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Whole families on UC, PIP, DLA and carers' allowance for each other?

1000 replies

Hutinthemiddleofnowhere · 05/09/2026 23:03

This isn't a bashing, rather a genuine observation and we're privileged in the UK to have support with benefits and disabilities.

Having adopted 2 siblings with special needs over a decade ago it opened me up to a whole new world to me. With DC in specialist schools and needing a lot of intervention from agencies and medical support I've met so many parents and children. As a teacher this was so insightful and, while having always been extra devoted to students who had difficulties, my own experience as a parent took it to another level.

Teaching, I was always aware and sympathetic to those who barely made it to lesson, almost fell asleep but professionally had to adhere to the 'not participating' and when told to 'fuck off' it was call out. I knew there would be further investigation as to why they act like this by more able and senior colleagues. Didn't take it personally but, as you can imagine, it's difficult when you have several students like this while under the pressure of teaching a tricky maths part of the syllabus.

So as a parent of ND DC I experienced it from the other side. It was very difficult because our DC were causing disruptions due to their severe diagnosis.

Throughout our journey and specialist schools I saw a lot of reality. This comes (finally) back to my point. Year after year it became blatantly obvious that the vast majority of children have parents with their own issues, whether hereditary or learnt behaviour.

I got a job at the primary school as a liason officer so met most parents. All lovely and care about their DC but sadly struggled with managing themselves, their homes etc. Those few who weren't eligible for taxis and escorts (walkable distance) relied heavily on GPs to take and pick up from school. There were some parents who did drive and drop off, like me, but it was about 5%.

So mostly the parents were on UC, claimed PIp for anxiety and MH, got DLA for all DC and also carers' allowance for looking after DC. While i visited it was clear they were were reclusive, their days were spent watching TV, gaming, DC picked up in a taxi and they had struggled to get out of bed, knew they are provided breakfast at school, went back to bed. Yes I've seen this on an early morning visit multiple times.

I understand but also a part of me felt frustrated that they had fallen into a rut, able bodied, could have long conversations, but have had so much support that has enabled this.

As a school we reached out to parents to come and integrate, provided workshops, held informal educational classes how we can help our DC. As a parent and before being employed there I attended these and it so nice to meet other parents. The reality... they just sat there, being served coffee by an already busy TA, talked all the way through the presentations then left, after already leaving several times for a smoke during an hour and half get together. Still as an attending parent at this point I could see TA was struggling so stepped in to help serve the refreshments, set up equipment and clear up afterwards. One Mum asked me to open a window, another asked to give her some biscuits...I was the same as them, a parent, but they were just totally oblivious to the situation.

Then walking out, having cleaned up and they were chatting outside, all I heard was that was so boring, I know how to bring up my kids, waste of time coming out, so what you doing now, probably Netflix.

Then getting the role and seeing deeper into their lifestyles it confirmed that actually so many of these parents had come from a generational cycle with low aspirations and no encouragement within modern education, social workers or support from us all could change their mindsets of behaviour. Sadly it really is a case of we get money, DC have their consoles, school provides meals and exercise, bags of amazing stuff at Christmas and end of year which we don't even say thank you for, we can complain online if we don't like something etc.

This is just the basic circumstances, delve deeper and you would be shocked at how some of these poor kids live. A whole different thread would have to be made about drug dealing, violence, not allowing DC in the house so they have to become one of the balaclava gangs and so much more.

As parents, even if we have our own issues, we all need to put our DC first, not rely on others to do it for us.

OP posts:
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YourGoldLurker · 12/09/2026 10:18

Hutinthemiddleofnowhere · 08/09/2026 18:57

I get this and have experienced the same myself. DC were incredibly challenging and I changed my job to be able to pick them up t whatever time, when mainstream school rang (daily) for behaviour. So, no, I couldn't work the same as I did and my priority was DH's job and DC. It was for about 2 years before we got them into a fantastic specialist school. Meanwhile I worked a couple of agency night shifts a week so would be available, it wasn't easy! It was great when they had settled so I was able to get the SLO job. So thankful for DLA as well, makes a huge difference, also free intervention from so many agencies.

