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Is everyone, everywhere ND - I seriously am confused.

549 replies

ThisWiseRobin · 13/09/2026 13:36

I understand that hundreds of hackles will rise, some will spit fire, some will curse me, but I just need to ask something, because currently things don't sit comfortably with me.

For ref: I read a thread about how children behave in school and how many times on MN posters will say that their child is Autistic, ADHD, or some other new word for being different.

See, when my generation was at school (1970), we had the lively kids, the quiet kids, the ones who did brilliantly, and the ones who struggled (like me with maths).
The less academic kids were usually great at sport or music or art; the most brainy ones scooped up all the prizes at prize-giving, and that was that. Life was uncomplicated and many will agree the best time to be alive.
But when the teacher walked in, all went quiet. No one threw furniture, no one had trouble calming down, no one screamed or threw tantrums....it simply did not happen. We all seemed to be able to control our emotions and get on with things.
I am truly distressed and concerned (after years of working in a pharmacy) about how many children are now drugged up, suppressed, or out of control - all of which lead to an unhappy child and a very unhappy adult.
It just seems to be everywhere, and I have had parents come in to proudly announce the diagnosis of something as if it's a badge of honour. "At last someone is listening to us....at least we have a diagnosis" - the little one is either fiddling with something on the shelf or jumping on the scales or whatever. I used to say, "Don't do that, thank you," and they would stop.

I don't want to detract from real problems but so many posters here just claim one diversity or another or suggest that a child who is being wacky and noisy is ND (I hate that expression - honestly)
I know my generation is a pain in the a** in younger people's eyes because they think we know nothing, but if the child is overactive, let them swing from the washing line, run around in circles on a field, or dig a hole.
Not every child is going to be at the top of their class; please let your children be children.
Us old people are not stupid; we have had quite a few turns around the sun and sometimes I just despair of what the future generations are going to turn out like.

*Calling a taxi for one now

OP posts:
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Kf37elrif · 13/09/2026 17:59

DistanceCall · 13/09/2026 17:56

No, that is not what I mean at all. I don't think there's overmedicalisation because girls and women are being diagnosed. I think there's overmedicalisation because the diagnostic criteria for autism and other conditions are bullshit.

Edited

Wow, only since the criteria started to recognise how it presents in women and girls.

DontBuyAnotherBook · 13/09/2026 18:02

tinfoilbat · 13/09/2026 17:09

I don't know about your kids, I am not arguing with their diagnosis at all but this girl is not diagnosed. I think many parents on here or those diagnosed are projecting into posts and getting triggered by situations that are not their own and taking as a personal insult things that have nothing to do with them.

I myself have a ND diagnosis but I still have the ability to take take a step back and think critically about myself, others and the situation we have in this area in the UK at the moment. It's clear many kids are being failed but the answer isn't always a diagnosis, for some it might be but for many it isn't and shouldn't be and we need to be able to have that conversation without it being shut down prematurely. As I say elsewhere, overdiagnosis or casual use of these labels actually takes away from the kid, like your daughter who really does need extra support.

Why did you push for a a diagnosis then?

PensionPTake · 13/09/2026 18:05

tinfoilbat · 13/09/2026 17:09

I don't know about your kids, I am not arguing with their diagnosis at all but this girl is not diagnosed. I think many parents on here or those diagnosed are projecting into posts and getting triggered by situations that are not their own and taking as a personal insult things that have nothing to do with them.

I myself have a ND diagnosis but I still have the ability to take take a step back and think critically about myself, others and the situation we have in this area in the UK at the moment. It's clear many kids are being failed but the answer isn't always a diagnosis, for some it might be but for many it isn't and shouldn't be and we need to be able to have that conversation without it being shut down prematurely. As I say elsewhere, overdiagnosis or casual use of these labels actually takes away from the kid, like your daughter who really does need extra support.

Nah, I don't buy into this whole 'one diagnosed asd person is taking support away from another' stuff. It's simply not true.

I could also say you're triggered by the fact this person thinks her dd is autistic but you disagree, and you're clearly also taking it personally as you're here posting about her despite it being nothing to do with you.

Differentforgirls · 13/09/2026 18:24

DontBuyAnotherBook · 13/09/2026 13:58

My son would still be autistic even if I smacked him every day. It isn't caused by bad parenting.

