@PlumpkinPete
Another personal and potentially insensitive question here.
Did anyone suggest your children wouldn't have additional needs in heaven? And if so how did you/DH/DC feel about that?
I'm asking as I've heard from LDS acquaintance that any disability or health condition would be eliminated in heaven, including ASC. I personally felt very uncomfortable about it. For many people ASC (and other conditions) is part of their identity, they may not want to 'lose' and some neurodiverse people reject the disability label. I know we're edging into disability politics here, which is a bit off topic.
I suppose I was wondering whether that was a personal interpretation or official doctrine or if you'd come across it.
Really interesting questions. I guess the short answer is yes, that's what I believed.
There are all sorts of things that's people say and believe in the Mormon faith that isn't strictly "doctrine", so a big one with children (and adults) who have profound disabilities is that they assorted Saturn out of heaven in the pre existence and that they now have disabilities because they were so valiant in the pre existence that they were protected from Satan by having disabilities. The main purpose of life on earth, other than being tested is to gain a body.
When I attended church my children's behaviour was always a bone of contention. My eldest in particular really struggled with sensory issues while young and wasn't welcome in primary.we just had a difficult time and children are supposed to be seen and not heard and I think it actually made me a bad mother and made things so much worse for him and I. We have very challenging behaviour and I was more than once encouraged by professionals to not take him to church as it's just accelerated the negative cycle. School he was the naughty boy and then church we was the disruptive one that they didn't want in Primary. And it made significant impacts on his and my self esteem. So the idea that his difficulties be taken away was a dream come true.
The reality was after I distanced from it and stopped having this expectation (in my mind at least) that I have this bunch of children who are meek and mild and left both the school (which was the biggest factor) and the church, we saw dramatic improvements in his behaviour. He does have a lot of support at school (full time one to one) but he doesn't have any issues with behaviour. From being excluded daily to 2 fights in 4 years and one was someone else after he defended another child being picked on. He's caught up with his peers now and doing really well, he's happy and really polite (although cheeky sometimes).
I think years and years of forcing him to repress everything, I mean he's really sensitive to sound and hates singing and Church has lots of sing and he would scream and people would tut and I would take him out frustrated that he wouldn't just sit and be like everyone else there. So the idea he would be made "perfect" was appealing.
Now, I recognise he is absolutely perfect the way he is, he has different strengths and abilities to NT people, we accept him and all of them as they are. I am now ashamed of a lot actually but yes specifically that I would have wanted to take away him rather than work and help him.
Our other son with ASD is a lot more "severe" in that he has more profound learning disabilities, he would have say quietly for us as long as he has a sheep and a blanket over his head (not much has changed ) so people accepted that a lot more and I never felt quite the shame I did with my eldest son. Which is a horrific thing to say I realise.
On the other side of the coin I see families with children who ages profound disabilities almost wear it as a badge of honour and say things like God knew they would be the best parents and that they were chosen for this choice spirit as they will achieve exhalation (highest degree of Mormonism/god status).
A lot of those issues were my own, my own expectations of what my children should behave like so I can't really blame the religion on that, I think it made that situation worse though. Because others felt the need to tell me what to do, I was more than once that I should physically punish my child. As I say, a lot is just Mormon culture rather than Mormon doctrine but it's such a wide spread issue that it's hard to unpick one or the other.
My children are very different from who they were at church, none of them are perfect in anyway but they receive absolutely glowing reports at school, they are happy and polite, they care about others and are gaining confidence. I get comments everywhere that they are lovely children, they drive me insane daily and they obviously have significant challenges but leaving the church was the best thing ever for us as a family and they are much happier children.