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Elderly parents

Literally no one understands my reluctance to do personal care

358 replies

bringincrazyback · 25/09/2026 17:55

I just want to put that there for now, really, because this board has been just about the only place where people haven't made me feel like a strange/cruel person for saying that emergencies aside I want my DM's carers to handle her personal care (she lives with me) and I can only really get involved if it's needed at times outside of carer visits. Just been through it yet again with one of the carers this afternoon, and yet again I've been met with looks of incomprehension. It makes me feel so annoyed (especially as this never happens to men) but also ashamed that this is how petty and grudging I seem to be over some things. But feeling ashamed doesn't change the way I feel, unfortunately.

Is it reasonable for me to have this boundary (taking into account that I'd never leave my mum without personal care if she needed it), or do I just need to get over myself as a lot of people seem to think?

Sorry, just a quick vent for now as I need to see to DM now the carer's gone, but just needed to put this somewhere, just as a request for some empathy I guess, as I know some on here do understand it. (The only person who understands is DH, but of course if this ever happens to him with his mum he'll never be expected to do it anyway, being a man!) I'll add context later. Thanks for reading.

OP posts:
maxslice · 27/09/2026 22:23

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

withoutwingsnow · 27/09/2026 22:27

maxslice · 27/09/2026 22:20

You don’t know me. Stop pretending you do.

Your unfounded inexperienced judgement has said everything. I hope you find healing and stop projecting you hurt on others.

SallyAnnDrivesACar · 27/09/2026 22:47

Just stop doing it ffs - you can't do it, that's totally fine. It's okay.

My mum lives 5 minutes from me and my sister. I won't do it. No emergencies, no help. In fact I'll go as far to say I won't help her at all. I'll visit 3/4 times a week but I'm not doing anything than make her a coffee.

She has carers in for that.

bringincrazyback · 27/09/2026 22:54

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

So you're now trying to order me off my own thread. Just wow.

Keep right on embarrassing yourself if you like, just know we see you.

OP posts:
bringincrazyback · 27/09/2026 22:56

AnnoyedAsAllHeck · 27/09/2026 20:49

I will very much say I do not have the ability to be any adult's carer.
I cannot deal with the 3 P's at all. I was barely able to handle my children's; so there is no way I could deal with an adult's.
I totally admire those that can do so. They are heroes in my book.

I'm slightly embarrassed to say that it took me a moment to work out what the third P was. 😄

OP posts:
LilyBunch25 · 27/09/2026 23:23

bringincrazyback · 27/09/2026 22:54

So you're now trying to order me off my own thread. Just wow.

Keep right on embarrassing yourself if you like, just know we see you.

I wouldn't bother to respond to this poster any more OP- they have nothing to contribute, that's clear, but I'm sorry they felt it was acceptable to resort to these kinds of comments. MN deletion on earlier comments obviously hasn't deterred them.
Overall it's good that you've received some actually constructive and empathetic input on here, so hopefully it's still been helpful.

T1Dmama · 27/09/2026 23:40

bringincrazyback · 25/09/2026 22:45

So a bit of context to answer some of the questions pps have asked. We're self-funding (for now, anyway, not sure how long for though as we are upping the care hours) We have a self-employed carer some of the time, she's by far and away the best one we have, my mum likes her and we're currently looking at increasing her hours, as the rest of the time we have carers from a care company and as well as being bloody expensive it's been very problematic logistically for a ton of reasons I wouldn't want to bore anyone with. The carers themselves are mostly fine, they seem like pleasant people etc, they do what they're briefed to do (mostly) and I have a lot of respect for them. I couldn't do their job and I'm grateful there are people out there who will do it.

But I always seem to find that when a new carer comes in (i.e. a lot, the company seems to be having major staff retention issues atm), they will often seem puzzled as to why we have carers when I'm 'right there in the house' (as it was put to me once). I work, but from home, and we all know how that gets trivialised. I have various health issues (RA and chronic fatigue being the main offenders but not the only ones) which won't be apparent to the carers, but which mean I can't do everything. Even if I didn't feel the way I do about personal care, I'd be physically unable to give it on a daily basis.