Bad parenting would be if you DID smack him every day imo.

dizzydizzydizzy · 13/09/2026 18:28

nomoremsniceperson · 13/09/2026 15:50

I'm pleased that people can get the help they need. However overdiagnosis is rampant. I've had ADHD like symptoms since early childhood, but they seem to be more related to anxiety and above avg iq than actual ADHD. Finding strategies to deal with the symptoms helped way more than taking meds, which gave me worse anxiety attacks. I've also had people suggest I'm autistic because I was socially awkward as a child, which is silly - lots of people are socially awkward growing up due to lack of confidence and poor self-esteem.

I have a friend I knew from uni who, in his 40s, has received an autism diagnosis. His behaviour has changed to fit the diagnosis and is much worse as a result. It's put a huge burden on his wife. They have also diagnosed 2 of their kids with autism which is also bogus. On a trip to visit them, he suggested my son is probably autistic because he is a slightly picky eater. I mean jfc have you met kids? I work in childcare, if picky eating means you're autistic, then nearly every child in my care is autistic.

It is a myth that ADHD and autism are overdiagnosed. It actually appears to be mainly the opposite. It just feels like overdiagnosis because so many people have been diagnosed in the last few years. The government is currently conducting an independent review into ADHD and autism and this is from their most recent interim report:

“The available evidence suggests a more complex position than either simple over- or underdiagnosis. Even allowing for uncertainty in population prevalence, recorded administrative prevalence remains below epidemiological estimates, although the gap appears to be narrowing, particularly among females and young adults.”
government report here:

https://www.gov.uk/government/publications/independent-review-into-mental-health-conditions-adhd-and-autism-interim-report/independent-review-into-mental-health-conditions-adhd-and-autism-interim-report

I’m glad to hear you don’t need ADHD meds. Perhaps you don’t have ADHD? Other issues can look like ADHD. Or perhaps you are in a particularly good place in your life that means that you can manage without.

As for your autistic friend. Perhaps he is now unmasking? Be glad that he is because the stress of masking causes many other problems - in my case, I have ended up with ME/CFs and am too ill to work.

Since be is is autistic, it is hardly surprising if his children are too.

Now that you have a more evidence-based picture on autism and ADHD not being overdiagnosed, can you not look at those of use with these diagnoses with a little more kindness and understanding? And pleas reflect on the fact that a diagnosis is bettter for the patient’s overall health (and the public purse) because they are less likely to end up with cormorbid illnesses or problems such as depression, T2 diabetes, drug or alcohol addiction, ME/CFS, prison time, domestic abuse etc etc.

Independent review into mental health conditions, ADHD and autism: interim report

https://www.gov.uk/government/publications/independent-review-into-mental-health-conditions-adhd-and-autism-interim-report/independent-review-into-mental-health-conditions-adhd-and-autism-interim-report

Comtesse · 13/09/2026 18:42

Autism wasn’t a stand alone diagnosis in the DSM until 1980. Clearly no one could be diagnosed with it if it wasn’t in the list if potential diagnoses.

I was at school from 1979 and there were clearly kids with autism or ADHD regardless of whether they had a formal diagnosis or not.

nomoremsniceperson · 13/09/2026 18:59

Kf37elrif · 13/09/2026 15:57

You haven’t got autism or ADHD. Those that have find diagnosis and medication hugely helpful. Medication is helping my children access education , it has also helped them access therapy and treatment. Their diagnoses has helped them to have treatment adjusted to their ND needs and helped them when in hospital and also to access support. Both have also helped them to stay out of hospital and move on from tier 3 treatment/ support.

You really do not know that you’re talking about.

I don't, and nor do several people I know who have been diagnosed with one or both. I'm happy your children are getting the help they need; however overdiagnosis is a real problem and is not helpful for the people being wrongly diagnosed.

DontBuyAnotherBook · 13/09/2026 19:01

nomoremsniceperson · 13/09/2026 18:59

I don't, and nor do several people I know who have been diagnosed with one or both. I'm happy your children are getting the help they need; however overdiagnosis is a real problem and is not helpful for the people being wrongly diagnosed.

