to deny the shocking experiences of posters on thread in these areas)
But in others - mainly Gynae/obstetrics and mh it’s appallingly bad.
“The reason is the appointment has gone before they have even sent the letter out informing you.” Yes that’s something dd and I have experienced on several occasions! Apparently patients are meant to be fucking time travellers! Well we’re not, if the letter telling us about the appointment is sent - even TYPED AFTER the date of the appointment then shocker! The patient can’t attend the appointment!!