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Whole families on UC, PIP, DLA and carers' allowance for each other?

1000 replies

Hutinthemiddleofnowhere · 05/09/2026 23:03

This isn't a bashing, rather a genuine observation and we're privileged in the UK to have support with benefits and disabilities.

Having adopted 2 siblings with special needs over a decade ago it opened me up to a whole new world to me. With DC in specialist schools and needing a lot of intervention from agencies and medical support I've met so many parents and children. As a teacher this was so insightful and, while having always been extra devoted to students who had difficulties, my own experience as a parent took it to another level.

Teaching, I was always aware and sympathetic to those who barely made it to lesson, almost fell asleep but professionally had to adhere to the 'not participating' and when told to 'fuck off' it was call out. I knew there would be further investigation as to why they act like this by more able and senior colleagues. Didn't take it personally but, as you can imagine, it's difficult when you have several students like this while under the pressure of teaching a tricky maths part of the syllabus.

So as a parent of ND DC I experienced it from the other side. It was very difficult because our DC were causing disruptions due to their severe diagnosis.

Throughout our journey and specialist schools I saw a lot of reality. This comes (finally) back to my point. Year after year it became blatantly obvious that the vast majority of children have parents with their own issues, whether hereditary or learnt behaviour.

I got a job at the primary school as a liason officer so met most parents. All lovely and care about their DC but sadly struggled with managing themselves, their homes etc. Those few who weren't eligible for taxis and escorts (walkable distance) relied heavily on GPs to take and pick up from school. There were some parents who did drive and drop off, like me, but it was about 5%.

So mostly the parents were on UC, claimed PIp for anxiety and MH, got DLA for all DC and also carers' allowance for looking after DC. While i visited it was clear they were were reclusive, their days were spent watching TV, gaming, DC picked up in a taxi and they had struggled to get out of bed, knew they are provided breakfast at school, went back to bed. Yes I've seen this on an early morning visit multiple times.

I understand but also a part of me felt frustrated that they had fallen into a rut, able bodied, could have long conversations, but have had so much support that has enabled this.

As a school we reached out to parents to come and integrate, provided workshops, held informal educational classes how we can help our DC. As a parent and before being employed there I attended these and it so nice to meet other parents. The reality... they just sat there, being served coffee by an already busy TA, talked all the way through the presentations then left, after already leaving several times for a smoke during an hour and half get together. Still as an attending parent at this point I could see TA was struggling so stepped in to help serve the refreshments, set up equipment and clear up afterwards. One Mum asked me to open a window, another asked to give her some biscuits...I was the same as them, a parent, but they were just totally oblivious to the situation.

Then walking out, having cleaned up and they were chatting outside, all I heard was that was so boring, I know how to bring up my kids, waste of time coming out, so what you doing now, probably Netflix.

Then getting the role and seeing deeper into their lifestyles it confirmed that actually so many of these parents had come from a generational cycle with low aspirations and no encouragement within modern education, social workers or support from us all could change their mindsets of behaviour. Sadly it really is a case of we get money, DC have their consoles, school provides meals and exercise, bags of amazing stuff at Christmas and end of year which we don't even say thank you for, we can complain online if we don't like something etc.

This is just the basic circumstances, delve deeper and you would be shocked at how some of these poor kids live. A whole different thread would have to be made about drug dealing, violence, not allowing DC in the house so they have to become one of the balaclava gangs and so much more.

As parents, even if we have our own issues, we all need to put our DC first, not rely on others to do it for us.

OP posts:
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YourGoldLurker · 11/09/2026 10:42

Making blanket statements that our welfare system is amazing isn't helpful either. Lots of people get turned down for Pip and LCWRA and have to go to tribunal to get it. Most awards are awarded at the last stage. It can be a horrible stressful experience to go through. Not just the trying to get disability benefits in the first place -having to fight to get decisions overturned.