Have they self diagnosed or being diagnosed by a professional?

nomoremsniceperson · 13/09/2026 19:09

dizzydizzydizzy · 13/09/2026 18:28

It is a myth that ADHD and autism are overdiagnosed. It actually appears to be mainly the opposite. It just feels like overdiagnosis because so many people have been diagnosed in the last few years. The government is currently conducting an independent review into ADHD and autism and this is from their most recent interim report:

“The available evidence suggests a more complex position than either simple over- or underdiagnosis. Even allowing for uncertainty in population prevalence, recorded administrative prevalence remains below epidemiological estimates, although the gap appears to be narrowing, particularly among females and young adults.”
government report here:

https://www.gov.uk/government/publications/independent-review-into-mental-health-conditions-adhd-and-autism-interim-report/independent-review-into-mental-health-conditions-adhd-and-autism-interim-report

I’m glad to hear you don’t need ADHD meds. Perhaps you don’t have ADHD? Other issues can look like ADHD. Or perhaps you are in a particularly good place in your life that means that you can manage without.

As for your autistic friend. Perhaps he is now unmasking? Be glad that he is because the stress of masking causes many other problems - in my case, I have ended up with ME/CFs and am too ill to work.

Since be is is autistic, it is hardly surprising if his children are too.

Now that you have a more evidence-based picture on autism and ADHD not being overdiagnosed, can you not look at those of use with these diagnoses with a little more kindness and understanding? And pleas reflect on the fact that a diagnosis is bettter for the patient’s overall health (and the public purse) because they are less likely to end up with cormorbid illnesses or problems such as depression, T2 diabetes, drug or alcohol addiction, ME/CFS, prison time, domestic abuse etc etc.

He isn't autistic and never was. Masking cannot be used as an all-round get-out to justify every dubious diagnosis - that makes autism into an unfalsifiable concept that can never ever be challenged, even if someone had no symptoms for 35 years. We don't have to take every single diagnosis seriously. I mainly have compassion for his wife who now has to deal with a man who behaves like a fussy child when previously he behaved like a responsible grown-up. They have serious familial trauma which I won't go into here as it would be outing, and it looks much more like the multiple autism diagnoses are a way to deal with this trauma. Which works great for the family members who are diagnosed but puts unbelievable amounts of pressure on the mother, who is the main breadwinner and the one who has to act like an adult and take care of everyone.

Kf37elrif · 13/09/2026 19:12

nomoremsniceperson · 13/09/2026 18:59

I don't, and nor do several people I know who have been diagnosed with one or both. I'm happy your children are getting the help they need; however overdiagnosis is a real problem and is not helpful for the people being wrongly diagnosed.

No over diagnosis is not a problem. Quite the reverse, both are under diagnosed and the NHS ADHD taskforce recently highlighted how much under diagnosis and undertreatment is costing the uk-£17 billion a year!

nomoremsniceperson · 13/09/2026 19:12

DontBuyAnotherBook · 13/09/2026 19:01

Have they self diagnosed or being diagnosed by a professional?

Initial self-diagnosis and then diagnosis from a professional, in a country well-known for being extremely liberal and broad regarding autism diagnoses.

Kf37elrif · 13/09/2026 19:14

nomoremsniceperson · 13/09/2026 18:59

I don't, and nor do several people I know who have been diagnosed with one or both. I'm happy your children are getting the help they need; however overdiagnosis is a real problem and is not helpful for the people being wrongly diagnosed.

You aren’t qualified to comment on the diagnoses others have.

Octavia64 · 13/09/2026 19:19

Ashmoleum · 13/09/2026 16:11

What does the diagnosis for ASD entail? Are there markers, traits, tests, and are benefits contingent on getting a formal diagnosis? Are huge resources fed into the ASD cohort, and how does that compare with other disabilities?

Those are just open questions, not asking anyone to say.

So there are various diagnostic instruments.

some children (typically those who would previously have been diagnosed with autism rather than Asperger’s) are typically diagnosed aged two or three and the most obvious characteristic is non verbal. There’s a big focus on spotting these children early because if the right interventions are got in place from toddlerhood many of them can develop verbal communication and social skills.

There are diagnostic criteria for autism - at this age though it is usually very apparent the child is not developing normally and it’s more a question of which diagnosis than do they need a diagnosis.

the sorts of interventions at toddler/preschool age are:

portage
https://www.portage.org.uk/about/what-portage

speech and language therapy (usually focusing on total communication approaches including Makaton and PECS)
https://www.integratedtreatmentservices.co.uk/our-approaches/speech-therapy-approaches/picture-exchange-communication-system-pecs/

aba (applied behavioural analysis) is generally not used any more as autistic people feel it is cruel and they’re probably right.
https://www.autismspeaks.org/applied-behavior-analysis

most of these approaches rely on the professionals teaching it to the parent as it needs to be consistent and pervasive to the environment to work.

