Meet the Other Phone. Only the apps you allow.

Meet the Other Phone.
Only the apps you allow.

Buy now

Please or to access all these features

Chat

Join the discussion and chat with other Mumsnetters about everyday life, relationships and parenting.

Handhold, in HDU with respiratory failure and terrified

967 replies

Seafour · 22/11/2018 04:28

Just that, is anyone awake?

OP posts:
Thread gallery
25
ZenNudist · 28/11/2018 13:54

Hello just read to page 11 and found it so interesting to get an insight into your life. I am sorry you have suffered so much and glad you have faith and family to get you through. And hopefully via mumsnet- friends! Its so good that mumsnet is a leveller. On here you dont need to be 'disabled' you can just be you. Flowers

Seafour · 28/11/2018 14:06

I'm feeling ok thanks Crown the earlier argument is forgotten, I have eaten a toasted muffin and sorted out my sock drawer. The dog seems to have calmed down and I think I'm on a promise Grin

ZenNudist thank you, if you want to join us then you will find a screened off area on the left hand side where nobody wants to sit because it's too close to the driver you may use this for quiet meditation, prayer, nudity or whatever gets your funk on.

OP posts:
yawning801 · 28/11/2018 15:16

you will find a screened off area on the left hand side where nobody wants to sit because it's too close to the driver you may use this for quiet meditation, prayer, nudity or whatever gets your funk on.

There's an image Shock Grin

Seafour · 28/11/2018 16:19

@diangled a second recommendation here for Winstons Wish they are a fabulous charity (I worked with them when they had just started) they don't just deal with the aftermath of a parental death but will work with the whole family as they navigate their own path through treatment, preparation and following bereavement.

This is getting serious now, a shiny new iPad complete with Apple Pencil has arrived for use in hospital, the old one was nearly full and I think I deserve it. Bugger, I've just discovered a cold cup of tea next to me, ah the distraction of new technology.

DH and I don't argue often, it's more words than shouting but there are a few things that are always close to the surface sure to get us going. Included are exw issues, which considering the youngest is now 22 shouldn't feature in our lives at all. But his dc need and deserve support so we do cross swords sometimes because I don't think he gets involved enough. I wish sometimes I could sit and have a conversation with her but it's never going to happen. Intimacy is another which we are working on and then there is the biggest problem in our lives my eldest ds.

My second born, not an easy child, hyperactive, I guess now it would be adhd, hugely affected by the DV I suffered at the hands of his father, always in trouble at school, damaged by my second marriage, £££ invested in counselling, lovely prep school specialising in dyslexia and a small secondary with lots of support. Despite all of that he morphed into the teenager from hell. At fourteen I found an interesting houseplant in his bedroom and predictably he refused to talk to me about it. At this point I'm a single mum with five kids and no family support so I went for a short sharp shock approach. I did give him the opportunity to come and discuss his sudden interest in horticulture with me or I would phone the police. I got met with many expletives which his siblings translated as "you f!^*king person of suspect parentage, you wouldn't dare grass your own kid up". The rozzers duly arrived and as I was alone with four other kids and we lived in a very remote location I sadly couldn't accompany him to the police station. It was the early hours of the morning before an appropriate adult could be found, he spent a night and some of the next day in the cells and it did seem to do the trick for a while.
He became an angry young man with drug and alcohol problems, the only thing he had in common with the mother of his eldest child was a dealer, he did settle down and had two ore children with his long term partner but they split three years ago due to his drinking. He did rehab, spent a year dry and then met someone, they weren't good for each other and he started drinking again. He moved in with us to sort himself out, rules were no drinking/drugs, work and he started to make progress, dh and I go on holiday and the girlfriend has moved in, her parents are renovating and she's nowhere to go. Next thing she's pregnant.
Long story but we help them get set up in new home, baby arrives and three months later she leaves. He moves in with us again for support and the three youngest are here for half the week. I recently discovered he was drinking again and decided that rather than helping him I was enabling him, he's very good at quoting AA stuff at me so I took a leaf out of his book and did the same. I apologised to him for enabling his drinking and told him he was no longer able to stay here on his days off ( he works in the neighbouring city, and has accommodation there).
He is my son and I love him but I've had to tell the dm's of his four dc that he's drinking again and he can't be here because of that. They are understandably upset, hurt, angry and somewhat inconvenienced by this but quite frankly I've had enough.
I miss the dgc but we can at least enjoy them as grandparents should.
So there you have it, my rotten apple, the black sheep, whatever label fits. He needs help but this time I can't be involved. I feel as if I've failed him, he tells me so. It's a fucking tragedy.