Apparently, in addition to the puzzled looks, one or two of the carers have been asking my mum things like where am I (my mum has her own part of the house, and my husband and I live and work in a different part) and why aren't I looking after her/don't I ever look after her. (To be clear, I do everything that's needed between carer visits.) Unfortunately due to my mum's Alzheimer's she can't often remember people's names or exactly when things occurred, so I can't realistically challenge the carers on anything that might have been said, but my mum is still lucid a lot of the time and I believe her. I've also noticed tasks they are supposed to do being left undone by certain carers, and rightly or wrongly I'm getting a vibe of 'she can do it herself, the lazy mare, she's right here in the house.' As I mentioned upthread, I simply cannot imagine these assumptions/expectations being placed on a man.

My mum has always been desperate not to go into a home, and I'm doing my best to see to it she doesn't have to. I've also spent the past ten years caring for one or both parents at different times, I've been in varying degrees of burnout so long I can't even remember when it started any more (I do have some support in place as well as the increased care hours), and day-in-day-out personal care is simply not something I can do on any level. I'm really grateful to those on this thread who have empathised, and tbh I'm pleasantly surprised how many people there are out there who feel the same way about this! I do feel there's a bit of a taboo around not wanting to do certain things for an elderly parent, they brought you into the world, etc etc. What doesn't help is that some people in my life tend to romanticise the fact that I'm caring for my mum at home, which makes me feel like a fraud - I don't personally feel I should get a halo or a Blue Peter badge for it, I'm just doing what's necessary and a lot of the time I'm not very good at it tbh. But I'm doing my best. Thanks again to those who've posted supportively and with understanding.

First of all - don’t you dare speak down what you do do for your mum!… Just because you don’t do personal care, everything that you do is still extremely tiring!

You are paying for a device and don’t be afraid to complain if the carers are not doing everything you’ve asked them to do, or if they are treating you badly! It’s so easy to stick your relatives in a care home, like almost every other family does!… you have taken your mum in and you look after her 24/7, with the only time you can truly relax and be off duty is when her carers are there!! Take credit where credit is due!!

My nan is 100, she moved in with my parents almost 3 years ago… I’ve seen how draining it is, I sit with my nan as much as I can so mum has a break, we (me and mum) do personal care on her as it’s just physically impossible to have carers there everytime she poo’s…. It’s awful though… my nan isn’t completely in control and thinks she’s finished when she hasn’t, so there have been occasions where my mum has been mid wipe and my nan has poo’d on my mums hand!!
There is nothing nice about doing personal care, no one wants to do it, my mum has had to, and I have to in order to give my mother a break… but I wouldn’t judge anyone for not doing it unless absolutely necessary…
Obviously at some point you might have to wash her if she messes and the carers aren’t due for several hours ?!….

It sounds like you need to pay for private carers of your choosing (you already have one) and cut out the middle man… carers get minimal money out of what you actually pay the agency…. I’ve heard it’s £45 an hour and the carer gets £15!

Apart from me my mum gets no help at all, we recently put nan in a home for 2 weeks for respite for my mum, but that was horrendous and I can’t describe what they gave my nan as ‘care’ because whenever we visited without giving notice they’d left her in bed and we assume by her weight loss that they didn’t get her up for meals.

Caring for elderly relatives is really hard… don’t let anyone diminish that… even without personal care, it’s hard! My nan also has Alzheimer’s and it’s REALLY hard… she shouts out day and night and my mum is literally on call 24/7… it’s taking years off my parents!!!

Rottweilermummy · 28/09/2026 08:22

You are most definitely not being unreasonable and you are not alone i have known lots of women who can't do personal care. I work as a carer so see it all the time I did care for my mum, personal care too but I also know people who do care work but draw the line st their own parents personal care. There is no law that you should do it. Sometimes you have no choice in emergency you wouldn't leave your mum in discomfort. But that doesnt mean you have to do it all the time. Thats what carers are paid for. . There is a great FB group called caring for elderly parents if you are in UK but if not I expect there will be one for your country

Flamingpantoufles · 28/09/2026 10:25

Totally reasonable, OP. I had to do personal care for DM for a time and I really hated it & found it super stressful. I never want my DC to do this for me. And I agree that people never expect men to do this.