With children older than this they’re usually verbal (although sometimes speaking in phrases from TV shows or similar and/or echoing others) and it’s a case of it’s picked up at school. Reception is often not too much of a problem - very eyfs and free flow, although for some autistic children the noise and general commotion is a problem, but year 1 is a big refferals year as school hits the point where more demands are made and many autistic children struggle to meet them.

so again, although there are diagnostic instruments and interviews etc if a six year old is self harming/violent towards others on the regular basis there is clearly something wrong and it’s a case of working out what it is.

Picture Exchange Communication System (PECS) - Integrated Treatment Services

PECS is a type of Augmentative and Alternative Communication that uses visual symbols to teach the learner to communicate with parents, carers, teachers and peers. 

https://www.integratedtreatmentservices.co.uk/our-approaches/speech-therapy-approaches/picture-exchange-communication-system-pecs/

Pumpkindice · 13/09/2026 19:19

nomoremsniceperson · 13/09/2026 19:12

Initial self-diagnosis and then diagnosis from a professional, in a country well-known for being extremely liberal and broad regarding autism diagnoses.

Do you mean that your friend was wrongly diagnosed, or that he was diagnosed and you don't believe him - if it's the former I'd be interested to know how?

nomoremsniceperson · 13/09/2026 19:23

Kf37elrif · 13/09/2026 19:14

You aren’t qualified to comment on the diagnoses others have.

And you aren't qualified to comment on situations I, not you, have experienced.

aCatCalledFawkes · 13/09/2026 19:24

nomoremsniceperson · 13/09/2026 18:59

I don't, and nor do several people I know who have been diagnosed with one or both. I'm happy your children are getting the help they need; however overdiagnosis is a real problem and is not helpful for the people being wrongly diagnosed.

Can you explain more about what the problem is and how you think it happens?
And what impact it has on your life? And also how many people do you know who have been wrongfully diagnosed?

Kf37elrif · 13/09/2026 19:26

nomoremsniceperson · 13/09/2026 19:23

And you aren't qualified to comment on situations I, not you, have experienced.

I think you’ll find I am. Anybody is as nobody is qualified to comment on the diagnosis of others particularly if they haven’t sat through their diagnosis process, read the forms or been present at the meetings involving their diagnosis.

Pumpkindice · 13/09/2026 19:27

nomoremsniceperson · 13/09/2026 19:23

And you aren't qualified to comment on situations I, not you, have experienced.

Oh what a false equivalence.
If you said you could diagnose heart disease and someone else said you couldn't because you're not a doctor, thats fact. That you have the experience of knowing the person who is ill and the other person doesn't, doesn't mean you are qualified. Arrogant tosh.

EverMerge · 13/09/2026 19:31

I think everyone confuses a diagnosis with a parent saying they have it. I will take a guess of children I believe have something and I can spot a child a mile off who is just a product of their family. They still need extra support but it does not mean they have anything.

It’s the reason EHCPs will be a thing of the past soon. It’s been overused. It’s a shame but no one wants to payout. It is far more important now to focus on the early years and support for children who have more severe needs who are being put into mainstream schools.

nomoremsniceperson · 13/09/2026 19:41

aCatCalledFawkes · 13/09/2026 19:24

Can you explain more about what the problem is and how you think it happens?
And what impact it has on your life? And also how many people do you know who have been wrongfully diagnosed?

Bit difficult to do that without being very very outing. I'll try to be vague but still explain... The situation in question is very sad and to do with a familial trauma involving a child who developed a very serious psychiatric issue that I don't want to name but is clearly a form of psychosis. They were instead diagnosed as having autism/ADHD. I knew this child since their babyhood well up until 12 and their development was entirely normal and healthy. Two other family members deeply affected by the traumatic events were then diagnosed too, despite me knowing the family very well for 20+ years and never ever seeing autistic traits in those members. Last time I saw them they suddenly had these diagnoses and their personalities had changed. It was very upsetting and I feel as though it is impeding their ability to properly process grief and heal from the trauma as a family, whilst also cementing those 2 family members into false identities. It has created a false narrative about what caused the main traumatic event (autism! of course!) and has put a huge burden on the mother of the family.

