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Whole families on UC, PIP, DLA and carers' allowance for each other?

1000 replies

Hutinthemiddleofnowhere · 05/09/2026 23:03

This isn't a bashing, rather a genuine observation and we're privileged in the UK to have support with benefits and disabilities.

Having adopted 2 siblings with special needs over a decade ago it opened me up to a whole new world to me. With DC in specialist schools and needing a lot of intervention from agencies and medical support I've met so many parents and children. As a teacher this was so insightful and, while having always been extra devoted to students who had difficulties, my own experience as a parent took it to another level.

Teaching, I was always aware and sympathetic to those who barely made it to lesson, almost fell asleep but professionally had to adhere to the 'not participating' and when told to 'fuck off' it was call out. I knew there would be further investigation as to why they act like this by more able and senior colleagues. Didn't take it personally but, as you can imagine, it's difficult when you have several students like this while under the pressure of teaching a tricky maths part of the syllabus.

So as a parent of ND DC I experienced it from the other side. It was very difficult because our DC were causing disruptions due to their severe diagnosis.

Throughout our journey and specialist schools I saw a lot of reality. This comes (finally) back to my point. Year after year it became blatantly obvious that the vast majority of children have parents with their own issues, whether hereditary or learnt behaviour.

I got a job at the primary school as a liason officer so met most parents. All lovely and care about their DC but sadly struggled with managing themselves, their homes etc. Those few who weren't eligible for taxis and escorts (walkable distance) relied heavily on GPs to take and pick up from school. There were some parents who did drive and drop off, like me, but it was about 5%.

So mostly the parents were on UC, claimed PIp for anxiety and MH, got DLA for all DC and also carers' allowance for looking after DC. While i visited it was clear they were were reclusive, their days were spent watching TV, gaming, DC picked up in a taxi and they had struggled to get out of bed, knew they are provided breakfast at school, went back to bed. Yes I've seen this on an early morning visit multiple times.

I understand but also a part of me felt frustrated that they had fallen into a rut, able bodied, could have long conversations, but have had so much support that has enabled this.

As a school we reached out to parents to come and integrate, provided workshops, held informal educational classes how we can help our DC. As a parent and before being employed there I attended these and it so nice to meet other parents. The reality... they just sat there, being served coffee by an already busy TA, talked all the way through the presentations then left, after already leaving several times for a smoke during an hour and half get together. Still as an attending parent at this point I could see TA was struggling so stepped in to help serve the refreshments, set up equipment and clear up afterwards. One Mum asked me to open a window, another asked to give her some biscuits...I was the same as them, a parent, but they were just totally oblivious to the situation.

Then walking out, having cleaned up and they were chatting outside, all I heard was that was so boring, I know how to bring up my kids, waste of time coming out, so what you doing now, probably Netflix.

Then getting the role and seeing deeper into their lifestyles it confirmed that actually so many of these parents had come from a generational cycle with low aspirations and no encouragement within modern education, social workers or support from us all could change their mindsets of behaviour. Sadly it really is a case of we get money, DC have their consoles, school provides meals and exercise, bags of amazing stuff at Christmas and end of year which we don't even say thank you for, we can complain online if we don't like something etc.

This is just the basic circumstances, delve deeper and you would be shocked at how some of these poor kids live. A whole different thread would have to be made about drug dealing, violence, not allowing DC in the house so they have to become one of the balaclava gangs and so much more.

As parents, even if we have our own issues, we all need to put our DC first, not rely on others to do it for us.

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OneLilacHedgehog · 12/09/2026 16:08

@roaringdragon because back then it meant living on an absolutely tiny amount of money. I know lots of people who have made a serious attempt on their lives and returned to work. The only one who didn't has schizophrenia and even she returned to regular volunteering.

roaringdragon · 12/09/2026 16:09

Someone can work and e.g. still need prompting to prepare a meal, prompting to wash/dress, prompting to budget, prompting to mix with others. They may still suffer OPD at leaving the house if they WFH full-time. Obviously this won’t apply to all, but for some it can.

Right, so no actual statistics.

OneLilacHedgehog · 12/09/2026 16:14

@roaringdragon come on you can't actually work if you need someone to persuade and prompt you to get dressed.

roaringdragon · 12/09/2026 16:15

Yes, you can. Just because you don’t understand doesn’t mean it isn’t possible.

