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Top of the waiting list appointment

(14 Posts)
ProfessionalPirate Wed 16-Aug-17 11:19:07

DH and I have been TTC just over 3 years now. We've had all the preliminary workup done at our small local hospital (HSG, scans, bloods, SA) followed by 6 months of clomid, which didn't work.

At our last post-clomid followup appointment in July we were told the next stage would be referral to James Cook for assisted conception and that we should call them to make an appointment.

When I called, we were immediately offered an appointment for the end of August. I assumed it would be some sort of booking-in/eligibility check and we would then get put on a waiting list for treatment. But i've had all the documents through in the post now, and it turns out it is our 'top of the waiting list' appointment! I'm now a bit excited at the thought that this may all be happening sooner than I thought, but also worried that there has been some kind of mistake/misunderstanding. Are waiting lists not as long as I thought now? Does anyone know how quickly I am likely to move onto treatment? Or what the likely sequence of events will be?

Thegrumpos Wed 16-Aug-17 15:00:02

Hey I'm being treated at James Cook too! "Top of the waiting list" is basically what they call you when you've been referred but not actually "in IVF treatment", so for example I went to my first JC appointment in January but am only just now signed off and ready for IVF next cycle - however Lost about 3 months as we decided to take a little break so it would have been sooner without that. Also I had to have an additional scan due to a cyst which worried them but turned out to be nothing - however that also added 4 weeks.
You will need to have AMH levels done which is a scan and blood test, that will take a month or so to have booked in and follow up and they will want to do oh sperm again, also you have to attend a mandatory information event at the hospital before you move up to IVF clinic, so it will be a couple of months i would suggest. Mine has been longer due to reasons I've mentioned, I really like JC thought and although they never run on time in the gyno department I'm happy with treatment and support so far. Best of luck!!

Thegrumpos Wed 16-Aug-17 15:04:23

I should also add that once you get the official sign off from consultant ( you see them in the gyno department not actually in IVF clinic until you're in treatment) it is still another few weeks to a month before you'd actually go and see the nurses because it depends on your cycle, so I was on cd4 when I had to ring them to book in for egg collection, so I have to wait that whole cycle to start AF again then ring them, which hopefully I'll be doing in a few days! - then I'll get my appointment to get all my drugs and off I go! It's a bit of a long winded process but considering I took a 3 month break it's not too bad - my drugs will start in 3 wks with egg collection and transfer the first part of October

Becbec123 Mon 27-Nov-17 22:41:32

Hi !! How is it going ? Have you had treatment yet ?
Out TOTL appointment is 12th of December at JC ! xx

cherryontopp Tue 28-Nov-17 11:01:09

I was at James Cook too. My advice would be to always ring and double check.

They booked me in for the same test twice, didnt send paperwork etc. Always double check things.

Mr Mustafa, the nurses and embryologists are brilliant despite the few minor mistakes, mainly admin ones.
We had our top of the waiting list appointment at the end of January and my IVF started in May.

ProfessionalPirate Tue 28-Nov-17 11:23:24

Hi Bec I'm in the middle of my IVF cycle now, got my egg collection tomorrow!

Things moved pretty quickly after my TOTL appointment. I called the nurses and gave them the details of my last period, and they booked in my egg collection date based on that (27th nov)

I had to wait for my next period and then started birth control pills, downregging etc from there. I'm on long protocol and the whole thing takes a lot longer than I imagined.

I would echo the advice of cherry and say just keep calling them if you're not sure. You have to call them to arrange the egg collection date, but I didn't realise this and was waiting for them to call me. Wasted a couple of weeks on that. Good luck for 12th dec!

Becbec123 Tue 28-Nov-17 12:28:41

Thank you for the update ! Hope EC goes well tomorrow , please keep me updated ?!
This has given me a little hope as hopefully by March we would have started the treatment ! Thank you for commenting back it means a lot ! Xx

Becbec123 Tue 28-Nov-17 12:47:32

Thank you cherry on top for commenting !
So you both waited about 3 months before it got going. This makes me so excited !
Did your ivf work if you don’t mind me asking ? x

cherryontopp Tue 28-Nov-17 15:28:28

Mine did smileim one of the lucky ones.
First attempt in May, got 10 collected, 7 fertilised and i think 4 made it to 5 day blast.
My best two were 4BB, as they weren't top grade I asked for 2 to be put back in, fully prepared to have twins.

Im now 7 month pregnant with a single pregnancy (had a bleed at 7w +5d so this could have been the other egg)

Miracles do happenflowers

Becbec123 Tue 28-Nov-17 18:17:21

Aww that’s brilliant ! So you would be 7 months now I guess ? How old are you may I ask ? We have been invited to a meeting on Thursday in the lecture theatre on the James Cook campus somewhere. We’ve been told we have to go as part of the treatment. Did both of you go to this ? Do they tell you much there ? Xx

cherryontopp Wed 29-Nov-17 11:06:49

I was 28 at my treatment in May, now 29.

I attended yes and it was informal yes. A lot of the stuff i knew from looking into IVF itself. But does give a lot of practical advice such as car parking and prescription fees.

If you want any advice or to ask questions just PM me smile

Becbec123 Mon 04-Dec-17 23:03:57

Hi ! How did your egg collection go ? X

ProfessionalPirate Thu 07-Dec-17 18:58:07

Hi Bec, they got 10 eggs, 8 mature, 7 fertilised and one embryo was put back on day 2. They said there was no pointing in waiting longer as there was a clear front runner and none of the other embryos were doing as well. I asked for 2 to be put back because I felt it was a disadvantage to do such an early transfer, but they wouldn't do it. I think they've really clamped down on multiple transfers, especially if you're under 35 (which I am). They grew the others on to day 5, but sadly nothing was considered good enough to warrant freezing. So now I'm in my 2ww, and it's driving me crazy!

How did you find the information session? X

Becbec123 Thu 07-Dec-17 21:42:30

The information session was ok. Basic info that you would know from research online. They said that there was no difference from transferring on the second day or the 5th so hopefully that gives you a little hope!

Hope you’re not worrying too much. Try and relax - easier said than done I know.

Keeping my fingers crossed for you ! x

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