Guess my point here was as parents you need to be as pro active as you can and not just expect everyone else to manage your lives. Help is offered, take it, learn how we as parents can support our DC.

I have MH issues, take medication, push myself to get up early, engage with work, try my best to set a positive role model.

It's not easy but every little step helps.

And the Op gets DLA for her kids and has made a post critical of other families who claim it. It is completely fine that you take medication for your MH issues and go to work but a lot of people can't. When my MH issues were at their worst I would not have been able to hold a job down. Medication doesn't fix everything

x2boys · 12/09/2026 10:21

ChloeKellys · 12/09/2026 10:16

Apparently some people can't work due to anxiety. Not even part time or anything. But they can post on MN

An anxiety disorder can be very severe
Most of us will have had mild anxiety at some point but they are not the same thing

YourGoldLurker · 12/09/2026 10:23

ChloeKellys · 12/09/2026 10:16

Apparently some people can't work due to anxiety. Not even part time or anything. But they can post on MN

Are you trying to suggest that because someone can type a sentence that they are fit for work and don't have anxiety? If that's a dig at me I've made it quite clear that I have physical disabilities too -but with respect you don't know anything about what I've been doing to try and get back into the workplace -and maybe you should keep your snide digs to yourself

YourGoldLurker · 12/09/2026 10:24

GiaGia16 · 12/09/2026 10:17

Endlessly!

No one is forcing you to read.

YourGoldLurker · 12/09/2026 10:28

x2boys · 12/09/2026 10:21

An anxiety disorder can be very severe
Most of us will have had mild anxiety at some point but they are not the same thing

Probably one of the most abelist comments I have seen on the boards. If you can type on Mumsnet then you're fit enough to work. I should have reminded myself of that when I was just out of hospital after an operation to pin my leg back together. I couldn't walk but I could type and should have been working from my bed.

My relative who commited suicide could type. It didn't stop him taking his own life.

YourGoldLurker · 12/09/2026 10:38

ChloeKellys · 12/09/2026 10:16

Apparently some people can't work due to anxiety. Not even part time or anything. But they can post on MN

Maybe keep your nasty abelist comments to yourself. The reason that I wasn't able to work isn't just because of anxiety. I was stalked for 15 months. My safety was put at risk multiple times and police did nothing. I don't just have anxiety. I have anxiety depression and PTSD.

I worked for 30 years before that happened to me. I didn't have to work for a while after that because of money that I received -I wasn't on benefits. I wasn't well enough. And just as I was offered a job -I had a triple leg fracture that meant I had to have a ten inch plate put in my left leg and two screws in my right ankle.

I finished a degree last year (online). Because I didn't want to be sitting doing nothing. And I've just finished volunteer training to go back into a line of work that I have experience in.
If you don't realise how damaging your comments are saying that if people can type they can work -then I don't know what to say to you.

Owninterpreter · 12/09/2026 10:44

This reply has been deleted

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GiaGia16 · 12/09/2026 10:50

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Oh me too please

YourGoldLurker · 12/09/2026 11:04

I was suicidal after that gang who stalked me had finished with me. I had packages coming through my front door. Photos of my house going on the internet. My address tweeted. It has been a long hard slog to try and piece my life back together -and it's never going to be the way it was before all that happened to me.

Some people should stop making nasty value judgements about people who suffer from mental health issues
There's nothing wrong with them. They can post on a forum. They should be working.

This is what people with mental health issues have to deal with all the time. You don't look unwell. There's nothing wrong with you. And if you get disability benefits you are looked down on more. You're a scrounger and your benefits should be taken off you.

All you need to do to fix your mental health issues is work. I spent two years crying down the phone to my mum. Every night after one specific event that happened to me. I was deeply traumatised. I spent a year seeing a psychologist

But apparently Im just suffering from "anxiety " and because I can type I can work ? I had a job offer before I broke my leg that I couldn't take up. I have every intention of working again.