OneLilacHedgehog · 12/09/2026 16:16

@roaringdragon so your boss is going to prompt you to do every tiny thing?

OneLilacHedgehog · 12/09/2026 16:17

And I totally understand about supporting someone severely depressed to get washed. It's not just can you get washed now. If that is all someone is doing you shouldn't get pip.

DiscoRice · 12/09/2026 16:20

OneLilacHedgehog · 12/09/2026 16:00

Obviously. But there is often an implicit assumption in these discussions that a serious blip in mental health means you won't get better. Like you tried to work and live a normal adult life, and failed so you now live on benefits.

But people have always had serious mental health blips throughout the decades. And the vast majority of people did return to work.

I have never seen that at all. I see the opposite. People expected to be recovered by a certain timeline. Not being able to return to work (if they had a job to return to to begin with. Some people get managed out or sacked), then made out to want to have a life of benefits because they can't get a job. A 6 week course of CBT expected to cure them.
People told they are scroungers and failures because they have not met someone else's arbitrary timeline of how recovery should be.

Yes, some people do make a full recovery. They are more likely to be the people who had some awful life circumstance that made them unwell, and things improved for them and things returned to normal. For people with a lifelong illness, it is not so straight forward.

roaringdragon · 12/09/2026 16:31

@OneLilacHedgehog there can be a difference between being prompted to dress (or prepare a meal, budget) reliably (which has a specific meaning for PIP) and needing to be prompted throughout the day to work. Some people can need the former, but not the latter.

There are also supported employment roles some people work in.

Some have support via Access to Work. Although that is a much more difficult system to navigate than it used to be.

There are other ways people can qualify for PIP and still work, anyway. For example, someone might need an aid, which aren’t just for physical health conditions, in order to complete the task even if they don’t need someone prompting them.

OneLilacHedgehog · 12/09/2026 16:31

@DiscoRice people with recurrent depression can learn to manage it so they can carry on with life and work.
Honestly I am older and know various peers who have bouts of depression, have even been hospitalised, but still carry on.
Sure you might be managed out of work for taking too much sick leave. Although there is far more protection that there used to be.
But it's not a case of oh I lost my job after I tried to kill myself, that's me on benefits for life.
In fact I know people who have been hospitalised with psychosis who have worked again.
The younger generation seem to think that difficulties with mental health means benefits for life. When in fact you are probably going to be able to work again.

OneLilacHedgehog · 12/09/2026 16:34

@roaringdragon I have no idea what you mean about a specific meaning to prompt.
I have supported someone to wash and dress due to severe depression. It was a damn sight more than okay time to get washed now.
If you can do a job without someone telling you what to do for every single task, of course you can do the same for very basic self care. Depression does not switch off like that.

OneLilacHedgehog · 12/09/2026 16:35

@DiscoRice you are referring to an old fashioned discredit idea of causes of depression.

DiscoRice · 12/09/2026 16:36

OneLilacHedgehog · 12/09/2026 16:35

@DiscoRice you are referring to an old fashioned discredit idea of causes of depression.

Why are you assuming it is depression?

DiscoRice · 12/09/2026 16:37

OneLilacHedgehog · 12/09/2026 16:31

@DiscoRice people with recurrent depression can learn to manage it so they can carry on with life and work.
Honestly I am older and know various peers who have bouts of depression, have even been hospitalised, but still carry on.
Sure you might be managed out of work for taking too much sick leave. Although there is far more protection that there used to be.
But it's not a case of oh I lost my job after I tried to kill myself, that's me on benefits for life.
In fact I know people who have been hospitalised with psychosis who have worked again.
The younger generation seem to think that difficulties with mental health means benefits for life. When in fact you are probably going to be able to work again.

A huge barrier to disabled people working is the employers.

roaringdragon · 12/09/2026 16:39

I didn’t say prompt had a specific meaning. If you actually read my post, I said reliably had a specific meaning for PIP. It does.

Nowhere have I said prompting only means saying time to get washed now.

Just because you don’t understand that some people can work but still need prompting for ADL doesn’t mean it isn’t true. Also, there are mental health conditions other than depression.

people with recurrent depression can learn to manage it so they can carry on with life and work.