OP posts:
DaffydownClock · 28/11/2018 16:25

I'd love to follow along; I'll give the nudity zone a miss if you don't mind, frightening the horses would be the least of it 😳😀
Very happy to muck in /out /whatever, 40 years of nursing has left me with at least one use!

Seafour · 28/11/2018 16:34

Yawning I'm doing my best to be inclusive, the posters name is ZenNudist and her/his post made reference to spirituality/faith. I don't want to have the trip delayed because I've fallen foul of some PC/inclusion rules now do I.

OP posts:
Seafour · 28/11/2018 16:40

Daffy, welcome aboard, Please tell me, as a nurse do you feel insulted/hurt/offended by anything I've posted about my journey? I know I can be "direct and brutal" sometimes and I would hate to think I'd upset any hcp by anything I've said. I want people to learn from the mistakes that have been made not run away ranting.

OP posts:
Seafour · 28/11/2018 16:41

Does Apple Pencil cause random bold text or is it only me seeing it.

OP posts:
DaffydownClock · 28/11/2018 16:56

Good god Seafour absolutely not. Nothing you have said has done anything other than make me angry and sad that you've had such appalling experiences - please keep shouting and teaching; the Health service still needs to learn to listen to the expert, you the patient. This was drummed into me years ago yet still these dreadful experiences continue. Perhaps as an older, traditionally trained nurse I have a different perspective? I did a Return to Nursing course a few years ago and was frankly dismayed by the attitudes of some staff, it was almost as if the patient came last and was regarded as an inconvenience- I didn't return to the ward because I felt that I would struggle to compromise the care they needed. Whether that was right or wrong I don't know but it's a feeling echoed by many of my friends and colleagues.
Thank heavens you've somehow survived despite them.
I'm right behind you, sort of a Seafourista? Or a Seafourzilla maybe 😀

InflagranteDelicto · 28/11/2018 17:02

No random bold text here!

You are welcome to enjoy my walk. Some days I do, some days having my butt into the dark, rain & cold is the last thing I want to do. But today was good. I could smell autumn. It's good. I love walking though leaves too.

I will send you cake, when I next make one. Probably soon. I plan to make one to celebrate returning to my branch after spending weeks out fixing another. Seriously pissed on on that subject - take that were filming opposite my branch, and I wasn't there to gawp. Not fair.

WatcherOfTheNight · 28/11/2018 17:16

Just wanted to say hello & that I'm with you @Seafour .
I'm not fully up to date with the whole thread quite yet but your beautiful writing has kept my mind occupied at times over a few awful days.
I know personally how things can go wrong sometimes with the nhs & I'm so emotional reading your experience.
I'm so glad that you are KOKO,I look forward to following the test of your journey.Thanks

Andro · 28/11/2018 17:21

DaffydownClock - as a nurse/ex nurse, I'd best let you know that I carry a full allergy kit, complete with epi pens and wear a medic alert bracelet - always good to have someone who could point the paramedics in the right direction, if you don't mind?

Seafour - if you like plants/flowers, my stroll down the garden was flanked by a mix of red and white roses (still in full bloom, the reds are a deep, almost crimson shade) and the flower beds a mass of pansies of all colours. The vegetable garden at the bottom of the path is full of winter veg; there are sprout plants nearly 4ft tall with huge leaves collecting little pools of rain, purple sprouting broccoli plants that are just beginning to spread, winter cabbage with leaves so rich they almost have a blue tinge and are shot through with reddish lines.

The greenhouse has late season potatoes and carrots, timed especially for Christmas and poinsettias that my DS has been experimenting with this year.

WatcherOfTheNight · 28/11/2018 17:35

& ps can we have vodka on the bus ?
I'm not in a frame of mind to cope with just coffee at the moment! Blush

Seafour · 28/11/2018 17:59

Daffy, thank you it's interesting what you say about your experience of returning to nursing, I recognise your "patient comes last comment". I've had nurses refuse to help me reposition because they have a bad back!!! You're left thinking what moron in charge on a post surgery spinal ward thought it was a fabulous idea to put you in charge of the cohort bay full of the least mobile and most vulnerable patients.

I have someone close to me in the final year of a nursing degree (not one of the dc) she has worked as an hca before starting and throughout her degree, plenty of experience on a variety of wards but I'm frightened by the gaps in her knowledge, she is predicted a first.

Call me old fashioned but bring back some discipline and supervision to nurse training, less time in the classroom learning how to fill in a risk assessment, falls report form and reflective journals and more closely supervised practice on the wards learning how to fucking care for people.

OP posts:
Seafour · 28/11/2018 18:16

Andro your garden sounds wonderful, can I please pre order some vegetable soup from you.*

Watcher* I've up or downgraded, depending on your point of view, the champagne bar is now a fully stocked cocktail/spirit bar.