You don't know how easy it was for some of these families to get Pip. Or how difficult. You've just lumped them into one big lazy group of people who get money for nothing. They all claimed PIP for anxiety. Everything about your post seems to be suggesting that getting PIP is so easy. The volume of people turned down at the first attempt would suggest otherwise.

I get the Scottish equivalent. ADP. I have anxiety depression and PTSD and I don't get the enhanced rate for my mental health. I also got the award for two years and then it's reviewed -which is pretty standard

As I said in previous posts I was turned down twice for Lcwra when I was suffering from extreme trauma, PTSD anxiety and depression. I scored zero points twice and I was fit to work according to the DWP.

You may be frustrated that people aren't doing enough for their lives or their kids for your liking -but there are a lot of people on disability benefits with kids who struggle. A friend of mine is a single parent. She doesn't get Pip. She gets lcwra. Shes suffered from ill health since she was a child and only very recently got lcwra.

She was telling me that the cuts to food vouchers for families on low incomes over the summer had really impacted her.

She ran out of money two days before payday and I gave her a loan -there are people on benefits with kids who struggle badly. They don't have the easy life that you're trying to portray in this post.

I would say exactly the same for people in in work poverty.

YourGoldLurker · 11/09/2026 10:54

OneLilacHedgehog · 11/09/2026 10:39

No. But you can get £3000 a month or more on benefits. It's having kids and disability benefits that pushes it up.

The reason that child element on UC exists is to try and pull people out of poverty. There are 4 million children living in relative poverty in the UK after housing costs

Kirbert2 · 11/09/2026 10:59

x2boys · 11/09/2026 08:56

I know as i get it
And having a severly disabled child
We get more than most
Ww can afford to live
But im not swanning around in designer gear none of us are.
My phone was £69.99 from samsung
So not the latest I phone or whatever

Yep.

and I actually have to no choice but to buy expensive footwear because my son needs adaptive footwear.

In reality, the DLA doesn't stretch as far as some people may think due to the expenses of having a disabled child.

Definitely no luxuries here either.

roaringdragon · 11/09/2026 11:01

Kirbert2 · 11/09/2026 10:59

Yep.

and I actually have to no choice but to buy expensive footwear because my son needs adaptive footwear.

In reality, the DLA doesn't stretch as far as some people may think due to the expenses of having a disabled child.

Definitely no luxuries here either.

Exactly. We spend far more on disability related expenses than we receive in benefits for DSs.

It is possible for a single person or couple without children or LCW/LCWRA to have earnings of £3k per month and still be eligible for some UC. For example, if they live in an area with one of the higher LHA.

OneLilacHedgehog · 11/09/2026 11:03

YourGoldLurker · 11/09/2026 10:54

The reason that child element on UC exists is to try and pull people out of poverty. There are 4 million children living in relative poverty in the UK after housing costs

Yes for two adults and two children that is below £530 a week after housing costs.
Honestly doesn't sound like poverty.

DontBuyAnotherBook · 11/09/2026 11:56

roaringdragon · 11/09/2026 10:39

If you want DS to attend full time, he can unless the school is formally suspending DS.

Then you get UC

It is possible to not be eligible for NS-ESA or UC. Not everyone is eligible for UC.

We get UC and high rate DLA for my child.

roaringdragon · 11/09/2026 12:00

DontBuyAnotherBook · 11/09/2026 11:56

We get UC and high rate DLA for my child.

You might, but not everyone does, so the pp who posted “Then you get UC”* *and automatically assuming someone who doesn’t get NS-ESA can then claim UC isn’t correct.

OonaStubbs · 11/09/2026 12:03

UC should be abolished.

YourGoldLurker · 11/09/2026 12:06

OneLilacHedgehog · 11/09/2026 11:03

Yes for two adults and two children that is below £530 a week after housing costs.
Honestly doesn't sound like poverty.

Two adults and two kids who don't have disabilities don't get 530 quid a week UC after housing costs

YourGoldLurker · 11/09/2026 12:09

OonaStubbs · 11/09/2026 12:03

UC should be abolished.