Kassiopea · 28/09/2026 10:50

My parents have carers. 100 percent agree with you on the personal care. Before we had carers in place i did do some personal care for them but i was not comfortable. Luckily my dad has Alzheimer's or he would have been absolutely mortified that i had to help him in the shower. I will do lots for them like shopping, cooking, cleaning.. but personal care is for their carers.

bringincrazyback · 28/09/2026 18:29

Kassiopea · 28/09/2026 10:50

My parents have carers. 100 percent agree with you on the personal care. Before we had carers in place i did do some personal care for them but i was not comfortable. Luckily my dad has Alzheimer's or he would have been absolutely mortified that i had to help him in the shower. I will do lots for them like shopping, cooking, cleaning.. but personal care is for their carers.

My mum has Alzheimer's too. She has never been remotely bothered who does her personal care, so that's helpful in terms of her not minding paid carers doing it, but less helpful in that I don't think she understands why I would mind, ditto why I'd mind seeing her naked! She's mostly cooperative with the carers, but sometimes refuses a wash and I am quite concerned in case that becomes a pattern.

DH and I don't have children together, but I do have to say that if we did, I wouldn't dream of putting them through this. I think it's very much an expectation of previous generations and is hopefully dying out.

OP posts:
withoutwingsnow · 28/09/2026 19:47

Mil used to ask dh to leave the room when she got dressed for bed - and there wasn’t even a glimpse of briefs. He told me she recently berated him for not staying in the bathroom to help her and when he said he didn’t feel comfortable she said well you did it for your kids!

rookiemere · 28/09/2026 21:35

@bringincrazybacksadly I don’t think it’s a generational thing, more of a dementia related issue. My pre dementia DM would have been horrified by what she expects of me, but the current one just sees me as human fixer.

Thankfully both DPs now in a care home near me and I never lived with them. She had carers through the council because we’re in Scotland and at one point one of them was muttering loudly about why DF (frail, 92 with dementia himself) wasn’t helping DM with her toileting, so I think some carers just very unhappy with the job - which I couldn’t do to be fair- and venting their frustration on those that they see as being more prosperous than they are.

I could literally do anyone else’s personal care in preference to my DPs, the whole thought of it repulses me, it’s such a strong sentiment and one I am not proud of.

ArcangelaTarabotti · 29/09/2026 08:12

rookiemere · 28/09/2026 21:35

@bringincrazybacksadly I don’t think it’s a generational thing, more of a dementia related issue. My pre dementia DM would have been horrified by what she expects of me, but the current one just sees me as human fixer.

Thankfully both DPs now in a care home near me and I never lived with them. She had carers through the council because we’re in Scotland and at one point one of them was muttering loudly about why DF (frail, 92 with dementia himself) wasn’t helping DM with her toileting, so I think some carers just very unhappy with the job - which I couldn’t do to be fair- and venting their frustration on those that they see as being more prosperous than they are.

I could literally do anyone else’s personal care in preference to my DPs, the whole thought of it repulses me, it’s such a strong sentiment and one I am not proud of.

I agree. Would do personal care for my partner but definitely not for my mother.

Kassiopea · 29/09/2026 10:32

bringincrazyback · 28/09/2026 18:29

My mum has Alzheimer's too. She has never been remotely bothered who does her personal care, so that's helpful in terms of her not minding paid carers doing it, but less helpful in that I don't think she understands why I would mind, ditto why I'd mind seeing her naked! She's mostly cooperative with the carers, but sometimes refuses a wash and I am quite concerned in case that becomes a pattern.

DH and I don't have children together, but I do have to say that if we did, I wouldn't dream of putting them through this. I think it's very much an expectation of previous generations and is hopefully dying out.