Please can the ticket collector please note that the following people are banned from the bus:

My eldest ds for obvious reasons
Anyone who in my pre crippled life enjoyed the pleasure of my company on a girls weekend away. Except for that very infamous weekend at a certain golf club/spa Grin
Anyone who bumps into me occasionally and says "oh hi seafour, I've been meaning to phone you"

This thread is fabulous, if I could walk there would be a spring in my step, there is a smile on my face and a kind of warm fuzzy feeling in my heart.

I could almost dare to wish that one day I will have that close group of girlfriends again, with whom I can share my innermost secrets, belly laughs, beaver jokes, long lazy lunches, theatre trips, movie nights, seaside weekends, BBQ's in my garden, epic New Years parties and so much more. Fuckity fuck I've made myself cry now.

OP posts:
Andro · 28/11/2018 18:25

Seafour - any particular favourites/hated veg?

yawning801 · 28/11/2018 18:39

I make some "killer brownies" (not literally) so I'll be sending some of those to the bus too! Anyone got any food allergies/requirements... I know I do!

Seafour · 28/11/2018 18:45

I love all veg, have been a veggie at various points in my life, would happily be one again but dh is attached to his meat and two veg.

I first became a veggie as a ten year old to escape my mothers goddam awful cooking when I started school at the age of six, because she forgot to send me!!!! I discovered school dinners and fell in love, that says it all really.
She had some unique methods for sure, frozen peas, cooked in a colander under the running hot tap, deep fried roast potatoes anyone and everything cooked in sludge from that croc pot thing that had no lid and lived next to the cooker, the contents of which were grey, lumpy and in summer had dead flies or dying flies on the surface. The sludge was created from any drop of fat that came from any fried, roasted food or when the grill pan got emptied.
It was truly vile, smelt like a mixture between a bad fart in a lift and a rancid dead animal. I feel a bit Envy now.

OP posts:
Seafour · 28/11/2018 18:47

Yawning my mother and aunt used to make some very special brownies but it was the 1960's peace love and get your kids stoned for a quiet life.

OP posts:
Andro · 28/11/2018 18:51

I'll bring the mixed veg soup with me then Grin They'll be hearty beef and veg stew for the meat lovers, crusty bread available for either.

ZenNudist · 28/11/2018 19:08

Thank you for the warm welcome. It seems my username may have confused you. I am not a particularly calm person, also more likely to be sociable and not stop talking rather than sit out of the way in quiet reflection. Plus not a nudist! Blush

PinkSparklyPussyCat · 28/11/2018 19:30

Seafour, I've just finished reading your thread - you're amazing. I really hope you're well enough for your surgery next week, please put yourself first.

I'd also like to thank you. My DM died last year. When she was in hospital I was asked whether I wanted her to have treatment to prolong her life. It wouldn't have improved her quality of life, just kept her alive as she was. I said no and I've hated myself for that ever since. Your post about the elderly lady in the ward with you made me realise I made the right decision as that could have been my Mum, distressed and pulling off her oxygen mask. Thank you, you've helped me more than you'll ever know.

Diangled · 28/11/2018 19:39

sea thank you Smile. We have found great legal representation & things are slowly moving along. Our local hospital has a fabulous children’s counselling service nearby & they’ve been fabulous with the boys. I really just want them to learn how to talk through their thoughts & fears. I worry having boys that they’ll feel they can’t show their emotions so much, & it’s a certainty that they will have to deal with bereavement at a young age. The charity have been great helping them through it.

Glad to read your day got better. Loving your thread & definitely along for the journey with you.

ThinkOfAWittyNameLater · 28/11/2018 19:56

May I hop on the bus too? I'm not much use, but I'm strong, like to be helpful, and I love listening to other people's perspectives on life. I love champagne & cocktails too 

@ZenNudist I'm seriously intrigued now. Is zen-nudism a life goal of yours? Grin

Stopyourhavering64 · 28/11/2018 20:04

I've been humbled by your story seafour ...I am a nurse with 31 yrs experience and I'm shocked at how nursing has become less of a well respected profession. I had a career break of 8 yrs to bring up my family and found ward nursing had changed beyond recognition when I returned in the early 00's and having a degree does not necessarily make you a better nurse
My dh is a Barrister specialising in medical negligence and I'm disgusted by the treatment of many of his clients
I do think you should consider the surgery in the next few weeks,as you will have regained your strength
I'm a pretty good baker , so I can bring some home baking for the bus!

Please create an account

To comment on this thread you need to create a Mumsnet account.

This thread is closed and is no longer accepting replies. Click here to start a new thread.

Swipe left for the next trending thread