No it shouldn't. It would lead to homelessness because people wouldn't be able to afford to pay rent. There has and there always will be unemployment so if you take that safety net away from people it's going to cause far more problems in terms of people being evicted from tenancies.

Single people on UC gets 434 a month as it is.

OonaStubbs · 11/09/2026 12:10

£530 a week after housing costs is a lot and more than a lot of people have after working all week. It's ridiculous.

YourGoldLurker · 11/09/2026 12:13

OonaStubbs · 11/09/2026 12:10

£530 a week after housing costs is a lot and more than a lot of people have after working all week. It's ridiculous.

Except that figure isn't accurate. The higher rate is if kids have disabilities.

FirmSnake · 11/09/2026 12:15

YourGoldLurker · 11/09/2026 12:13

Except that figure isn't accurate. The higher rate is if kids have disabilities.

That is the metric for relative poverty for 2 adults and 2 kids. It is an accurate figure. Doesn't mean every family of 4 on UC has that much left after housing.

Owninterpreter · 11/09/2026 12:15

YourGoldLurker · 11/09/2026 12:06

Two adults and two kids who don't have disabilities don't get 530 quid a week UC after housing costs

The poster means the definition of relative poverty in when income falls below 60% of the median income which is currently £530ish after household costs, whatever the income source. They felt that didnt sound like poverty.

However just because that is the current threshold, families living solely benefits may be well below the threshold.

Thewonderfuldollypartonsbra · 11/09/2026 12:16

Bluebeast · 08/09/2026 17:38

I wish more was done to look into childrens home lives at the time of autism assessments.

My friends sister lives exactly as you described. She never took her son anywhere to socialise as a toddler, he'd be lucky to visit the park once every 4 months. All her son has ever known is life inside a dank and depressing, cramped dirty flat with unlimited YouTube to raise him and no rules.

Now he's in school - they're saying he must be autistic because he's so unsociable, can't handle noises or stimulating situations, doesnt understand rules and has poor gross motor skills.

Its like we've stopped looking into other root causes of certain behaviours and just going straight down the ASD route every time!

I knew a family,who at the time had a dd and a ds (this was the mid 90's)

The ds's only crime was being born a boy

He was left to his own devices at all times and the only attention he ever got was to be walloped over the smallest thing (while his big sister got away with murder and in time,his younger sisters)

He got to about 5/6 years old and was unmanageable with his mother and grandma (if they'd bothered to get to know him rather than ignoring him,they would have found a lovely boy who was desperate to be loved)

He would play up with them/the school and laugh when his mother and grandma belted him (im amazed ss didn't get involved-i certainly rang them enough times)

Instead of thinking 'why is he like this?' they went straight to 'adhd!' and as the mother bragged 'that'll be more money for me!'

It went nowhere-anyone with eyes could see that he didn't have it but it was heartbreaking to see what was happening,he wasn't a bad lad,just one that craved attention/parenting and wasn't getting it

I'm proud to say that the snotty nosed,often dirty and misunderstood young boy has grown up into the most hard working and lovely young man

I know another family who for generations haven't worked-all claim benefits (uc and the grandma claims pip)

Anxiety/adhd/battens disease/pots/autism/'bad heart' have all been mentioned by the family as a way of trying to claim 'more out of the system' and 'im owed x benefit/y benefit'

They google illnesses (at times,in front of me) and go running to the doctor claiming they have it or ring out ambulances to get checked out on what illness they claim to have this week (they genuinely seem to believe their symptoms match Google and I've heard them talking about how much they'd get if they have it)

They don't get very far with this but it doesn't stop them trying-I've heard them swapping tips on how to claim extra benefits

All are very low iq and can't see why nobody believes them

Their dream words are 'you'll never work again' spoken by a doctor

There are familes like this out there-not many (most are genuine) but they do exist

Most who claim are genuine (and I personally don't begrudge anyone who claims if they are entitled to,its what the system is there for) but i do get pissed off at these ones-theres nothing wrong with them and they laugh at the thought of getting a job

It's learned behaviour and passed down the generations

I don't know the answer

(I also want to stress,I have no issues with benefits-genuine people who need extra support deserve every penny and more)

roaringdragon · 11/09/2026 12:21

OonaStubbs · 11/09/2026 12:10

£530 a week after housing costs is a lot and more than a lot of people have after working all week. It's ridiculous.