Some can. Some cannot.

OneLilacHedgehog · 12/09/2026 16:40

DiscoRice · 12/09/2026 16:36

Why are you assuming it is depression?

You referred to depression and suicide attempts.
You talked about depression due to shit life circumstances as opposed to lifelong. This is a discredited old fashioned idea.

OneLilacHedgehog · 12/09/2026 16:41

@roaringdragon yes I read your post. What did you mean by prompt having a specific meaning for pip? What meaning?
I didn't realise I had to repeat your sentence in full to ask a question.

DiscoRice · 12/09/2026 16:42

OneLilacHedgehog · 12/09/2026 16:40

You referred to depression and suicide attempts.
You talked about depression due to shit life circumstances as opposed to lifelong. This is a discredited old fashioned idea.

I have not mentioned depression at all.

OneLilacHedgehog · 12/09/2026 16:43

DiscoRice · 12/09/2026 16:42

I have not mentioned depression at all.

Okay so why are people trying to kill themselves?

DiscoRice · 12/09/2026 16:45

OneLilacHedgehog · 12/09/2026 16:43

Okay so why are people trying to kill themselves?

The reasons for suicide are not as straight forward as you think, and it is not always to do with depression.

roaringdragon · 12/09/2026 16:46

@OneLilacHedgehog again, I didn’t say the word prompt had a specific meaning for PIP. If you read my post and actually comprehend it, I said reliably does. The term reliably isn’t specific to prompting.

And I actually explained what reliably meant for PIP I earlier in the thread. To repeat, “in order to be able to do an activity you have to be able to do it reliably. That is safely, to an acceptable standard, repeatedly and in a reasonable time frame.” Reliably has a specific meaning for PIP.

OneLilacHedgehog · 12/09/2026 16:55

DiscoRice · 12/09/2026 16:45

The reasons for suicide are not as straight forward as you think, and it is not always to do with depression.

You know you are not engaging in good faith.
Yes I know people try and kill themselves for various reasons e.g. terminally I'll and in pain.
The discussion you joined in was about suicide, mental health and depression. That is what all the other comments were talking about. So if you were somehow talking about something completely different you should have communicated that.

Personally I think you wanted to lecture me thinking I knew nothing about the subject so you could justify the idea that lifelong benefits are appropriate. You found out I knew more than you thought, and so have become ultra pedantic to? I don't know? Be a thorn in my side? No idea?

OneLilacHedgehog · 12/09/2026 16:57

@roaringdragon I understand the pip description. My point was that prompting someone who is severely depressed so on pip is a lot more than simply, oh it's time to wash now. It's persuading them to have a wash and supporting that.
And no someone who cannot wash without this cannot work. So no they would not get pip if they started and held down a job.

DiscoRice · 12/09/2026 17:00

OneLilacHedgehog · 12/09/2026 16:55

You know you are not engaging in good faith.
Yes I know people try and kill themselves for various reasons e.g. terminally I'll and in pain.
The discussion you joined in was about suicide, mental health and depression. That is what all the other comments were talking about. So if you were somehow talking about something completely different you should have communicated that.

Personally I think you wanted to lecture me thinking I knew nothing about the subject so you could justify the idea that lifelong benefits are appropriate. You found out I knew more than you thought, and so have become ultra pedantic to? I don't know? Be a thorn in my side? No idea?

You are funny, and have got me all wrong.

There is more to mental health than depression.

roaringdragon · 12/09/2026 17:01

As I said, some can (and do) work and be eligible for PIP. Just because you can’t fathom that doesn’t mean you are right. You aren’t.

Nowhere did I say prompting was simply saying it is time to wash now. In fact, I clarified that I didn’t say that.

If you understood the pip descriptors why ask what I meant when I said reliably had a specific meaning in terms of PIP?

OneLilacHedgehog · 12/09/2026 17:07

@roaringdragon I don't think someone who can work should get pip for saying they need prompting to wash and dress. It makes zero sense.

Lol at you lecturing me that mental health is more than depression when I have already talked about psychosis and sectioning.
You may know far more than me how to get the maximum money out of the benefits system. But I know lots about serious mental health and how many people with very challenging mental health issues do work and carry on with life when they can, instead of just getting benefits.

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