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Handhold, in HDU with respiratory failure and terrified

967 replies

Seafour · 22/11/2018 04:28

Just that, is anyone awake?

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Seafour · 12/12/2018 11:52

Good morning my lovely bus passengers, baby Rupert is beautiful Gruber can you come and tuck him up in bed with me for a few minutes please. I want to smell him and stroke that super soft bit on the nape of his neck.

I had a hellish night with 30ml of Oramorph being given every hour along with 5mg of diazepam every two hours, despite all of that at 12:50am they added a slug of slow release morphine in the hope that I would sleep, I didn't. It was without doubt the worst night of pain I've ever experienced.

The ICU consultant did his rounds this morning and I was snotty, sobbing mess, he said I'd feel better once I was up and out of bed !!! I asked him if he thought that I looked as if I could get up, had he seen me in this state even immediately after surgery. He agreed he hadn't, he also agreed that taking the PCA away had had a huge negative impact. He asked the pain team to review me.

A lovely consultant anaesthetist came and listened to me and restarted the pump immediately, I'm absolutely knackered but the pain is under control, just about to get a bed bath.

For those who asked I'm in East Midlands

Back later.

OP posts:
marvellousnightforamooncup · 12/12/2018 11:56

Oh you poor thing. Glad they listened and you're more comfortable.

JustanotherCHRISTMASuser01 · 12/12/2018 13:22

Oh seafour I'm an East Midlander Nottingham area and I'm scared I think I might potentially know which hospital you are on about if i do I've heard so many awful stories of not listening to patients.

I am so sorry you've had such a rough night.

I hope the bed bath makes you feel human again, Bless you.

NicoAndTheNiners · 12/12/2018 14:13

Sea I'm sorry you've had such a bad night. East Midlands? LCH by any chance?

KnittingSister · 12/12/2018 14:30

Hello, sorry to hear you had such a bad night, here's hoping with the PCA back up you'll be able to spend the night in the arms of morpheus Grin

DDog has been ill too, but with excellent treatment from our vets I think he's on the mend now. Poorly liver, poor boy Sad

When he's well, we both love a walk on the hilltop and through the woods .he chases squirrels and rabbits and deer and anything else he can find !

MollyWindley · 12/12/2018 14:30

I started reading this thread last night, had a tantrum when the battery went on my son's tablet, finished your story this morning, left lurkdom behind me and joined up to Mumsnet so that I could board the bus (I'm in East Anglia so not far to travel)

Your story is awe inspiring, thank you so much for sharing it. As I am late to the party, I'm kind of going over old ground here, but I just wanted to say how much I related to your loss of friends posts. Twenty years ago, I had a social life, but then my third child had serious health problems, our income took a drastic drop following my husband's redundancy/heart attack and I became if not Molly no mates, then Molly low mates!

I had to laugh when I read about your tortoise - I was a kid who loved animals and begged for pets, finally my parents gave in and got me a tortoise, it lasted a week as it was apparently a mountaineering racing tortoise....the first time I caught it scaling the wire fence between us and the neighbouring garden, my parents told me that no way could it make it over the fence, but it obviously did as by the end of the week it had legged it, I had the tortoise that ran away......of course maybe it did a monster tortoise pooh and my mother helped it over the fence, she did have form as I was given stick insects by a school friend which she released into the garden as she found them horrible to look at.......

Enough rambling, I'm hoping and praying that your pain levels come down today, thank you for dragging me out of Mumsnet lurkdom!

I

JustanotherCHRISTMASuser01 · 12/12/2018 14:59

@MollyWindley welcome to the bus :-)

2018SoFarSoGreat · 12/12/2018 15:01

Is early morning for me so nothing to see outside but dark!

Sea so glad you were finally listened to and helped. It all makes me want to shake them. I'm madder than hell on your behalf 😡

Ahem. We shall need a lovely sparking glorious new thread very soon. I awoke in panic that it would be full and I'd lose all you lovely lot (especially Rupert, so gorgeous!)v in the night. Can you start a new one please? In your copious leisure time of course.... Whilst not having to scream and soon for basic pain relief. Still mad! They had just better shape up. We can't spare you have you suffer more. ❤️

IYCBABeKind · 12/12/2018 18:13

So I've been lurking for some time Blush reading your story Seafour and sadly the best I can muster is WOW!! That is one hell of a journey you've been on!
I've been having some pretty shitty days recently but compared to the shit you've been through my shit days have Been a walk in the park 😟 thank you for sharing and still keeping on keeping on! You are an inspiration!

So glad you got through your operation, but sorry to hear the pain you've been in 😢 let me cheer you up by saying you look amazing considering what you've been (and are going) through! I don't know how you do it.

If I was closer I'd have gladly come to visit and cheer you up! but I am in Scotland.

If there is a wee corner spare on the bus I'd happily provide home baking, cups of tea/coffee.

Sending healing thoughts to you Seafour for a speedy recovery! Xx

Seafour · 12/12/2018 18:45

I feel so much better now, I've had a lovely bed bath, a nurse brushed and plaited my hair but best of all my pain is under control. I will start a new thread and try and work out how to do a clicky link

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NancyWho · 12/12/2018 18:56

Was just coming on to say how sorry I am that things have taken a downward turn again seafour it's good to read they're listening and things are more settled again.

Out here there's some important vote thing going on.

It's good to see the bus hasn't been clamped yet.

That's one gorgeous baby Gruber. Congratulations.

Andro · 12/12/2018 19:24

I'm glad your pain is under control Seafour - that must make things so much better!

When I left for work this morning, the leaves crunched underfoot and the air was so crisp and clean - it was beautiful and because it was still dark and cloudless the sky was a mass of stars.

Izzy24 · 12/12/2018 19:50

Glad to read your latest post @Seafour.
Glad the pain is under the control now but very frustrated on your behalf that they didn’t listen in the first place.

Now, did someone mention putting the kettle on?

WitchDancer · 12/12/2018 19:54

It's funny how having your hair tidied up can make you feel better. I'm so pleased that your pain is under control again. I'm not so pleased you're not in West Midlands, so I can't meet you in person

Seafour · 12/12/2018 20:41

I have made a new thread "all aboard the Seafour tour bus #2" in chat again, would someone more clever than me please post a link here to the new one and a link on the new one to the old one.

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MintyT · 12/12/2018 22:19

Well Sea, I've had good news today, news that I cannot share. But my son and DIL have have the social service claim closed as malicious

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