Hilary Cass was actively impeded from doing a follow-up study of Tavistock children by adult gender clinics who wouldn’t co-operate.

[ChristinaXYZ]

Important point from novelist Simon Edge

https://twitter.com/simonjedge/status/1778000213149377015

"Hilary Cass was actively impeded from doing a follow-up study of Tavistock children by adult gender clinics who wouldn’t co-operate. She believes this stunning refusal was co-ordinated and ideologically driven. All credit to
Amelia Gentleman in the Guardian for this revelation"

Full quote in image on twitter

https://twitter.com/simonjedge/status/1777983256224210993/photo/1

Why hide the data unless it didn't agree with the ideology?

Quite.

Damn. This should be headline news. EVERY parent should know this.

HOW can they refuse to cooperate? How can this be legal when it's completely experimental treatment? The government should force them to reveal this information.

If this 'lack of cooperation' study is the York study that was supposed to report during the lifetime of the Cass Review, it will be done under the aegis of the NHS.

How come they’re allowed to refuse to give information? They are publically funded. This sort of behaviour should be criminalised.

See https://www.mumsnet.com/talk/womens_rights/5046919-refusal-of-adult-gender-clinics-to-take-part-in-study-shocking-david-bell?reply=134426036

This is utterly shocking. It leads to the conclusion that they know they have harmed patients and are trying to cover it up.

I think the new study will be more limited, and prospective only. Access to retrospective and prospective data for the 9000 treated over the last ten years would have been incredibly valuable. I think they should have been forced into it: they're a disgrace.

If you mean the Simonoff study, that's prospective and about puberty suppressors etc. Trial design etc. tbc after consultation. No protocol available as yet.

The York study was the linked data one, iirc.

https://cass.independent-review.uk/cass-review-quantitive-research/

Everybody who refused to cooperate should be fired from their current position and barred from everyone working for the NHS again.

The people who refused will have had approval to refuse from senior levels. They will be lionised for this 'ethical' stance.

The NHS is a fully captured organisation in some areas.

https://www.mumsnet.com/talk/womens_rights/4582003-tras-attempting-to-obstruct-cass-review?

Remember Michael Brady?

"The NHS review into single-sex wards is being carried out by a "trans advocate" who has said that rules that allow patients to self-identify their gender will not be changed, The Telegraph can reveal.

Dr Michael Brady, the national adviser for LGBT health at NHS England, has written to campaign groups telling them that there is “no plan to reduce existing rights of trans people”. Controversial charities Stonewall and Mermaids had contributed “very helpfully” to the process, Dr Brady told the Trans NHS Staff Network in emails seen by The Telegraph.

The review came just months after Sajid Javid asked his officials to look at the policies in the wake of a Telegraph investigation which revealed that some issued by NHS trusts said that male sex offenders who self-identify as women could be placed on female-only wards....

Despite the review of this guidance being ordered amid concern for the impact on women, Dr Brady said in emails that the “commitment from the team leading on the review is supporting the maintenance/strengthening of trans rights in the update”.

https://www.mumsnet.com/talk/womens_rights/4506395-Fears-over-flawed-NHS-single-sex-wards-review-carried-out-by-trans-advocate

So it will now happen as planned? GIDS have only delayed things? That is quite exciting. I hope patients don't get lobbied into refusing to cooperate.

If necessary, it won't be the first time the ICO has had to be involved in legal action about handing over clinical data…But grief, it cost millions on a previous occasion.

NHS England (via the Children and Young People’s Gender Dysphoria Research Oversight Board) should come out with a clear statement about the York study in the comparatively near future.

Cass called upon NHS England to use their power to order the cooperation af adult gids.

So this balloon on Ch4 now is saying he will give drugs to 16+ year olds? He should be speaking to the police surely?

I fail to see how any prospective research involving giving children puberty blockers could be ethical given what we know about their dreadful harms.

I can't disagree but I'm suspending judgment until I see the protocol.

The protocol will have to be approved by an ethics body and the principle of it has already had a pass through an ethics review…And the protocol will be published.

Well that the interesting thing. Don't do this unless it is part of an approved and monitored experimental protocol means you don't get to ignore medical ethics and have to clearly define what it is you're trying to treat, how plausibly this might help, and how precisely you're going to check whether it did.

Experimenting on children is a big step forward ( which reflects just how bad of a place we were in)

Amelia Gentlemen didn’t “reveal” it. It’s in the Report!

How damning does the information have to be for them to flatly refuse to give it to Hilary Cass?

None of this the dog ate it, it was accidentally deleted blah. They just flatly refused to hand it over.

Unless the issue is that they simply don't have it. They never made any notes or recorded any decisions.

But you'd have to think, what? all of them?

Unless the issue is that they simply don't have it. They never made any notes or recorded any decisions.

Public sector organisations are supposed to be subject to quality assessment/improvement/value for money etc.

Yeah, but with everything else, as soon as you mention the word trans, any normal standards disappear out the window.

From sex matters.

"There are two places where Dr Cass seems to suggest that the institutional failings are so severe that individuals may need to be held to account. The first is in GIDS – her description of the abysmal quality of the medical notes of the youths referred for puberty blockers is absolutely shocking"

It is not ethical to experiment on children with drugs known to cause catastrophic harms. The whole reason for the TRA ‘suicide’ claim was to justify any action as being ‘better than death’. We know the suicide claim is false.

One of the difficulties here is that there was no gate-keeping to referral at some points.

Youth workers, schools, Mermaids, wholly inappropriate people and organisations were making referrals. I accept it would be unrealistic for them to have stated the clinical grounds but that's also what led to wholly inappropriate referrals as well as referrals that were inadequately documented.

Beyond that, GIDS are on their own. I can see why the documentation would be been scant, particularly where people

• convinced themselves it was unnecessary (ideology)
• were already uneasy and may have already registered complaints with Bell et al. and, may not, ahead of potential future legal action, have wished to document a hostage to fortune where they would be
• plausibly criticised if they documented their misgivings
• probably outside the terms of their insurance coverage if they did documented misgivings and proceeded with treatment anyway.