A family of 2 adults and 2 DC earning £530 per week would also be receiving some benefits.

Kirbert2 · 11/09/2026 12:29

OonaStubbs · 11/09/2026 12:03

UC should be abolished.

and what would that solve exactly? Especially for those unable to work or those on a low income who also still get UC.

YourGoldLurker · 11/09/2026 12:32

A family of 4 who are on UC and whose kids don't have disabilities get around £1274 a month in UC after housing costs. If people think a family of 4 living on 530 a week after housing costs aren't poor- you don't know what peoples outgoings are and we can't assume that every family getting that income isn't working either.

I earned 26k a year 35 years ago and I've never had a salary higher than that. There are families who struggle on 50 and 100k due to outgoings -childcare being one of them. You can't just look at a figure and go -these people aren't struggling.

YourGoldLurker · 11/09/2026 12:47

Kirbert2 · 11/09/2026 12:29

and what would that solve exactly? Especially for those unable to work or those on a low income who also still get UC.

Edited

I presume it would starve people back to work. I spoke about my uncle earlier in the thread. He had mental health issues and he eventually took his own life. He gave up his teaching job because of his health. He did claim benefits but no housing costs and he went back to work in another line of work -he would go through spells of being really unwell and spells when he was stable. If we abolish UC we are taking away a lifeline for people who aren't well enough to work too. Because not everyone with disabilities gets disability benefits.

I would lose my tenancy if I didn't currently get UC. (And I had just been offered a job prior to that accident). I'll be off disability benefits shortly but if my rent isn't paid until I find work I'll lose my tenancy.

Owninterpreter · 11/09/2026 12:49

roaringdragon · 11/09/2026 12:21

A family of 2 adults and 2 DC earning £530 per week would also be receiving some benefits.

Its not their earnings, its the income left after taxes, and housing costs that makes the definition of relative poverty for a famiy of that size sit at 530.

I dont know the interaction of benefits and housing costs well but I dont think everyone working full time who falls into this category woukd be eligible for benefits.

roaringdragon · 11/09/2026 12:54

Owninterpreter · 11/09/2026 12:49

Its not their earnings, its the income left after taxes, and housing costs that makes the definition of relative poverty for a famiy of that size sit at 530.

I dont know the interaction of benefits and housing costs well but I dont think everyone working full time who falls into this category woukd be eligible for benefits.

My post wasn’t about the relative poverty figure. It was in response to the pp saying £530 per week is more than a lot of people have after working all week.

A family of 2 adults and 2 DC with earnings of £530 pw would be entitled to benefits. The would receive child benefit. As long as they didn’t have capital over the limit, they would also receive UC. That applies even if they didn’t have housing costs.

Lougle · 11/09/2026 12:55

OonaStubbs · 11/09/2026 12:10

£530 a week after housing costs is a lot and more than a lot of people have after working all week. It's ridiculous.

Sorry, misread.

Kirbert2 · 11/09/2026 12:59

YourGoldLurker · 11/09/2026 12:47

I presume it would starve people back to work. I spoke about my uncle earlier in the thread. He had mental health issues and he eventually took his own life. He gave up his teaching job because of his health. He did claim benefits but no housing costs and he went back to work in another line of work -he would go through spells of being really unwell and spells when he was stable. If we abolish UC we are taking away a lifeline for people who aren't well enough to work too. Because not everyone with disabilities gets disability benefits.

I would lose my tenancy if I didn't currently get UC. (And I had just been offered a job prior to that accident). I'll be off disability benefits shortly but if my rent isn't paid until I find work I'll lose my tenancy.

Not to mention carers who are unable to work. I'm not disabled but my child is, UC is an absolute lifeline for people like me too.