aCatCalledFawkes · 13/09/2026 19:41

tinfoilbat · 13/09/2026 16:35

My friend thinks her 11 year old daughter is autistic purely because her room is messy, she dislikes homework and when she comes home from school she has a tendency to be a bit ratty and grumpy and winds up her younger sister at times. My friend thinks this is a sign of "masking" it could be but nothing else about her daughter suggests autism. She's very popular in school and amongst her peers, typically being the "queen bee" of her class. She can be a bit shy with new people but enjoys dancing, make up, getting her nails done, skincare, perfume and hanging out with her friends, going in a group to the mall to browse the shops (especially Sephora) and spend her pocket money on matcha lattes and lip gloss etc. She's bright but fundamentally not that interested in school preferring her dancing and socialising. She shows no problem with sensory issues or upsets to her routine or any other typical traits of autism.

Nonetheless my friend is still seeking an autism assessment because her "negative" traits must mean their is something wrong with her that can be explained away with a diagnosis. Perhaps it isn't impossible but she also sounds like a pretty typical 11 year old girl.

I also used to work with a woman a few years ago who thought her 3 year old daughter might be bipolar because sometimes she was deliriously happy one minute and the next she was crying and upset. Not sure she'd ever met a 3 year old before.

Edited

I think this is you just projecting what you think autism is.
My son is very popular with lots of friends at school, he plays teams sports and has always had girlfriends but also very autistic.
What relevance do you think having her nails done is or wearing makeup has? DS also does a fair bit of shopping online, ok ticktock but still likes his things. I suspect I have autism and enjoy all of these things?
Good for your friend. If you hair and nails done is not part of assessment. Maybe if you had she said wore tracksuit trousers in 32 degrees of heat in Egypt or or has something about the sun or the cold or some other sort of sensory thing I could actually understand it.

Kf37elrif · 13/09/2026 19:44

This reply has been deleted

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Kirbert2 · 13/09/2026 19:46

EverMerge · 13/09/2026 19:31

I think everyone confuses a diagnosis with a parent saying they have it. I will take a guess of children I believe have something and I can spot a child a mile off who is just a product of their family. They still need extra support but it does not mean they have anything.

It’s the reason EHCPs will be a thing of the past soon. It’s been overused. It’s a shame but no one wants to payout. It is far more important now to focus on the early years and support for children who have more severe needs who are being put into mainstream schools.

I hope not.

My son manages well in mainstream but only with his EHCP. If he doesn't have his EHCP then he'd have to go a specialist school except you can't without an EHCP.

Ashmoleum · 13/09/2026 19:49

At one point there was a label of Aspergers applied to certain ND. I recall thinking it covered a milder version of full on ASD and Aspergers were more on the savant side of it, focused on things like computers, maths, lists, intricate construction of items, and so on, whereas the full on ASD had a more challenging diagnosis.

I don't mean to offend anyone by saying the above, it was just my perception at the time, and my nephew was initially given the Asperger's diagnosis, but is now ASD.

I realise that Aspergers is no longer used, due to its association with Hans Asperger and his Nazi eugenics connection, together with the merging of Aspergers into the broad spectrum of ASD.

aCatCalledFawkes · 13/09/2026 19:50

nomoremsniceperson · 13/09/2026 19:41

Bit difficult to do that without being very very outing. I'll try to be vague but still explain... The situation in question is very sad and to do with a familial trauma involving a child who developed a very serious psychiatric issue that I don't want to name but is clearly a form of psychosis. They were instead diagnosed as having autism/ADHD. I knew this child since their babyhood well up until 12 and their development was entirely normal and healthy. Two other family members deeply affected by the traumatic events were then diagnosed too, despite me knowing the family very well for 20+ years and never ever seeing autistic traits in those members. Last time I saw them they suddenly had these diagnoses and their personalities had changed. It was very upsetting and I feel as though it is impeding their ability to properly process grief and heal from the trauma as a family, whilst also cementing those 2 family members into false identities. It has created a false narrative about what caused the main traumatic event (autism! of course!) and has put a huge burden on the mother of the family.

But, all those things can be true at the same time. You can have psychosis, trauma, adhd and autism. My family has only just started talking about this. You are not the best person to detect autism if you have always known things to be the way they are. 20yrs ago we didn't measure autism in the same way or recognise it the way we do now.