Just another benefit bashing thread with some people looking down their nose at people with mental health issues.

Maybe people should stop gate keeping complete strangers on the internet and snidely telling them they are fit to work because they can post on a forum. Didn't realise that only people who work were allowed the privilege of posting online.

YourGoldLurker · 12/09/2026 11:10

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

Do you think it's funny that people are suggesting that because someone can post online that they aren't unwell. There was a spate of suicides in the space of a year of young men who support the same football club I do. All of them were active online before they ended their lives. I think the mods should look at this thread because it's starting to get really nasty and the rhetoric that if people can type they don't have MH issues is really damaging

x2boys · 12/09/2026 11:13

My son was in intensive care a few years ago and was able to type on his phone
So its a bit ridiculous to suggest if you can post on a forum you can go to work.

YourGoldLurker · 12/09/2026 11:22

I've asked the mods to take a look at this thread. I personally don't care if people want to make digs at me and my situation or how often I have posted on this thread. But to post that people aren't unfit to work if they can type is nasty and abelist and it's what people with disabilities -not just mental health have to put up with daily.

Maybe people need to check their own attitudes to people on benefits and people with mental health issues -because just because someone posts on a forum doesn't mean they aren't suffering.

Casual every day abelism. Some people get so fixated on the fact that they think complete strangers online should be working because they say so they don't see how awful they look.

FayeMumsnet · 12/09/2026 11:22

Hi all.

We just wanted to let you know that nobody is paid to post on Mumsnet. Some companies pay to advertise on the site, of course, but we don't pay people to post.

Sorry for any disappointment.

Best wishes,
Faye
MNHQ.

Owninterpreter · 12/09/2026 11:38

YourGoldLurker · 12/09/2026 11:10

Do you think it's funny that people are suggesting that because someone can post online that they aren't unwell. There was a spate of suicides in the space of a year of young men who support the same football club I do. All of them were active online before they ended their lives. I think the mods should look at this thread because it's starting to get really nasty and the rhetoric that if people can type they don't have MH issues is really damaging

I dont think its funny. I think the comment was utterly ridiculous so I responded to them in a way they might understand. By being equally ridiculous and very sarcastic.

I apologise if it upset you and the intention wasnt obvious. But I was very much intending to question the person making the comment not people with anxiety and depression..

More of my family members have committed suicide than have had cancer so I well understand the umpact if mental health and how they were in the run up. Walking dogs, chatting to people.

But I stand by the principle that posting on mumsnet is nothing like paid employment it doesnt have the same stressors like targets, bossess, social aspects, timekeeping, deadlines and people with severe depression or anxiety can post on munsnet but cant work (partly because no such job exists)

Pickledonion1999 · 12/09/2026 12:05

FirmSnake · 12/09/2026 06:30

No one gets PIP just for mental health? They very much do actually.

Totally agree. In my last job I came across loads getting it purely for mental health.

FirmSnake · 12/09/2026 14:09

YourGoldLurker · 12/09/2026 10:14

You made a post stating how many people claim it for anxiety and depression. Anxiety and depression alone. Certain mental health conditions get minimised. It's all the way through this thread. People shouldn't get Pip for anxiety. Anxiety is nothing. People should only get pip for schizophrenia. Take their Pip off them.

I didnt minimise anything. I responded to a post claiming it didn't happen

YourGoldLurker · 12/09/2026 15:35

I know of someone who has worked all of their adult life They tried to commit suicide and were in hospital. They were then diagnosed with CPTSD due to domestic violence. They aren't working just now and don't know if they'll be able to return in the timescale their employer will want them to.

They've made a claim for Pip. When people say that lots of people are getting Pip for mental health they surely understand that people's mental health can fluctuate. Or it can complete collapse.