I'm sorry to hear about your uncle.

YourGoldLurker · 11/09/2026 13:05

Thewonderfuldollypartonsbra · 11/09/2026 12:16

I knew a family,who at the time had a dd and a ds (this was the mid 90's)

The ds's only crime was being born a boy

He was left to his own devices at all times and the only attention he ever got was to be walloped over the smallest thing (while his big sister got away with murder and in time,his younger sisters)

He got to about 5/6 years old and was unmanageable with his mother and grandma (if they'd bothered to get to know him rather than ignoring him,they would have found a lovely boy who was desperate to be loved)

He would play up with them/the school and laugh when his mother and grandma belted him (im amazed ss didn't get involved-i certainly rang them enough times)

Instead of thinking 'why is he like this?' they went straight to 'adhd!' and as the mother bragged 'that'll be more money for me!'

It went nowhere-anyone with eyes could see that he didn't have it but it was heartbreaking to see what was happening,he wasn't a bad lad,just one that craved attention/parenting and wasn't getting it

I'm proud to say that the snotty nosed,often dirty and misunderstood young boy has grown up into the most hard working and lovely young man

I know another family who for generations haven't worked-all claim benefits (uc and the grandma claims pip)

Anxiety/adhd/battens disease/pots/autism/'bad heart' have all been mentioned by the family as a way of trying to claim 'more out of the system' and 'im owed x benefit/y benefit'

They google illnesses (at times,in front of me) and go running to the doctor claiming they have it or ring out ambulances to get checked out on what illness they claim to have this week (they genuinely seem to believe their symptoms match Google and I've heard them talking about how much they'd get if they have it)

They don't get very far with this but it doesn't stop them trying-I've heard them swapping tips on how to claim extra benefits

All are very low iq and can't see why nobody believes them

Their dream words are 'you'll never work again' spoken by a doctor

There are familes like this out there-not many (most are genuine) but they do exist

Most who claim are genuine (and I personally don't begrudge anyone who claims if they are entitled to,its what the system is there for) but i do get pissed off at these ones-theres nothing wrong with them and they laugh at the thought of getting a job

It's learned behaviour and passed down the generations

I don't know the answer

(I also want to stress,I have no issues with benefits-genuine people who need extra support deserve every penny and more)

Have you ever gone through the process of trying to get Pip ? When I was awarded ADP which is the Scottish equivalent I got a two year award. Very few people on Pip get lifetime awards. Also. I doubt very much whether ambulances would come to someone's door just because they felt ill. I fractured my leg in three places two years ago and under no circumstances would I have qualified for an ambulance. My brother had to take me to hospital and then I had to get taxis.

The DWP can overrule a fit note. My GP was overruled several times. You have to provide evidence to get Pip and ADP

Im pretty sure there are people who abuse the system but having been through the process of trying to get LCWRA three times I have never got it for mental health. I suffer from PTSD anxiety and depression. I scored zero every time. Even though I had evidence to back the conditions I have. Yours and other peoples posts seem to be suggesting that it's really easy to get disability benefits. That wasn't my experience and it's not a lot of other peoples experiences either.

Btw my anxiety is crippling. It's a real condition which impacts my life greatly. It's not something that I would invent to get disability benefits.

YourGoldLurker · 11/09/2026 13:15

Kirbert2 · 11/09/2026 12:59

Not to mention carers who are unable to work. I'm not disabled but my child is, UC is an absolute lifeline for people like me too.

I'm sorry to hear about your uncle.

Thank you. It gets wearying sometimes being lumped in with the small minority of people who do abuse the system. Particularly when people constantly talk about folk claiming they have anxiety to get Pip. I don't get ADP because I have MH issues. I get it because they impact my life day to day. And I spent years struggling on with the same conditions before I got to the point that I was suffering from extreme trauma, not well enough to work.

I think people don't always see what some people on these benefits are dealing with day to day. Its only the so called "scammers" that get the attention and the rest of us get tarred with the same brush.

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