It's true they lose their inhibitions. I don't know what stage you mum is at but my dad refuses to be washed in the morning. Most of our carers are the same ones that have been coming for 3 years now and are amazing and know my dad well. We find that my dad is easier to wash and agree to personal care later in the day. Most mornings it's just a no! One carer in particular will shower and shave him at the dinner time visit as he's quite happy then.

bringincrazyback · 29/09/2026 13:20

Kassiopea · 29/09/2026 10:32

It's true they lose their inhibitions. I don't know what stage you mum is at but my dad refuses to be washed in the morning. Most of our carers are the same ones that have been coming for 3 years now and are amazing and know my dad well. We find that my dad is easier to wash and agree to personal care later in the day. Most mornings it's just a no! One carer in particular will shower and shave him at the dinner time visit as he's quite happy then.

My mum's moderate Alzheimer's on paper, but I think she's beginning to edge into severe, sadly. Many mornings the carers are greeted with 'I don't need a wash, I've just had one' which is almost never true. I can never quite tell if she really thinks she has (as once in a blue moon she actually will get up and wash unprompted before the carer arrives) or is just saying it because she doesn't want to wash (more likely). It's definitely not embarrassment, she's never been embarrassed about nudity, and in fact I often think part of my reticence to do personal care might stem from being laughed at by both my parents when younger about not wanting to see them with no clothes on or vice versa. 😔

Sadly her personal hygiene took a dive after my dad died, before she had even started with Alzheimer's, and she's needed prompting to wash and brush her teeth/hair ever since. I'm convinced she's depressed, and pretty deeply depressed at that, but it's very difficult to help with that because she categorically insists she isn't and won't hear of anything like counselling. 😔

OP posts:
Kassiopea · 29/09/2026 18:23

Do you have power of attorney? You could talk to her GP about antidepressants?

Rosscameasdoody · 29/09/2026 18:34

bringincrazyback · 29/09/2026 13:20

My mum's moderate Alzheimer's on paper, but I think she's beginning to edge into severe, sadly. Many mornings the carers are greeted with 'I don't need a wash, I've just had one' which is almost never true. I can never quite tell if she really thinks she has (as once in a blue moon she actually will get up and wash unprompted before the carer arrives) or is just saying it because she doesn't want to wash (more likely). It's definitely not embarrassment, she's never been embarrassed about nudity, and in fact I often think part of my reticence to do personal care might stem from being laughed at by both my parents when younger about not wanting to see them with no clothes on or vice versa. 😔

Sadly her personal hygiene took a dive after my dad died, before she had even started with Alzheimer's, and she's needed prompting to wash and brush her teeth/hair ever since. I'm convinced she's depressed, and pretty deeply depressed at that, but it's very difficult to help with that because she categorically insists she isn't and won't hear of anything like counselling. 😔

Again this resonates OP. Mum was the same - and as the condition progressed there was a noticeable aversion to soap and water. Her dementia specialist nurse advised that some dementia sufferers can’t tolerate the feel of water on the skin - hairwashing for example, can be intolerable. The LA carers used it as a reason not to force her - they stated that if she had capacity they couldn’t insist. When I pointed out that in fact she didn’t have capacity they were less than pleased but it did improve the personal hygiene side of things once I’d made my point to the care agency providing the support. I have a disabled wet room with level access shower which was literally five steps from mum’s bedroom, so they really didn’t have a leg to stand on - not least because the private carer used to coax her gently into the shower and was a lot kinder once she was there !!

As far as anti depressants go you need to be really careful. Dementia is caused by underlying disease to the brain and many anti-depressants have the opposite effect to what they’re designed to do. I know this from horrible personal experience with mum. Ask about Mirtazipine. Unlike SSRI’s it can be given in small to moderate doses on an as and when needed basis, rather than at regular intervals, and it aids with sleep too.

Rosscameasdoody · 29/09/2026 18:39

Kassiopea · 29/09/2026 10:32

It's true they lose their inhibitions. I don't know what stage you mum is at but my dad refuses to be washed in the morning. Most of our carers are the same ones that have been coming for 3 years now and are amazing and know my dad well. We find that my dad is easier to wash and agree to personal care later in the day. Most mornings it's just a no! One carer in particular will shower and shave him at the dinner time visit as he's quite happy then.