A lot of people with MH issues struggle on until they can't anymore. Or until they end their lives.

I wouldn't wish that on anyone. My uncle went missing and it was a month before his body was found. He just left a note saying he couldn't go on. Outwardly he seemed the happiest and most stable than he had been in a very long time. My mum had to take time off work and be put on medication, she was so traumatised. I was halfway through my first degree and I don't know how I finished it.

When you hear of someone on Pip or any other disability benefit you actually don't know what their story is behind the scenes.

People who have mental health issues aren't just groups of people to be lumped in as "people with anxiety and depression who claim benefits". There could be a lot more going on in their life than anyone knows. As I said before Pip doesn't turn off job seeking requirements. LCWRA does that and being on LCWRA doesn't mean you'll qualify for Pip either.

I said it earlier in the thread. I was turned down three times for LCWRA for mental health issues. I said it was two. Actually 3. I scored no points on one occasion when I was probably at the lowest point that I had ever been at in my adult life. Suffering from PTSD depression and insomnia, anxiety and severe trauma. No points.

And that is exactly the same narrative as -you can type you can get a job. You look like there's nothing wrong with you.

Many people don't live the high life on benefits. I certainly don't. I'm not a scrounger either -Ive been unwell. But when my LCWRA award (for physical disabilities)runs out I won't be applying again for my mental health I found the process so stressful it made my mental health worse.

OneLilacHedgehog · 12/09/2026 15:42

One in thirteen adults make an attempt in their life at some point. Most go on to live hpy lives and are at work. Lots of people have temporary quite serious blips on their mental health, but get better.

DiscoRice · 12/09/2026 15:47

OneLilacHedgehog · 12/09/2026 15:42

One in thirteen adults make an attempt in their life at some point. Most go on to live hpy lives and are at work. Lots of people have temporary quite serious blips on their mental health, but get better.

Good for them. Lots of people don't. For some, poor mental health is life long.

roaringdragon · 12/09/2026 15:50

Just because some get better doesn’t mean all do.

Some of those who get better will claim PIP &/or UC when they are unwell.

x2boys · 12/09/2026 15:52

OneLilacHedgehog · 12/09/2026 15:42

One in thirteen adults make an attempt in their life at some point. Most go on to live hpy lives and are at work. Lots of people have temporary quite serious blips on their mental health, but get better.

And lots of people dont.

OneLilacHedgehog · 12/09/2026 16:00

roaringdragon · 12/09/2026 15:50

Just because some get better doesn’t mean all do.

Some of those who get better will claim PIP &/or UC when they are unwell.

Obviously. But there is often an implicit assumption in these discussions that a serious blip in mental health means you won't get better. Like you tried to work and live a normal adult life, and failed so you now live on benefits.

But people have always had serious mental health blips throughout the decades. And the vast majority of people did return to work.

LakieLady · 12/09/2026 16:03

x2boys · 12/09/2026 09:42

Both of which can be very severe
And they will need evidence from mental health professionsls .

I think people often don't realise how disabling depression and/or anxiety can be.

I've known depressed people really neglect their self-care, to the point that they go without bathing or showering for so long that they develop significant skin problems, and never cook a meal, but live on toast.

roaringdragon · 12/09/2026 16:04

OneLilacHedgehog · 12/09/2026 16:00

Obviously. But there is often an implicit assumption in these discussions that a serious blip in mental health means you won't get better. Like you tried to work and live a normal adult life, and failed so you now live on benefits.

But people have always had serious mental health blips throughout the decades. And the vast majority of people did return to work.

No-one on this thread has said or implied no-one with mental health conditions gets better.

Where are your statistics from that show the vast majority who were unable to work went on to return to work.

Some who return to work continue to be eligible for PIP &/or UC.

OneLilacHedgehog · 12/09/2026 16:06

@roaringdragon if you can manage to work, how would you get pip for mental health alone unless you are literally working a few hours a week? Someone who can work and keep that job is obviously washing, dressing and eating okay.

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