Agree. We found this with mum. The morning carers got nowhere with her - not that they tried very hard, but later visits tended to be a bit more successful.

Kassiopea · 29/09/2026 19:01

Rosscameasdoody · 29/09/2026 18:39

Agree. We found this with mum. The morning carers got nowhere with her - not that they tried very hard, but later visits tended to be a bit more successful.

We are lucky with our carers they go above and beyond. Apart from a select few we've been very lucky and they now feel part of our family almost. My mother is disabled now (for a reason nobody can find) so she cant look after my dad and he can't look after her. Doubly whammy. It's so hard with dementia, like a living grief.

autumnisherenow · 29/09/2026 22:13

IDreamtOfManderley · 25/09/2026 18:28

sorry, typo mistakes above,she has accidents both bladder and bowel and she phoned me up and I’m expected to clear everything up

You have my sympathy. My mother is reasonably compos mentis but doesn’t like wearing pants. She had accidents from her rear end but doesn’t seem to notice. I make sure I always have shoes on indoors as I never know what my be lurking on the floor somewhere.

Rumtopfkirsch · 29/09/2026 22:40

I've been holding guilt about not being prepared to carry out personal care for my elderly parents who are no longer alive, if called upon at the time, for a couple of decades. Maybe it's simply a taboo for many of us. What a relief to hear I'm not a freak!

bringincrazyback · 29/09/2026 23:06

Kassiopea · 29/09/2026 18:23

Do you have power of attorney? You could talk to her GP about antidepressants?

In the process of applying for POA. She's actually meant to be starting on sertraline, but we keep having to hold off as she's had some physical health stuff going on and GP's advised we wait till things have settled. I have to say I'm nervous about sertraline as I've heard the side effects can make things worse rather than better in the short term, and I'm honestly not sure how she'd deal with even a temporary worsening, but I know we need to try something so am going to give it a shot when she's on a more even keel physically. I know she's going to need close monitoring though.

OP posts:
bringincrazyback · 29/09/2026 23:10

Rumtopfkirsch · 29/09/2026 22:40

I've been holding guilt about not being prepared to carry out personal care for my elderly parents who are no longer alive, if called upon at the time, for a couple of decades. Maybe it's simply a taboo for many of us. What a relief to hear I'm not a freak!

Glad the thread has helped. Posting it has helped remind me that those of us who are going through this are not freaks, we're people who are doing our best for those we love, but we're human and we simply can't always do everything our loved ones might require of us.

OP posts:
bringincrazyback · 29/09/2026 23:15

Rosscameasdoody · 29/09/2026 18:34

Again this resonates OP. Mum was the same - and as the condition progressed there was a noticeable aversion to soap and water. Her dementia specialist nurse advised that some dementia sufferers can’t tolerate the feel of water on the skin - hairwashing for example, can be intolerable. The LA carers used it as a reason not to force her - they stated that if she had capacity they couldn’t insist. When I pointed out that in fact she didn’t have capacity they were less than pleased but it did improve the personal hygiene side of things once I’d made my point to the care agency providing the support. I have a disabled wet room with level access shower which was literally five steps from mum’s bedroom, so they really didn’t have a leg to stand on - not least because the private carer used to coax her gently into the shower and was a lot kinder once she was there !!

As far as anti depressants go you need to be really careful. Dementia is caused by underlying disease to the brain and many anti-depressants have the opposite effect to what they’re designed to do. I know this from horrible personal experience with mum. Ask about Mirtazipine. Unlike SSRI’s it can be given in small to moderate doses on an as and when needed basis, rather than at regular intervals, and it aids with sleep too.

Edited

That's helpful to read, she's meant to be starting sertraline but I'm nervous, as mentioned upthread. You've just reminded me that she used to be on mirtazapine and I can't remember why it was discontinued, but I think she tolerated it OK. Might be worth me asking the GP if restarting that is a better first step - thanks for mentioning it.

OP posts:
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